Dan Gottlieb


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Hello, Can we be friends? If you don't mind
I'm Mrs Sherri from United States I
came across your contact on www.spinalcordinjury-paralysis.org and decided
to communicate with you because I intend to
 visit your country soon. To know more about
 me send your private email address sherrigallagher017@gmail.com
 for  introduction.
  • Posted Mon 05 Mar 2018 06:44 AM EST
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Dr. Dan,
I just wanted to thank you for your coments on Chronic Pain. I have been suffering with it for thirty years. I fell off a second story and landed onmy back. I have had numerous spinal fusioins along with medical mishaps, such as severing my main and came close to dieing. I developed blood clots in my lungs and legs because of it. Im on blood thinners because of it. two years ago became paralyzed because I begged my Doctors to do an MRI that things were diffrent with my pain and walking. They just pigion hole you and call it chronic pain we cant fix you and that is that.
I finally yelled loud enough they did the MRI rushed me to the hospital thught I needed another fusion after the surgey I couldnt walk. Theydid another test and found a Tumor wrapped around my spinal cord. They went in and removed it and it left me paralyzed. Had they listned to be forthe few years prior, it might have made a diffrence. I also had a fusion I didnt need.
Chronic Pain is awiful.It will consume youif you let it. You must focus on other things,,
  • Posted Tue 07 Mar 2017 02:19 PM EST
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my name is miss diana.can we be friends i can even send you my photos if only you can contact me at[dianamohamde @h otmail.com] i don't have much time to chat now
  • Posted Mon 08 Feb 2016 05:00 PM EST
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Today, we live with the body we have. We may strive to get better, if possible, in many ways - via exercise, diet, medical procedures, meditation etc. The secret is to deal with the body but not let it be the determining factor. After an auto accident I was paralyzed from the chest down with a C5/C6 injury. I was fortunate enough to recover much more than ever expected. During the recovery, I had a difficult time knowing who I was as my body kept changing. But I tried to make every day count. I have written about much of this in a book available on Amazon - Walk, Don't Run by Pamela Henline. The last chapter is titled "Living in my Body" so it is a very relevant concern to all of us who have some sort of impairment!
  • Posted Tue 07 Apr 2015 05:46 PM EDT
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Dr. Dan,
I recently saw you on the Reeve site. My problem is that I was diagnosed with transverse myelitis in 1989. They did surgery which did damage to my mylon sheath which also damaged my spinal cord. I'm not sure what really happened to me but I am in a wheelchair because I can not walk, my right hand is in a fist and the worst thing is the constant, unbearable pain. I describe it as feeling like my entire body from my chest down feels like it is "asleep." Constant pins and needles and unbearable pain. I am on Neurontin, baclofen, tramadol, roxicodone, and dilaudid. They control the pain slightly (I can't live without them) but I still describe my pain as a 99 on a 1 to 10 scale! I have gone to pain management but all they did was add the narcotics to my regemin. Still no help for the pain. They got me addicted and charge me for a visit to renew my prescriptions. They turned me into a junie with them as the pusher. Still nothing helps stop the pain. All I do is sleep 18+ Hours per day. They put me on Focalin which is a stimulant but does nothing really for the pain and just makes me jittery. I still sleep too much.
Because I am on medicare I can't see anyoe but the worst doctors and live a life of pain and sleep ad feel like I'm sleeping my like away. I'm on social security ( I lost my job and and my insurance because of the pain). I see the worst specialistsr th who are on my plan. I feel as if my life is being wasted by pain. I have a daughter in college so any moneyI have (none) goes to that. I lost my house because I could no longer afford it. Everything comes before spending money on pain specialists. I ybuy my wheelchairs on eBay and sell some of my meds to help pay for that. Which I know is wrong and illegal but I feel as if I don't have any uchoice! What can I do? I live in NJ right near Kessler and Reeve society but still I have no cure to help the pain. What can I do for help help!! The pain just WONT STOPicy!! All I do is sleep and take my medications. I feel like I am missing out on life. I hate waking up in the morning because I have pain all of the time and no one to help control it and no one to help my pain and no one to help me deal with it and only access to bad doctors! My life is out of control and I need help and can't afford it. I need help and don't know where to turn or what what to do. How do I get help from the Medicare system? Help!!
New Jersey (where Eric Legrand is not the only person in a chair)
  • Posted Tue 26 Aug 2014 07:17 PM EDT
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this situation sounds just awful. How long have you been living like this? Is it worse than it has been? If so, do you know why? I am asking all these questions because I want to get a sense of where we are in this process. If you have been suffering like this but stable, then we have to talk about tools for coping and living life you have even though I am sure you sometimes don't want to.
I would love to move our exchange to the "healing the heart and mind" discussion has I think others could benefit. But if you would rather not, I certainly understand.
Either way, mind giving me this information? Thanks Dan
  • Posted Wed 27 Aug 2014 03:58 PM EDT
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Ihave a website and code that will allow you to download the book for free. Please let me know if you would like that information. Thanks, Jessica Pabst
  • Posted Mon 18 Aug 2014 12:27 PM EDT
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Hello how are you today?

Good day, am miss Hazina Samuel,and am looking for friendship with you,
Please contact me at [ hazina.s@hotmail.com ]
Am going to send you my pictures and also tell you more about me

Thanks Miss Hazina.

  • Posted Tue 05 Aug 2014 02:16 PM EDT
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Hi. I read the discussions here and I have decided to have a say. I appreciate all the uplifting discussion on being active and athletic, but I am not and never was very physically adapt. I always wanted to be but hard as I tired I am just not athletic. So I keep reading all the stories of people that snowboard, ski and marathon after finding themselves in a wheelchair. I am SO proud for you, but I can't do that. I was reasonably active and fit, and find myself stuck in a chair. I can't run, ski or achieve an spectacular event now as I couldn't before my accident. I am an average person, trying to lose weight, stay healthy and most important become a happy active giving part of society in a wheelchair. I have lost my job and my home and have to live on the disability. I can't invest in special equipment. I can't even afford to modify a car to drive myself. I feel stifled and dependant. I love that some people can peruse special events and talents, but there has to be many people like me that can't even get physical therapy, never mind special activates. Please do not think I begrudge those that have wonderful talents, or abilities. But I don't have finance or abilities. I just want to hear from average folks that are broke and lonely and want to resume some semblance to the caring, giving life we tried to live prior to our accidents. Terrie
  • Posted Wed 30 Jul 2014 10:53 PM EDT
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Terrie, I'm just now coming across this, sorry it's six months later and you haven't had a response. I understand what you're saying about not being like the people that the CRPF seems to write about on their FB page, on their website and in their posts. Most people with paralysis are like you, just regular people who are trying to get by with little financial support, no coverage for all the aggressive therapies that is recommended, and none of the really cool equipment that really makes life easier. My mom is a quad of 12 years, and I have several friends who are also, and none of them have all the bells and whistles. One is a guy in his early 30s stuck in a skilled nursing facility with old dementia people because Medicaid won't pay for him to be at home; another is a young lady in her early 20s who for the three years since her injury has been living between her divorced parents, but they have just told her that they don't feel they can care for her anymore so she needs to look for another place to go; and another young man who is living with his sister and her husband who have been so generous in making room in their lives for him, but he lost his wife, his kids, his home, his job, everything, and is in constant pain, dependent on his sister for everything. The change that paralysis requires is huge, and for most people the financial burden is so great that most can't afford the equipment, the therapy, the care needed to have the kind of life that's written about in the posts shown on FB. You are right that people just want to get back to a life that makes them feel they are valuable as part of something again. If you'd like to email chat with some of these people send me a private message and I'll share your email address with them. The CRPF has a mentor program too, so you might want to check with them to see if there's someone in your area that you can talk with who can point you to any services, therapy or equipment that you can access for free. There are state medical exchanges that often have free equipment available for free or really low cost, and some gyms do offer sliding scale fees you could ask about. Being at a gym isn't to be athletic, but to keep your upper body strength, or in your case the strength on your most functional side at it's optimum. That's to your advantage for getting around and reducing the chance of injury to the muscles on that side. I do hope you are finding friends that understand and listen and will encourage you to do your best. Deborah
  • Posted Sat 27 Dec 2014 10:42 PM EST
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I ran across this on a friend's facebook page. It's not quite my style of coping, but you may be interested. I'm just offering so you can check it out. No obligation at all. Deborah
  • Posted Tue 29 Jul 2014 05:41 AM EDT
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that's really interesting stuff. Thank you for sending along

  • Posted Tue 29 Jul 2014 12:46 PM EDT
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I would like to speak to you about the book I have written to help people with "disabilities." It has now been published and is available on amazon, barnes&noble and trafford.com.

I am trying to get the word out about it and help as many people as I can. I have many tips I have learned over the last 14 years since my accident, positive messages, jokes, importance of staying close to those around you and those you have lost, and the importance of achieving your dreams and staying positive no matter the circumstances.

Please get back to me when you can. Thanks!
  • Posted Wed 25 Jun 2014 01:17 PM EDT
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hi Jessica. I will try to give this book a read ASAP! Thanks.
  • Posted Fri 27 Jun 2014 03:10 PM EDT
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And I am Jessica Pabst
  • Posted Thu 26 Jun 2014 12:51 PM EDT
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Thank you. My book Is "Life From a Sitting-Down Perspective" and the ebook available on Barnes&Noble and Trafford.com is only $5.
  • Posted Thu 26 Jun 2014 12:50 PM EDT
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hi Jesse. If you tell me the name of your book, I will order a copy online and perhaps I can make better recommendations then. But in general, there are several things you can do. Of course there is the social media and in Facebook,, you can pay extra money for a few days to get a "boost" and people who read your page and you could even have it targeted. You could start a webpage with a discussion.. Have a virtual book club.. Of course, you could also hire a publicist, but that can be pretty pricey. You can give talks to schools, parent groups, religious organizations, rehab facilities (for both patients and staff)
anyway, hope that is a good place for you to start. Good luck!
  • Posted Wed 25 Jun 2014 04:16 PM EDT
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