KGN

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KGN
It has been a long, long time since I've written here. My brother, husband, and I bought a new home that was specifically designed to be handicapped accessible. We are loving our new home! I worry about my brother, because he is now taking very strong pain medicine, and he has begun to have night terrors, where he wakes up screaming at the top of his lungs that he is in a dungeon, tied down and can't move and is being tortured. I run to him through the house, yelling that it's ok, and everything's all right, and then, I turn on the lights, and he sees that he's not tied down but then he looks over and sees his wheelchair and all of a sudden the reality of his quadriplegia hits him and he bursts into huge tears, and I cry with him. Then, he falls back to sleep, and when he reawakens, he doesn't remember anything about the terror in the night. He even argues with me when I tell him about the episodes. I feel so sad for him, and I grieve with him and for him, and for the life he's lost. Then, I try to remind him of the life that he's now gained, the love he now has, the family and friends who love him, and his teenagers who love him so much. I'm glad that he doesn't remember these outbursts, but they haunt me. I've had to double up on my regular anti-anxiety and antidepressants, plus add some new ones. His loss and his night terrors break my heart, but he takes Ambien, so he never remembers these episodes. He seems embarrassed when I try to get him to talk about them. What can I do? I am so depressed and sad for him? He doesn't want counseling, and my psychiatrist just quit her practice, so I am stuck with my GP ordering my bipolar and anxiety meds. What can I do, but pray for him?
  • Posted Tue 16 Dec 2014 09:39 PM EST
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KGN
I've been so busy with my brother that I haven't had time for much else. Every time I think that spring is finally here, it freezes again! My fibromyalgia/arthritis/nerve/disc trouble has had me hurting so badly that I haven't even felt like getting dressed today, and it's after 5 pm. Thank God my husband helps with everything so that I can put all of my energy into caring for my brother. I feel so tired and in so much pain today. Does anyone understand?
  • Posted Mon 24 Mar 2014 06:06 PM EDT
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KGN
We finally made it to Tirr to visit my brother and take him home on Tuesday! It was so good to see him! He's lost weight and looks great, except his right foot is still so swollen that he cannot wear a shoe. I hope that they figure out what the problem is fast, bc they aren't sure it is gout, but
  • Posted Sun 02 Mar 2014 07:35 PM EST
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KGN
Well, I will get to see my brother again in 4 1/2 days! :-D I'm very excited about his homecoming from Tirr Rehab, but I am very worried about his gout that he has just recently developed while staying in the hospital. I don't know what to do to help the gout after he comes home! And why does Med
  • Posted Fri 28 Feb 2014 11:26 AM EST
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KGN
My brother's finally an inpatient at Tirr! We made it! :-D my husband and I are so happy and excited for him! I miss my brother so much, but I am glad he's getting the PT/OT he needs, and especially the equipment he needs. I love him so much! I miss him like crazy, but I'm soo happy for him! He has become so important to me. I used to be really shy but I've learned to be a bold woman when standing up for him. My husband and I sure miss him!
  • Posted Sun 02 Feb 2014 07:10 PM EST
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KGN
We finally got my brother's baclofen pump refilled! Thank the Lord! It seems like everything's breaking down at my house, just since this sleeting and ice started. Yesterday, I turned on the water in the kitchen, and when I swiveled the faucet to the other sink, the entire faucet spigot broke off in my hand! And now, our refrigerator is not cooling, and our washing machine's timer is broken, so that when it fills to wash, it keeps on filling and floods the floor! Tirr is in the future! :-D
  • Posted Wed 29 Jan 2014 09:05 AM EST
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KGN
I'm working on taking care of my brother, but I've got a terrible cold and so does my husband! I went to the Dr yesterday but since it's a virus, he just gave me a steroid shot, since my voice sounded like Wolfman Jack's, and some cough syrup, but I am really sick. My husband's almost got his cold whipped, but I just started getting sick Sunday evening after church. Everyone there is sick, too!
  • Posted Tue 21 Jan 2014 10:26 AM EST
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KGN
We finally found a Dr to fill my brother's baclofen pump! Yay!! It will be in little over a week! Thank you, God! After he gets his pump filled, then he'll be eligible to be an inpatient at one of the finest rehab hospitals in the country! We are soo excited for him!! :-)
  • Posted Sat 18 Jan 2014 08:32 AM EST
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KGN
My brother finally got Medicare, but is having a difficult time getting a doctor to refill his Baclofen pump now that he lives in Southeast Louisiana. My pain management doctor told me back in August of last year that he'd refill his pump, but then yesterday, his office called, and they've decided to pass on refilling his pump! All because he's a spinal cord patient, they said, and that he needed a neurology specialist to handle it! But we have less than 1 month until his pump runs dry!!
  • Posted Thu 16 Jan 2014 07:39 AM EST
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