InstantForum.NET v4.1.4Spinal Cord Injury and Paralysis Forumhttp://www.spinalcordinjury-paralysis.org/forums/Information@ChristopherReeve.orgSun, 05 Feb 2012 01:31:51 GMT20http://www.spinalcordinjury-paralysis.org/forums/Topic4429467-6632-1.aspxMy niece was in a serious accident on 09/7/2010. She fractured C-2, 3, and 5, had broken ribs, broken wrist, lacerated kidney, brain swelling, severed trachea, and bruised lungs. She had two surgeries to fuse the fractures to her spine and surgery to repair her trachea. Now, several weeks later, she has gone to a rehab hospital. She was examined by a renowned spinal cord doctor yesterday. He said he was excited about what he saw. She is able to move her arms and legs, has sphincter control, but is not yet able to move her fingers, toes, etc. Initially the doctors said she would be a quadriplegic on a trachea the rest of her life. That has not proved to be the case at all. She has had remarkable progress. The doctors say she is one for the medical journals because they have no explanation for some of the good things that have happened. She is using a “Passy Muir” valve and has worked up the energy to talk for several hours each day. He brain is still slightly swollen as well as her spinal cord. She will have the flap taken from her skull, removed to release pressure, replaced later this month. I really feel that, given time, she will regain her ability to move her fingers and toes and eventually be able to walk again. It has only been five weeks and it amazes me how far she has come. I am sharing this story because there is hope and the power of prayer does work. I guess I am asking for assurance she will recover. I suppose it is possible she will not regain the use of her fingers and toes but I just don’t see that with what has occurred in such a short time already. I am asking those of you who know much more than I do if it is a realistic expectation she will recover. I know it may not be 100% but I feel her chances are very good. Thank you.Mon, 11 Oct 2010 13:00:49 GMTMarkhttp://www.spinalcordinjury-paralysis.org/forums/Topic4429916-6632-1.aspxI thought that instead of TV talk show approach to the use of human embryonic stem cells -- two people from extreme side screaming at each other -- I would take a shot at starting a string where people can offer considerate thoughts. This in light of this week's story: [url=http://www.spinalcordinjury-paralysis.org/dailydose/2010/10/12/first-patient-treated-in-stem-cell]First patient treated in stem cell study[/url].If you want some [url=http://www.christopherreeve.org/site/c.ddJFKRNoFiG/b.4435071/k.34D3/Stem_Cells.htm]more information on stem cells[/url] in general we have it on our website.So, let's start with this bit of news. Now that the trial has started, what is your take?Tue, 12 Oct 2010 12:06:59 GMTGerthrohttp://www.spinalcordinjury-paralysis.org/forums/Topic4422299-6632-1.aspxDo you want to improve your mood? Or need help starting an exercise program?The inMotion Exercise Study is seeking New Participants!The University of Washington is looking for adults 45 or more years of age with multiple sclerosis or spinal cord injury to take part in a research study. We are conducting a study to test the effect of exercise on mood. Your participation in this research would mean taking part in motivational interviews or an educational session about exercise and completing surveys. The surveys ask about your experiences with pain, fatigue, and other symptoms in addition to some questions about your participation in daily activities, mood, and general outlook. The study will be done over six months and you will be compensated up to $120.Participation is entirely by telephone and is open to anyone in the United States.Please contact us to see if this study is a good fit for you:1-866-928-2114[email]agerrtc@uw.edu[/email]Thanks for your interest in our study. We look forward to hearing from you!Melissa Phares, MSWResearch CounselorAging & MS Rehabilitation Research & Training CenterUniversity of WashingtonSeattle, WATue, 21 Sep 2010 19:20:49 GMTUW Rehabhttp://www.spinalcordinjury-paralysis.org/forums/Topic4421917-6632-1.aspxOlfactory Mucosal Autografts for Chronic Traumatic Spinal Cord Injury is where they take nerves from your nose and transplant them into the spinal column at the point of cord injury in hope of nerve regeneration. It's experimental and not done in the US. I know of two people that had it done with some success and wonder if there are other stories? One surgeon is in Bejing China and the other in Portugal. I'm sure there are others, but these are the only two I have heard of.I appreciate your help with all my inquiries.DeniseMon, 20 Sep 2010 23:28:20 GMTDeniseCanhttp://www.spinalcordinjury-paralysis.org/forums/Topic4414076-6632-1.aspxOK, not sure if this is the place for this post but we'll see. I was injured over 20yrs. ago. I have a few vertabrae fused together and all was well for the first 10-15 yrs. Then I started getting back pain. More than normal. This went on for a few years and I just learned too live with it. Then I got a sweaty left foot. Again I lived with it for about a year. I then got a sweaty left leg,foot, etc... This was for about 3 months and then it was my whole lower body from the waist down. My doctors didn't want too send me for an mri or cat scan for over 2yrs and when they finally did, they found my spine had some sort of ulser on it. He said it was like I had a small portion the didn't heal when the fusion took place back in 1990. So now for some reason the sweats have stopped. But, I have this bone getting piled on cause the body is trying too heal itself and in doing so has pinched the nerves going down there.So, the problem now is that I have lost all spasms and muscle. I'm a stick man more than i should be. Which is causing bladder problems (leaky) and seems too be getting worse. I'm waiting for the doc too get back too me but I'm thinking they are going too tell me there's nothing they can do. Anyone have a problem like this? Heard of someone that has? I'm also going too see another guy about accupuncture too see if there's any help there. But again not sure on that one.Wed, 01 Sep 2010 13:53:22 GMTBen s7k 3j7