
I don't know about you but walking is not at the top of my list of actions I'd like to have back from BTCASCI (before the crash and spinal cord injury). I bring up this subject due to a conversation I had with a colleague about a SCI research symposium he attended. This conference was full of scientist expounding on the strides made in the search to get us SCI folks walking. When he spoke of the progress, I took umbrage and got irritated with the idea that they, “the researchers” were making the assumption that walking was at the top of my, to do list, when the cure comes on down the pike.
I don’t remember a survey asking me what I wanted from the cure research. I believe that huge, exhaustive, and vast assumptions have been made that my number one wanting must be walking. It’s what the majority of humans do so I must want to walk, right? Or that my life is missing something because I don’t walk? Few can imagine how someone would not care if they walked? Well, I don’t care. And honestly, if the world would get on board with universal design much a do about walking would be a mute point and what really matters, prefect indoor plumbing, would be the focal point. Opps, I’m of f my point a bit.
I am so greedy; I have two wants from this cure, miles before I walk. My top two are, drum roll please, pee & poop (P&P), to feel it, fully, do it on command and do it without accoutrements. I want to take a seat on the throne, with complete control to go or slow or stop without sticking something somewhere. Yep, that’s right; I’m talking about P&P. Oh I heard that Groan, too gross for you. Well life is gross, so get over it. I know, I know too much information, let’s not talk about these bodily functions we all have. People living with SCI can’t talk enough about P&P and those living without don’t want to hear about, except maybe my grandparents. Maybe that’s it, walking is glamour while P&P is so mundane.
It’s not just me, that dreams of full throttle P&P. Most folks I know living with a SCI say their quality of life would vastly improve if they could tell, without a doubt that it’s time for it to come out. Our lives are scheduled around this act that so many give so little mindfulness to. The other day, I completed another spectacular ski when two of my SCI-ed friends I sit ski with were finishing also. Literally within three minutes the subject turned to a loose deuce and all its ramifications. We did NOT once in the twenty minutes of conversing speak about walking and how much we want it. Pretty much if two or more individuals with a SCI are in the room, the P&P subject is coming up, discussed in detail.
Involuntary. Now there’s a cute word that’s synonymous, within the club, with SCI that has me cringing when I hear it. It means I pissed or pooped myself, there you go I said it again. It’s a usual occurrence in the SCI community. My sister granted a wish I had to swing on a swing just after my release from the internment camp of rehabilitation. As we began to swing higher and higher we laughed harder and harder, know what happened next? Yep, I involuntarily peed all over her. We laughed cuz what else is there do, but really, yuck!
Even my dear family has scant notion of what it takes to eliminate waste products from my body. Of course the've seen the catheters and gloves I drag around. But that’s where the story ends. Lately I have been fantasizing about being a vampire from the Twilight series of books, for several reasons, but among their attribute I covet, yes I said attributes, is they don’t P&P. Heck, I’m well on my way to vampire-ness already; my body is cold all the time.
And the stuff! Oh, please get me started on the land fills I must be filling with all my evacuation instruments. Traveling I fill a second suitcase full of catheters, gloves, pads, wipes, gels, etc, gosh TSA must think I’m a rolling mash unit. Most of my SCI friends have heard my plea for biodegradable materials and packaging for my P&P toys. This concept could make someone millions, are you listening research scientists? If the P&P accessory industry just went green, without the cure, oh, the good I could do for my home, planet earth. Walking does nothing to better my home, this planet, but giving me back my P&P now there’s a step in the right direction.
If you ask me, science guys and gals, I want to feel the urge to purge poop and pee. I want to control the urge and do it without touching it. Once that’s taken care of than I’ll talk the walk, if your ask’n. I’m just say’n.
Blessings to all, In Joy, Candace
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Copyright 2011 Candace Cable