Problems and Successes with Primary Care

Problems and Successes with Primary Care

Posted by Vishal on Sep 17, 2013 12:40 pm

Hello, my name is Vishal Patel and I work with the New England Regional Spinal Cord Injury Center (NERSCIC). We are looking to provide a program that is going to help individuals with spinal cord injury identify and solve problems they face when trying find and receive primary care. We would love to hear from people, what types of problems they've faced trying to access primary care, including insurance and equipment issues, trouble getting preventative screenings, doctors who don't know how to treat things unique to individuals with SCI etc.

• Did you have a hard time finding a primary care doctor who understood your needs?
• Do you have problems communicating your unique needs to your primary care doctor?
• Are there any issues that you have faced on account of your primary doctor not being properly informed about your injury?

• Have you had difficulty accessing preventive screening (e.g. Mammograms)?
• Have you had problems obtaining adaptive equipment?
We would also like to hear any success stories anyone has to offer in regards to finding and receiving primary care.

• Is there something you really love about your primary care provider?
• How have you overcome some barrier to accessing primary care?
• Did you have a really good experience with adaptive equipment?

Please feel free to post below on this thread or email me privately at vpatel@hfsc.org .

Also, feel free to visit at our website: http://www.bu.edu/nerscic/ for additional educational and research information.

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