﻿<?xml version='1.0' encoding='UTF-8'?><rss version="2.0" xmlns:dc="http://purl.org/dc/elements/1.1/"><channel><title>Spinal Cord Injury and Paralysis Forum / Living Life / Advocacy </title><generator>InstantForum.NET v4.1.4</generator><description>Spinal Cord Injury and Paralysis Forum</description><link>http://www.spinalcordinjury-paralysis.org/forums/</link><webMaster>Information@ChristopherReeve.org</webMaster><lastBuildDate>Sun, 05 Feb 2012 01:34:54 GMT</lastBuildDate><ttl>20</ttl><item><title>Extended warranties and maintenance agreements for power chairs</title><link>http://www.spinalcordinjury-paralysis.org/forums/Topic4427285-6625-1.aspx</link><description>I am a high-level quad, (C3/C4) so I see my power chair as my personal ticket to the freedom of mobility.  Yet in the 2 years that I've had it, I've already had $2000 in repairs due to failed motors and computerized components.  The chair had a one-year warranty, and of course these failures occurred shortly after that year was up.Why is it you can't buy a simple electronic device from Best Buy without being offered an extended warranty, but you can buy a $30,000 plus power chair without any consideration for same?  I've written the manufacturer of my chair (a major market share provider of durable medical equipment) and they tell me that these are good ideas and that they will "look into it."  Time has passed of course, and they have not responded.Does this matter to anyone else out there?  What if we were to enlist a groundswell letterwriting/e-mail/social networking campaign with the manufacturers of these devices?  Do you think it would make a difference?</description><pubDate>Tue, 05 Oct 2010 14:15:41 GMT</pubDate><dc:creator>JoeG</dc:creator></item><item><title>Labels-Disabled, Handicapp, Paralyzed</title><link>http://www.spinalcordinjury-paralysis.org/forums/Topic4411921-6625-1.aspx</link><description>Hi. I was curious about some things. My husband in a C-6/C-7 quad, but I don't ever look at him as someone who is disabled or in a wheelchair...he is just my husband. My husband says he doesn't identify with the term disabled or handicapp, he considers himself paralyzed-his actual medical condition. I think the term disabled is a matter of subjectivity to those who are "considered" disabled and those who are categorizing them. I am going to call it "subjective mindset". If you meet someone who you would not consider disabled and then later come to find out they are part deaf and require hearing aids...does that make them automatically disabled?Here is my question...do you consider your self disabled or handicapp or just paralyzed? If you are paralyzed, do you identify with the term "disabled?"</description><pubDate>Fri, 27 Aug 2010 09:38:21 GMT</pubDate><dc:creator>Tiffany</dc:creator></item><item><title>The ADA at 20: An apppreciation and a challenge</title><link>http://www.spinalcordinjury-paralysis.org/forums/Topic4398859-6625-1.aspx</link><description>The Foundation's President and CEO, Peter Wilderotter (pictured), wrote a piece about the ADA that is appearing on the Huffington Post today:Christopher Reeve said it best:"Our nation cannot tolerate discrimination of any kind. That's why the Americans with Disabilities Act must be honored everywhere."President George H.W. Bush put it this way: "Let the shameful wall of exclusion finally come tumbling down." He said these words exactly twenty years ago, on July 26, 1990, at the White House ceremony where he signed the ADA into law.This week's 20th anniversary of the Americans With Disabilities Act is a legitimate cause for celebration. A large chunk of that shameful wall has indeed come tumbling down. And the ADA's vision is widely honored.Read More: [url]http://www.huffingtonpost.com/peter-wilderotter/the-ada-at-20-an-apprecia_b_659135.html[/url]</description><pubDate>Mon, 26 Jul 2010 16:39:17 GMT</pubDate><dc:creator>PRC_Jennifer</dc:creator></item></channel></rss>
