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  <channel>
    <title>Tell Us About Yourself</title>
    <link>http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself</link>
    <description><![CDATA[Introduce yourself to the members of our community.]]></description>
    <language>en-us</language>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/05/18/glenn-campbell----27-your-post-sci</guid>
      <title>Glenn Campbell -- 27 your post SCI</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/05/18/glenn-campbell----27-your-post-sci</link>
      <description><![CDATA[In 1985, at the age of 16, I collided with an automobile while riding my bicycle.&nbsp; My spine was severed at C5/C6.&nbsp; I recently published a book I Wouldn&#39;t Change a Thing.&nbsp; It was written with the hope that others can learn from my lessons and experiences and see that there is life after a spinal cord injury.<br />
<br />
www.Amazon.com<br />
www.barnesandnoble.com<br />
<br />
A QUADRIPLEGIC SHARES HIS TWENTY YEAR JOURNEY<br />
<br />
I Wouldn&#39;t Change a Thing<br />
<br />
Legwork Team Publishing<br />
Copyright &copy; 2012 Glenn F. Campbell<br />
First Edition 01/01/2012<br />
ISBN: 978-1-935905-36-3 (sc)<br />
ISBN: 978-1-935905-37-0 (hc)<br />
Also available in E-BOOK<br />
Coram, New York, May 18, 2012 -- Raised in Port Jefferson, New York, Glenn Campbell was sixteen when a near fatal bicycle accident left him a quadriplegic -- paralyzed from the neck down.&nbsp; Despite this tragic event, Glenn stared into the face of adversity only to make a life he could call his own.<br />
<br />
I Wouldn&#39;t Change a Thing is an engaging story about how a teenager overcomes a disability to live an ordinary life.&nbsp; After a long rehabilitation and recovery, Glenn strived to maintain a positive attitude.&nbsp; While there have been many moments that his faith and determination had been tested, he candidly reveals how he overcame his challenges.&nbsp; With the support of loving family, friends and an ever-growing faith, Glenn remained determined to build a life that he could call his own.&nbsp; In the end, you&#39;ll see how he accepted this life-changing event by cherishing the life he now has.&nbsp; In writing this book, Glenn hopes that it can offer others the same hope and guidance so that they too, can overcome adversity.<br />
<br />
During this long journey, Glenn earned a law degree, married his best friend, and learned to live one day at a time.&nbsp; Glenn is an attorney and the Co-Executive Director of the Suffolk Independent Living Organization, an advocacy organization for individuals with disabilities.&nbsp; He lives on Long Island with his wife MaryEllen.<br />
<br />
&ldquo;Glenn has a history of faith, courage, ambition and love of life. His remarkable and inspirational story is an amazing representation of what he has accomplished against all odds. Family and friends formed a partnership to help him succeed and I am sure what he has accomplished is due, in part, to the love and support of everyone.&quot; &mdash; Barbara J. Mehrman, Assistant Dean Emeritus Touro Law School<br />
<br />
For more information about I Wouldn&#39;t Change a Thing, or how to purchase this book, please visit www.glennfcampbell.com, www.amazon.com or www.legworkteampublishing.com. &nbsp;]]></description>
      <pubDate>Fri, 18 May 2012 04:40:00 GMT</pubDate>
      <dc:creator>Glenn</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/05/17/clinical-trail-at-stanford</guid>
      <title>Clinical Trail at Stanford</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/05/17/clinical-trail-at-stanford</link>
      <description><![CDATA[<br />
<br />
<div style="text-align: center; ">
	<b>Quadriplegic Participants Needed For Research Study</b></div>
<br />
Patients who are quadriplegic from spinal cord injury, brainstem stroke, muscular dystrophy, or motor neuron disease such as amyotrophic lateral sclerosis (ALS) and have no or limited use of their hands are needed for an FDA regulated research study to evaluate a new technology which may allow an individual with quadriplegia to control a computer cursor by thought. This study is invasive and requires surgery. You must live within 2 hours of Stanford, California to participate. The study requires a commitment of 13 months.&nbsp; This study is being conducted by Dr. Jaimie Henderson at Stanford University.<br />
<br />
If you would like to learn more about this study please contact Dr. Jaimie Henderson at (650) 723-5574. For general information about participant rights, contact 1-866-680-2906.<br />
<br />
<a href="http://www.stanford.edu/group/nptl/cgi-bin/site/node/5">http://www.stanford.edu/group/nptl/cgi-bin/site/node/5</a><br />
<br />
]]></description>
      <pubDate>Thu, 17 May 2012 17:40:34 GMT</pubDate>
      <dc:creator>ChristineNPTL</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/05/16/me</guid>
      <title>me</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/05/16/me</link>
      <description><![CDATA[im brian a 47 yr ol guy from cleveland. i was paralyzed july 09 when i wrecked my harley and broke my back. i may be a para but im still buying a new harley in august and putting on a sidecar so i can stay upright and be back doing what i love. well theres a whole lot more to the story but i type with 1 finger lol.]]></description>
      <pubDate>Wed, 16 May 2012 22:10:07 GMT</pubDate>
      <dc:creator>brian101064</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/05/13/mothers-day</guid>
      <title>MOTHERS DAY</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/05/13/mothers-day</link>
      <description><![CDATA[<span style="font-size: 12px;">JUST WANT 2 WISH ALL THE MOTHERS A &#39;&#39; HAPPY MOTHERS DAY &#39;&#39;</span>]]></description>
      <pubDate>Sun, 13 May 2012 22:13:53 GMT</pubDate>
      <dc:creator>ed</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/05/13/in-a-split-second</guid>
      <title>In a Split Second</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/05/13/in-a-split-second</link>
      <description><![CDATA[Hello my name is Brian Cross and I wanted to tell you the story about how my life went from tragedy to triumph in a split second. Let me start by telling you a little bit about my life prior to the day that my neck was broken on June 29,1994. I was a heavy drinker,constantly drinking and driving while also going to rock 'n roll shows. I also was getting tattooed on a regular basis from anywhere between once or twice a week. I also was traveling all across the United States to tattoo conventions. I also in May of 1994 went to Frankfurt,Germany for a tattoo convention for four days and then went up to Holland for 10 days. I surprisingly enough still can remember everything I did after all the alcohol and marijuana I consumed during the trip. I always told myself that I would never get tattooed anywhere that a long sleeve shirt could not cover,because I did not want to be judged by anyone when I went into somewhere such as a business, church or other social event. Then I met this tattoo artist from California while at the tattoo convention in Frankfurt,Germany and of course I got the tattoo that I wanted on the back of my neck. Of course, as karma would have it as I said I would never get tattooed above my shirt collar I got a tattoo on my neck and what happened, the following month while I was at a rock concert I had my neck broken. So, there went the perfect tattoo I had on the back of my neck, because the surgeon had to cut my neck to fuse the bones in my neck to make them more stable so I didn't have that perfect tattoo that I wanted in Germany anymore. While I was at the rock concert I was slamdancing and jumping all around then ended on top of the crowd,they pushed me forward and then four security guards pulled me off the crowd by my shirt causing me to fall on the ground. Then they proceeded to push me out the doors and pushed me down onto the ground then asked me,"If I had a problem".  I of course said,"No". Then they said,"Well you do now",then they proceeded to take me by my arms,put them behind my back,then picked me up in the air and slammed me head first on the ground which caused my neck to break in two places. They then continued to rough me up,then picked me up by my arms and legs,then carried me what would have seemed like the length of a football field with my head bouncing all around causing permanent damage to my spinal cord rendering me paralyzed from the neck down. Then they dropped me face down in a mud puddle outside the gates. Then they said,"Now get up and walk",then they proceeded to walk back into the venue leaving me by self lying there next to death. Then Anthony,my tattoo artists brother in law,crouched down just inside the gates,because the guards told him if he went outside the gates he would not be able to go back into the concert. Then Anthony asked me,"Are you okay"?  I replied,"No,they broke my neck,they broke my neck,please get  me help". Then the next thing I knew the paramedics surrounded me,proceeded to put me on a backboard,stabilized my neck and put me in the ambulance. I kept saying,"Call my mom,call my mom",then gave them my phone number. Then the next thing I knew I woke up in shock trauma.]]></description>
      <pubDate>Sun, 13 May 2012 15:13:24 GMT</pubDate>
      <dc:creator>Brian32746-2606</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/05/12/professional-water-skier-becomes-professional-pati</guid>
      <title>professional water skier becomes professional patient</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/05/12/professional-water-skier-becomes-professional-pati</link>
      <description><![CDATA[I had a life altering event in 1988 while I was working at ABC Marine World/Africa U.S.A as a professional water skier. I had the world by the tail.&nbsp; I was also going to college full time sinse you c annot be a professional water skier as you get older.&nbsp; My spine was damaged and I spent months in tracttion in Peninsula Hospital, they thought that was the the thing to do at that time. What it left me with was NO muscles.&nbsp; I had to re-learn to walk. I had to give up on the marriage proposal I had, I knew he could never lifve with a wife who had physical limitations. that was probably the hardest thing I had to do..but I still think it was the wise-est. He was not a strong person since he had never had to face big problems. He was gifted from the accident of birth and always thought of himself as being a little bit higher than us all. Was he?? today I know he wasn&#39;t. He could not live through what we live through. I feel so blessed that I was given the gift of understanding and cmpassion. I cannot think of a a more wonderfull gift anyone can be given. Did I Love him?, Yes I still do. But I still do not believe he is strong enough. He could not have been&nbsp; a strength to me. He would have only let me down with a multitude of affairs. Which would have taken a little bit of me away with each affair. I loved him enough to let him go. He took the easy way out, we are not given than option.]]></description>
      <pubDate>Sat, 12 May 2012 17:44:00 GMT</pubDate>
      <dc:creator>Arlene</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/05/01/help-me-help-my-mom-please</guid>
      <title>Help me help my mom, please</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/05/01/help-me-help-my-mom-please</link>
      <description><![CDATA[Hello,<br />
My name is Terri and 3.5&nbsp; mos ago, my 70 yr old mom, Glo suffered incomplete spinal cord injury.&nbsp; She is currently in a power wheel chair and is considered &quot;full assist&quot;, needing help daily with transferring to a bed from a wheelchair and vice versa,&nbsp; bathroom tasks and showering.&nbsp; She can eat on her own and do some tasks with her hands, but a little limited. She received 60 days in a spinal cord rehab center and was then discharged to a skilled nursing home. She will be getting discharged from the&nbsp; skilled nursing facility in two weeks, even though we thought she would have 60 more days at this facility.&nbsp; Apparently, she is not making enough progress to stay there under medicare&#39;s conditions, which is ironic b/c she was making some progress at the spinal cord rehab, but was told she had to go b/c of medicare.<br />
Now, we are at a cross roads.&nbsp; Glo doesn&#39;t want to go into a nursing home.&nbsp; She wants to continue PT/OT as an outpatient and have home health care come in daily, which is covered my medicare.&nbsp; Yet, the current facility she is at is advocating for a nursing home as a next step.&nbsp; Tell me please....am I unrealistic in thinking she can live with my dad in a one floor, handicap excessible rooms - type of apartment in an over 55 community with daily home care?&nbsp;&nbsp; I just want her to be able to adapt to her situation, not succumb to it.&nbsp; Advice Please!&nbsp; Thanks.-Terri &quot;Glo&#39;s Advocate&quot;]]></description>
      <pubDate>Tue, 01 May 2012 23:16:38 GMT</pubDate>
      <dc:creator>Terri</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/04/26/hinew-here-looking-for-friends</guid>
      <title>Hi,new here looking for friends</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/04/26/hinew-here-looking-for-friends</link>
      <description><![CDATA[<span style="font-size: 12px;"><span style="color: rgb(0, 0, 205);">Just joined the other day and looking for friends. Not sure how to navigate this page, i am a &quot;computer illiterate&quot;. Thanks.......</span></span>]]></description>
      <pubDate>Thu, 26 Apr 2012 20:27:12 GMT</pubDate>
      <dc:creator>ed</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/04/22/spinal-cord-injury</guid>
      <title>Spinal cord injury</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/04/22/spinal-cord-injury</link>
      <description><![CDATA[<span style="font-size: 14px;"><span style="color: rgb(255, 0, 0);">Hi i need help trying 2 get range of motion done daily. I am in a nursing home here in Boston. I am waiting 4 housing, my therapy here is done. Plz if anyone can tell me where 2 go 2 get this i will b 4ever greatful...</span></span>]]></description>
      <pubDate>Sun, 22 Apr 2012 22:41:45 GMT</pubDate>
      <dc:creator>ed</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/04/19/looking-for-help</guid>
      <title>Looking for help</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/04/19/looking-for-help</link>
      <description><![CDATA[Hi everyone. My name is caryl pronounced &quot;carol&quot; and I got into a car accident 6 months ago. I broke my neck at c2- c-3 and my back at t-12. I was not suppose to live but I am still here. I was also on my way to walking but the surgeon make a horrible mistake in surgery and now I am a parapalygic from the waist down. I feel so alone as I feel noone understands the shock of having something like this happen and being told I will never walk again. Maybe I just did not do enough rehab and I dont know if I started getting aggresive now with it, it could change things. I am also going through a divorce so I am very lonely and dont have the support or family I once had. I want to live life to the best of my ability but I have not been able to find people like me around where I live which I can&#39;t believe. I used to be a musician, singer and very outgoing person and I feel like I have lost all that. I have beautiful children who are counting on me and I just dont know what to do. I know I am not the only one here with this problem on this site which is why I am writing. I just was hoping for some advice maybe and a friend. Thanks.]]></description>
      <pubDate>Thu, 19 Apr 2012 17:44:55 GMT</pubDate>
      <dc:creator>caryl</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/04/18/another-satisfied-customer</guid>
      <title>another satisfied customer!</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/04/18/another-satisfied-customer</link>
      <description><![CDATA[<br />
<br />
hallo everyone --<br />
<br />
As my username suggests, I&#39;m fairly new to this ... &#39;adventure&#39; let&#39;s call it, and after the first 10 months am settling into my new situation.<br />
<br />
Mine was also motorsports-related, more of a racing incident than anything else. It happened last year in the Isle of Man and left me paraplegic (L1 complete), but I will be finished with my rehab (now as an outpatient) around the end of the month and am finally getting the hang of this whole handicapped thing.<br />
I&#39;m an American expat living in Holland and am very interested in learning about the differences between here and the States as far as getting around &amp; especially the bureaucratic hurdles one might encounter there. It&#39;s no cakewalk here, I can tell you but I&#39;d like to return someday &amp;&#39;forewarned is forearmed&#39;, as they say.<br />
<br />
So thanks for having me over and I&#39;m looking forward to being a member of your community!]]></description>
      <pubDate>Wed, 18 Apr 2012 20:41:47 GMT</pubDate>
      <dc:creator>new2thegame</dc:creator>
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      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/04/09/new-one-here</guid>
      <title>New one here!</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/04/09/new-one-here</link>
      <description><![CDATA[I was in an auto accident almost a year ago- I broke my back in 7 places and had a burst, I wore a turtle shell for 4 months and a neck brace for 3 months- If I wouldnt have gone to a friends bon fire I wouldnt be like this.. I was drugged with some sorta &quot;rape date&quot; and was driving hoome about 6PM.. with my faithful dog I rescued 18 years ago, she went every where with me, she wasnt hurt badly, thank God!<br />
I have lost all control of my middle section, cant feel my #### but I feel sensations of a pricking all the time, I cant feel my feet or wiggle my toes, i have to wear braces during the day. I have a supra pubic cath and no control over a bowl movement,&nbsp;I walk with a walker or sit oin my wheel chair when i am on the computer.<br />
IO tried to go outside with a different walker, didnt make it too far when my ankles give out I cant walk no more.<br />
I feel lost and sad all the time and so much stress in my home, I went to the ER due to a bad anxiety attack- so I am on many meds for that and I cant function at times.<br />
My days are long.. all I do is watch the clock for 11;00 pm so i can take my sleep pills and go to bed. I have no one to help me clean or even change my bed sheets.. sick!!<br />
Anyway- I just thought I would post a little bit about me.<br />
Yes I am the one looking for a golf cart so I can get around outside- I called every golf course in my area and nothing. They want over 1,000 for a dang used one and I am on SSI.<br />
I hope someone in here can relate to me!<br />
Thank-you ]]></description>
      <pubDate>Mon, 09 Apr 2012 19:00:30 GMT</pubDate>
      <dc:creator>brenda</dc:creator>
    </item>
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      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/04/06/accessibility-within-the-garden</guid>
      <title>Accessibility within the Garden</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/04/06/accessibility-within-the-garden</link>
      <description><![CDATA[<a href="http://www.finegardening.com/item/22461/reader-photos-brendas-garden-in-south-carolina">http://www.finegardening.com/item/22461/reader-photos-brendas-garden-in-south-carolina</a>]]></description>
      <pubDate>Fri, 06 Apr 2012 23:38:17 GMT</pubDate>
      <dc:creator>mudpuppyBBP</dc:creator>
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      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/04/06/accessible-gardening</guid>
      <title>Accessible Gardening!</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/04/06/accessible-gardening</link>
      <description><![CDATA[<a href="http://accesstothegarden.blogspot.com/">http://accesstothegarden.blogspot.com/</a>]]></description>
      <pubDate>Fri, 06 Apr 2012 23:37:15 GMT</pubDate>
      <dc:creator>mudpuppyBBP</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/03/30/wheelchair-van</guid>
      <title>Wheelchair Van</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/tell-us-about-yourself/2012/03/30/wheelchair-van</link>
      <description><![CDATA[My name is Carey I was a victim of a volient crime on March 17, 2011 that left me paralsis &nbsp;from the waiste down a T-12 conplete. i need help trying to get a van.]]></description>
      <pubDate>Fri, 30 Mar 2012 17:39:20 GMT</pubDate>
      <dc:creator>Carey</dc:creator>
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