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    Most Recent Posts
    Mark  says:
    I understand your frustration Joe. I am a recovering SCI and do not use a wheelchair. There is a common misconception that not being able to walk is w...

    Hee_Do says:
    Hello everyone, I am a graduate student at California State University Dominguez Hills in the MS Occupational Therapy program. I do not have an SCI t...

    Ahoo  says:
    hi Deni, i am woman and know than one woman like a man with more will and confident. Please don t let some people make your will less. please show...

    Ahoo  says:
    hi wow! great! I hope u ll be successful . I like hopeful person as you. Best wishes for you! Ahoo

    Joe  says:
    PattyPara, Thank you for your reply.  But your missing the point and your minimizing what someone like me goes through.  Because you are in...

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    8 Posts
    the rough terrain never ends
    By Madhuri   
    Hi My name is Madhuri and am from Bangalore in India. I am 39 years old and an sci since December, 2010. The accident happened during the time when all my family members were relaxing about me settling in life. Yes. I was divorced aftera long battle to make up my first marriage with my ex-husband and was married to my husband now, only in March, 2010. Few months into the marriage and we met with the accident. The night before the accident (it happened in the wee hours of 11th December and we boarded the bus the before night) though my intuition had been warning me that something right happen to me....which I have ruled out very conveniently as I was excited on going to this trophy with my husband. As destiny drives, I was the only person who got hit. To everyone's surprise even the driver escaped the injuries. After a struggle of one and half hours to locate my right leg which had 7 fractures from the knee to the toes, they could got me out of the bus and put me in the ambulance. My agony had actually started there as I was not seated on the stretcher properly and had fallen on the floor of the ambulance and got stuck in between the two stretchers. The ambulance guys who were not trained tried to drag me out holding my two legs but weren't successful. Hence, they drove to the hospital, me lying on the side on the floor of the ambulance. On reaching the hospital on the highway, the doctor did not even put me on the stretcher as he was pretty sure that I would not make it. However, on the insistence of my husbands friend who had just arrived, he had taken me into the iICU (thought that it was the kitchen of the hospital staff) and put me on ventilators. I don't remember that any kind of first aid had been done. After a couple of hours they had moved me to the city hospital which is 60kms away where the doctors and the staff acted immediately. All this while my husband was beside me crying and confused as no one in the bus offered any help to us in moving me out of the bus. Secondly, I was wide awake without losing my consciousness. Since then I was never unconscious which had beengineering a positive sign for my recovery. I am about to complete 2 years within a month from now and have gone through the rehabilitation phase....but still there are so many loose ends to be tied. I m still not able to lift my legs nor my body as I am obese weighing 86 kgs. Though I m able to shift into the wheelchair with the help of my husband and my caretaker....I m not able to do a push-up sitting in the chair. Howev3r, I am able to cook, clean the house and do many chores of the house and even get into the car (again with the support) and go out. But. I am lacking the basic mobility as I have developed pain in the tendon muscle of my right shoulder. I am planning to go to work from March, 2013 and I want a solution for my problem. Whenever my husband sees me struggling he gets depressed. My whole strength is my husband and I don't want him to feel low. He wants to take me out and I want to see him happy. Though I know I have bored all of you who read this, I request anyone to suggest me how to get out of my problem. Thank you
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    Jama  says:
    Hey Madhurri - Nobody on this site is bored from these stories - we ALL have them!! ;-)

    Having spent more than a year in a wheelchair in India (Delhi, Dharamsala) I know how hard it is to get around that country. No public toilets, no ramps for the trains, no lifts on the busses, stairs everywhere - it's awful! Fortunately there is a great effort in Parliment to address these issues and it is run by a friend of mine - Javed Abidi. Look at his website if you have a chance: http://www.ncpedp.org/

     If you are putting on lots of weight and having shoulder problems, that usually means you are not getting enough exercise (I'm guessing none at this point!) That's really dangerous for paraplegics. You need to start daily strolls around your neighborhood by yourself - not being pushed by your husband. You need to diet (I know it's tough in Southern India w/all that good food - but it's important!) Whenever somebody wants to push you - INSIST that you do it yourself - even if you struggle (you WILL struggle)! Even if you have to go off of the sidewalk into the street to avoid a large curb. It's a bit embarassing at first - but then you will become enormously proud of what you can do. When I was in India EVERYBODY wanted to push me. You have to refuse! You will sweat, you will get tired, you will get dirty... and then you will get proud and healthy! I'm guessing your chair is not the best suited for this (none of them are in India!) but that's no excuse. You NEED to do this! If not, you will have multiple health issues the rest of your life.   Start slow, maybe just a quarter mile and back. Eventually you will be able to work up to pushing 2, maybe 3 even 5 miles at a time! You are still VERY young! This is extremely possible in your future! And you will love every step (or push) of this journey - You have NOTHING to lose! Start today!


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    Madhuri  says:
    Hi Jama, thank you so much for the reply. However, I have missed few points. After the accident I had put down 5 kgs and since hen I have been very careful about my food. I had recently undergone liposuction too where I got rid of around 8 kgs. My shoulder problem started some 7 months ago and doctors here say that I should give rest or use pain killers if. I m not able to take thespian which I don't like. What I have observed here is, the therapists or he doctors do not have a specific agenda for each patient. They have a tailor made course and suggest the same to all the patiends irrespective of the problems any particular patient is going through. Now, I havebeen going through the internet and doing the research on my own and started doing only specific exercises which are suiting my body or rather my shoulder. However, wanted to check if anyone could give any better suggestion. The one which u gave about going around in the wheelchair, I feel it is the best apart from the hand exercises which m doing,. Another important thing is I never let anyone push my wheelchair even in the house. So I would begin from tomorrow itself and hope to get out of this problem pretty fast. Thank bounce again.
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    37 Posts
    LoriK  says:
    Nice to meet you, so sorry about your accident and the care that u received. Sometimes people can be so ignorant. It's hard to be independent when we still need help. You sound like u still take pretty good care of yourself and your family. Stay positive and maybe your husband can help u with strength training you upper body.
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    8 Posts
    Madhuri  says:
    Thanks a lot Lorik .....yes I am still active....taking care of my husband.....I even cook sitting in the wheelchair......as I love coking......and today I was able to get into the wheelchair on my own but not in the right way.....so I m gaining confidence slowly....... As u said....yes my husband will make me do what I feel difficult....so today. When I sat in the wheelchair I was able to lift my leg......this is an achievement for me..... Anyways, thanks everyone for all the support.......words play a vital role in our lives
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