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Spinal Cord Injury and Paralysis Forum
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I'm new. Do any of you experience a 'burning' sensation? Expand / Collapse
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Posted Friday, February 13, 2009


 

Group: Forum Members
Last Login: Wednesday, July 14, 2010
Posts: 5, Visits: 0
Dan Gottlieb:

Wonderful advice from the moderator, but I would just add one more thing. Your friend might be better off if he reached out to us and we could speak with him directly through this forum. It's not that we don't want to hear from you also. Anybody who cares for anybody with a spinal cord injury is greatly impacted by the trauma, so please stay connected. But I would like to hear from you about you and what all this means to you and I would like to hear from your friend about what he would like.


Think that's possible?



 


No I don't. This isn't his kind of 'thing'. No disrespect meant by any means.  He's young. He's too into his myspace, etc.   He's not my friend.. he's family. I live with him.  If you do have any ideas however...on how he should get started in life...feel free to pass thoughts this way.  He was just signing up to goto college before he got hurt, so his career path is not chosen.  He kinda has the attitude, well what can I do..  His use of hands are limited.  He can type though obviously lol.. even to open a water bottle he needs assistance, (or just uses his mouth. hehe 


 

Post #4393041
Top
Posted Tuesday, February 17, 2009


 

Group: Forum Members
Last Login: Thursday, September 02, 2010
Posts: 28, Visits: 1
If he can type, and use a computer, he should look into a career path that can be follwed that way. 

As far as him reaching out here.  Give him the links, and then let it be.  Who knows, some day he may decide to look. 
Post #4393050
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Posted Tuesday, August 24, 2010


 

Group: Forum Members
Last Login: Wednesday, November 03, 2010
Posts: 5, Visits: 7
I am three years into my injury. I am a T-10 complete. I have severe burning in my groin area and left side. I have good days and bad. I try to keep busy and not think about the pain. I only take a hydrocodone to take the edge off. I tried Neurotin and Lyrica but the body gets to used to these drugs. They also make you very foggy and your reaction time becomes slow. I work out and just try not to think about pain and focus on positive thoughts. I hope this helps. Good luck and God Bless.
Post #4410902
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Posted Monday, August 30, 2010


 

Group: Forum Members
Last Login: Saturday, October 16, 2010
Posts: 10, Visits: 19
When you say 60%, is that only with incomplete injuries, or both? In other words, if the spinal cord is completely severed, do those SCI patients also suffer the pain?

Lj
Post #4413086
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Posted Tuesday, August 31, 2010


 

Group: Forum Members
Last Login: Wednesday, November 03, 2010
Posts: 5, Visits: 7
LJ,
I am a complete injury with a severed cord at the T-10 level. I still experience burning pain in the groin area and occasionally on my butt. You would think no pain exists with a complete injury but it does. I have had it for over three years now.
Post #4413482
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Posted Thursday, September 30, 2010


 

Group: Forum Members
Last Login: Tuesday, October 12, 2010
Posts: 3, Visits: 10
Hello, I have a C-3,4 & T-3,4 (incomplete) break, for the last ten years I have had the same problems and acupuncture, massage, stretching, tens-units and positive thinking is the only way to get through this and that there is Life after SCI. From a Quad to a Para, I wont stop till I/we beat this and walk again. Good luck
Post #4425357
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Posted Wednesday, November 03, 2010


 

Group: Forum Members
Last Login: Wednesday, November 03, 2010
Posts: 5, Visits: 7
Unfortunately, many complete injuries have nerve pain. I have severe nerve pain below my level of injury. I am a T-10 complete and have nerve pain in my groin area. It amazes me how I have pain when there are no lower motor neurons working. I have tried many drugs but nothing really works. I have met many who have nerve pain. If you can, try to work through it and not take to many drugs. Your body will just get used to them and you will need something stronger. Your bowel can create nerve problems too. Make sure you try to go on a regular basis. Also have your surgeon check your back out if you have a lot of metal in you. I have met people who had screws pinching nerves too. I wish you well.
Post #4438243
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