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I am a C-4/5 quadriplegic as a result of an SCI in 1970. For the past 10 years I have been having a lot of problems with low blood pressure. It drops dangerously low (70 /40 and even lower) especially whenever I eat. It does not seem to matter what I eat, how much or how many times a day. I take Florinef and Midodrine but my pressure often drops more than 80 points within minutes. I have been to cardiologists, neurologists, a nephrologist, physiatrists, gastroenterologists, nutritionists, as well as other doctors but no one seems to have a solution. What do you suggest?
  • Posted Sat 24 Nov 2018 10:54 AM EST
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Nurse Linda, I had an accident five years ago I have a C5/C6 incomplite injury. Last year I had done a Mitrofanoff. Affter a very hard recovery things are working fine. Summer is about to start where I live and I,m looking forward to do some PT in a public pool for people with deshabilities. But i,m very cocernd about UTI,s. I don,t  want to get sick or compremise the operation. What is your advice in these matter?
God Bless,
Thank you.
  • Posted Tue 20 Nov 2018 01:41 PM EST
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Nurse Linda,  I came across your article on body temperature regulation and I wanted to thank you.  The information you provided is extremely helpful.  Even though my neurologist is aware that I do not register temperature properly below the level of injury, no one had ever told me the signs to watch for to ensure I do not over heat. Thank you!
  • Posted Sat 19 May 2018 07:51 PM EDT
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Hello, Can we be friends? If you don't mind
I'm Mrs Sherri from United States I
came across your contact on and decided
to communicate with you because I intend to
 visit your country soon. To know more about
 me send your private email address
 for  introduction.
  • Posted Mon 05 Mar 2018 06:47 AM EST
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I sustained a complete, C5/6 spinal cord injury in June 2000 following a motorbike accident.
I have a neurogenic bladder with an indwelling supra-pubic catheter. I have had untold trouble with repeated UTI's, visceral pelvic pain and severe dysreflexia.
I have been seen by several urologists and have had failed numerous interventions (including bladder botox, urethral stenting, cycled antibiotics, etc...) and short of a surgical diversion, I feel I'm  running out of options.
Please could you share your experience and expertise as the daily badder pain is unberable and affecting my quality of life. Look forward to your feedback. Thank you.
  • Posted Thu 31 Aug 2017 05:55 PM EDT
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i tried to ask a few Q's but appered to be having issues
1. what causes damage to the silia(?)
2.for the Noro user, i find prune juice 1 hour before program helpful
3. i have in the last year started having AD when sleeping on my left side , im now wonderig if this could be gas
  • Posted Wed 30 Aug 2017 04:17 PM EDT
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Nurse Linda,  My husband Paul has paraparesis and does not have the use of his legs at all.  The spasticity is unreal he takes baclofin regularly but it does not control it.  His neurologist had suggested a baclofin pump but we rejected it due to the fact that we are 50 miles from the neurogist's office and his care of the pump.   The pain he experiences from the spasims breaks my heart but I can do nothing.  Would what you describ in your article be of benefit to him?  Is this something we should discuss with his neuro?
  • Posted Tue 04 Jul 2017 12:26 PM EDT
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Nurse Linda,
im a 58 year old female in excruciating pain. I was in a car accident in 1979 and severed my spinal cord at T11/T12. I've always had pain but in the early years it was not daily just every once in awhile and I could sleep without pain as the years have progressed I'm experiencing much more pain and it's constant. It's hard to sleep anymore as my legs are so painful even though I can't feel them. In 2016 I went to many doctors to try and determine what was causing all of this pain will little results. We don't have any physiatrists in Sarasota FL so I haven't seen one in 20 years. I was pretty healthy otherwise until about 6 years ago when the pain increased and my bodies changing. I have Harrington rods in my back and have scoliosis at L1 & L2 along with spinal stenosis. I also have tendenopathy in both shoulders from over use with my manual chair. Do you know of any physiatrists in Florida or better yet where are the best ones located? Also can you recommend the best manual chairs ( I use a quickie) and I'm going to need the power assist wheels. I just need help. I've had no one to talk with in so long about my condition that I've had to wing it. Thank you for any info. Edye
  • Posted Tue 21 Mar 2017 12:38 AM EDT
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Hi Linda I am Atif I want I have a gunshot injury my C7 and T1 vertebrae was effected,Bullet does not hit the cord but the bone fragments compressed and damaged the spinal cord, Bullets are still in my body and it been eight years (I don't have any Spinal surgery) .I have little improvement but almost no sense and no motor function below the injury, I want to know what will happen when pieces of bones left in the cord ,Do they desolve naturally or what happen when nerves are compressed for long time and what happen to the cord which was burnt due to bullet heat .Can it heal naturally or do you know any therapy or medicine which will help me.
  • Posted Thu 16 Feb 2017 11:02 PM EST
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Hi nurse Linda, I am a 61 year old paraplegic and have recently been diagnosed with IBS 10 days ago and am in pain all the time, is there anything I can do to improve my bowel program ?
  • Posted Fri 03 Feb 2017 09:15 AM EST
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