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    <title>Rehabilitation and Recovery</title>
    <link>http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery</link>
    <description><![CDATA[How do you choose the right rehab center?  What is a physiatrist?  When will your rehabilitation begin?]]></description>
    <language>en-us</language>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/05/05/pool-therapy</guid>
      <title>pool therapy?</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/05/05/pool-therapy</link>
      <description><![CDATA[a friend is interested in working with me in the pool. I&#39;ve heard that it&#39;s effective but never had the help until now. Swimming I use an innertube to keep my balance, but with it I can&#39;t move my arms very well. What are some better flotation / support options for pool exercise? And please share effective techniqes worth targeting while in the pool. Thank you so much! Ian&nbsp;]]></description>
      <pubDate>Sun, 05 May 2013 21:16:40 GMT</pubDate>
      <dc:creator>Ian</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/04/19/tingling-in-feet-and-legs</guid>
      <title>Tingling in feet and legs</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/04/19/tingling-in-feet-and-legs</link>
      <description><![CDATA[Hello all. Brand new here. 

I have more and more tingling in both feet and anus. The tingling is in both legs and in my scrotum too. Also when I try to move one leg or the other there is much more tingling. About 1month ago I started to feel my abs firing again (t5/5)incomplete. The Back muscles, lats and the two muscles down to the beginning of my butt crack, are firing too.]]></description>
      <pubDate>Fri, 19 Apr 2013 17:07:49 GMT</pubDate>
      <dc:creator>Nicolas</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/04/15/used-standing-frame-for-free</guid>
      <title>used standing frame for free</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/04/15/used-standing-frame-for-free</link>
      <description><![CDATA[Hi,&nbsp;<br />
<br />
I have a used manual standing frame, a few years old that I originally got for free and no longer need. I am over 6 feet tall and the frame is just a little to small for me to keep using. I am happy to send pics of it if you are in need or interested. I am located in Flushing, New York and if you can come pick it up, it needs a good home.&nbsp;<br />
<br />
Please send me an email at toby_merker@hotmail.com if you want more information and pictures.&nbsp;<br />
<br />
Cheers]]></description>
      <pubDate>Tue, 16 Apr 2013 00:14:04 GMT</pubDate>
      <dc:creator>toby</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/04/12/pain-research</guid>
      <title>Pain Research</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/04/12/pain-research</link>
      <description><![CDATA[The Translational Pain Research Group at the Brigham and Women&rsquo;s Hospital is&nbsp;seeking individuals with pain as a result of Spinal Cord Injury to participate in a&nbsp;research study.<br />
<br />
Volunteers must:<br />
-Be between the ages of 18 and 65<br />
-Be able to make 4 overnight visits to the hospital<br />
-Have had pain for at least 3 months<br />
<br />
Volunteers who qualify for the study will be reimbursed for their time. The cost of&nbsp;travel to and from BWH will also be reimbursed.<br />
<br />
For more information please call 617-525-7246 (PAIN) or email&nbsp;PainTrials@partners.org.]]></description>
      <pubDate>Fri, 12 Apr 2013 16:25:34 GMT</pubDate>
      <dc:creator>Candinho</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/03/30/spring</guid>
      <title>Spring</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/03/30/spring</link>
      <description><![CDATA[Spring generally means lacrosse season in my house. I had been playing even at my age and never missed a Maryland Masters Lacrosse season. The competition was stiff and it was such great exercise to get out on the field. I am no longer able to play lacrosse without a wheelchair. I can however hobble around and coach. So that is what I am doing.<br />
<a href="http://markflounlacker.blogspot.com/">Read more</a>&nbsp;on markflounlacker.blogspot.com]]></description>
      <pubDate>Sat, 30 Mar 2013 22:31:20 GMT</pubDate>
      <dc:creator>Mark</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/03/29/autonomic-dysrophlexia-with-bladder-injury</guid>
      <title>autonomic dysrophlexia with bladder injury</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/03/29/autonomic-dysrophlexia-with-bladder-injury</link>
      <description><![CDATA[     Im helping my friend john who is a c4 c5 incomplete get info and assistance from the right places. To help get him in the right direction. First i want to say its hard for people with these injuries to focus on treatment and resources sometimes because the barage of ailments clouds minds like hordes of programs running a computer. When very ill it can be like trying to do.something in a dream. And with not the right help can go backwards quick. Hang in there and respectfully guide them through it. You will get momentum.
      He has a suprapubic catheter. Years ago an incision injured his bladder much more.than the 1/2 in to 1 in necessarry. The bladder healed like a badly pollinated apple. His ad is unbearable and daily. He gets very little rest and spends most of the time in bed lying down with one leg propped up all the time or it goes off. Hip ball having issues. Been waiting almost two years waiting for braces. He really needs to be in contact with others who have the same problems. Im prepping him with tablet pc and smartphone skills as best i can. Anyone have advice or a friend he can relate.to?]]></description>
      <pubDate>Fri, 29 Mar 2013 11:05:22 GMT</pubDate>
      <dc:creator>charles</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/03/28/will-this-never-end</guid>
      <title>Will this never end?</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/03/28/will-this-never-end</link>
      <description><![CDATA[In August of 2010, in a simple trip and fall, I became an incomplete quadriplegic.&nbsp; Then began the the bowel issues.&nbsp; When my bowels are not moving, my right leg swells terribly, my hands become almost useless, my abdomen is blown out to where I look 8 months pregnant, and exercising is impossible.&nbsp; Then in September of 2011 they found a brain aneurysm which I then had to have brain surgery to have it coiled.&nbsp; The doctors here in Las Vegas know nothing about trearting people with spinal cord injuries and will not listen to me.&nbsp; When I have had&nbsp;procedures, colonoscopy, endoscopy, various MRI&#39;s, etc... I come away in worse condition than when I went in because doctors never take my paralysis in to consideration.&nbsp; I have now been diagnosed with LUNG CANCER!&nbsp; I am scheduled for surgery next week and have been trying to make sure that my surgeon take my paralysis in to consideration for post-surgery rehabilitation.&nbsp; I live alone and have no one to help me.&nbsp; I am very scared about this and am not sure if the doctor is really listening to me or if he is like the many others who were only concerned about their portion of what was being done to me.&nbsp; Does anyone have any suggestions?&nbsp; Anyone been through multiple problems not related to their paralysis per se?&nbsp; I could use some input as I have no one to turn to here.&nbsp; My insurance is Senior Dimensions and I have contacted every group In the Las Vegas area and no one will help as I am not old enough (I&#39;m 57) to qualify for many programs and there are virtually no SCI programs that I can find.&nbsp; Transportaion as well as home help are going to be critical.&nbsp; Maybe I should now try a cancer organization?&nbsp; Will this never end?]]></description>
      <pubDate>Thu, 28 Mar 2013 15:23:58 GMT</pubDate>
      <dc:creator>Debra</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/03/24/how-do-we-choose-a-rehab-place-that-can-help-you-p</guid>
      <title>how do we choose a rehab place that can help you progress to indepedance?</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/03/24/how-do-we-choose-a-rehab-place-that-can-help-you-p</link>
      <description><![CDATA[I am 1 1/2 years out from my accident and am on my third rehab place.&nbsp; I am going for the baclafin pump in a few weeks then onto another rehab place.&nbsp; I am trying to find a place that will help me progress and not go backwards but there are no real spinal cord therapies here and I can&#39;t get the pump without first having a place to go.&nbsp; I am also concerned that I am still in therapy this long after my accident.&nbsp; When do I get better and can live at home at have a life again?&nbsp; Any feedback would be appreciated.]]></description>
      <pubDate>Sun, 24 Mar 2013 21:50:44 GMT</pubDate>
      <dc:creator>MonaRae</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/03/07/neurx-diaphragm-pacing-system</guid>
      <title>NeuRx Diaphragm Pacing System</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/03/07/neurx-diaphragm-pacing-system</link>
      <description><![CDATA[Have anyone ever done or planning on doing<b><span style="color:#ff0000;">&nbsp;NeuRx Diaphragm Pacing System</span></b>?&nbsp;<br />
My son is <u><span style="color:#0000ff;"><b>17 years old C1 incomplete quad</b></span></u> with moving diaphragm. &nbsp;He is on the minimal vent setting, but still needs that vent. &nbsp;Tried to get him of it, very hard for him and he gets infections as soon as he go over 30min at a time off the vent.<br />
We were starting to think and research&nbsp;the NeuRx Diaphragm Pacing System and if someone has it or knows a lot about it, please post here, would be very helpful. <i><b><span style="color:#40e0d0;">Thank you</span></b></i>.<img border="0" class="tp_smiley" src="http://www.spinalcordinjury-paralysis.org/images/smileys/heart.gif" /><br />
<br />
]]></description>
      <pubDate>Thu, 07 Mar 2013 14:31:18 GMT</pubDate>
      <dc:creator>Maxysmom</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/02/27/whats-going-on-</guid>
      <title>What's going on ?</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/02/27/whats-going-on-</link>
      <description><![CDATA[So, is stem cell therapy in the usa ? I&#39;m really wondering ... I want to gain feeling &amp; movement back so bad . I need to talk to people with spinal cord injury . I just feel so depressed &amp; desperate, but I&#39;m in a good mood right now . Please help me !]]></description>
      <pubDate>Wed, 27 Feb 2013 23:56:23 GMT</pubDate>
      <dc:creator>Helen6fb5c</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/02/27/looking-for-resources-in-connecticut</guid>
      <title>Looking for resources in Connecticut?</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/02/27/looking-for-resources-in-connecticut</link>
      <description><![CDATA[Looking for resources in Connecticut?<br />
<br />
<a href="http://BackToYourLife.com">http://BackToYourLife.com</a>&nbsp;<br />
<br />
Developed by a group of students in the doctorate of physical therapy<br />
program at Quinnipiac University in Connecticut, the website,<br />
BackToYourLife.com provides people with spinal cord injury in<br />
Connectcut a resource to assist with reintegrating into the<br />
community.<br />
&nbsp;]]></description>
      <pubDate>Wed, 27 Feb 2013 19:39:29 GMT</pubDate>
      <dc:creator>prc_donnal</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/02/12/i-really-need-your-help</guid>
      <title>I really need your help!</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/02/12/i-really-need-your-help</link>
      <description><![CDATA[Hey everyone. I know I&#39;ve been somewhat bothersome by posting this multiple times but I really need your help. The more people that take my survey, the less I have to post it. &nbsp;<img border="0" class="tp_smiley" src="http://www.spinalcordinjury-paralysis.org/images/smileys/smile.gif" />I&#39;m doing a project for my college honors class. I am trying to design a product that makes it easier for people with physical disabilities to create art. I don&#39;t know if this would be an appropriate place to post a link to my survey, but I would love your feedback. All answers are anonymous and you do not have to answer anything you don&#39;t feel comfortable with. Thanks for your time and help!<br />
<a href="http://kwiksurveys.com/s.asp?sid=igxjwp9nniyib1090140">http://kwiksurveys.com/s.asp?sid=igxjwp9nniyib1090140</a>]]></description>
      <pubDate>Tue, 12 Feb 2013 21:18:04 GMT</pubDate>
      <dc:creator>km14</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/02/09/have-anyone-try-stemcells-yet-im-thinking-about</guid>
      <title>have anyone try stemcells yet! im thinking about!</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/02/09/have-anyone-try-stemcells-yet-im-thinking-about</link>
      <description><![CDATA[]]></description>
      <pubDate>Sat, 09 Feb 2013 07:09:22 GMT</pubDate>
      <dc:creator>Greg</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/01/25/bladder-function</guid>
      <title>Bladder function</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/01/25/bladder-function</link>
      <description><![CDATA[Hey, does anyone know if bladder surgery is good ? I was just wondering . I am so ready for change, I think my feeling is coming back . &amp; when I wash I can feel a&nbsp;little bit down there &amp; I&#39;m getting some type of feeling in my thighs when I move my hand across the skin . My period came back last year which is a good sign, my mom asked my doctor if I could have kids the day of my last surgery when I was in the hospital &amp; he said yes . I was so happy <img border="0" class="tp_smiley" height="20" src="http://www.spinalcordinjury-paralysis.org/images/smileys/smile.gif" width="20" />I&#39;m still a virgin btw . &amp; also I have a over active bladder, I had only 1 UTI when I came home &amp; I cleared that up with antibiotics &amp; I drink a lot of water anyway . I take Oxybutynin twice a day, it helps a little especially it stopped my sweating . I really don&#39;t care about the side effect &quot;dry mouth&quot; because I drink a lot &amp; I chew gum &amp; eat candy . At first it bothered me, but I just kept on taking it . Anyways I hope someone answers my question .]]></description>
      <pubDate>Fri, 25 Jan 2013 18:38:01 GMT</pubDate>
      <dc:creator>Helen6fb5c</dc:creator>
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    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/01/03/cool-picture</guid>
      <title>Cool Picture</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2013/01/03/cool-picture</link>
      <description><![CDATA[<img border="0" class="004_20130103084320_400.JPG" src="http://www.spinalcordinjury-paralysis.org/assets/reeve/discussions/52/3352/images/topics/44316/004_20130103084320_400.JPG" /><br />
<br />
I thought back in January if I ever could, I wanted to take a picture of me holding my wheelchair over my head. It&#39;s been a long year. So thrilled to be making such huge progress. Still dealing with BandB issues and weak ankles, but I will take it. Happy New Year folks!]]></description>
      <pubDate>Fri, 04 Jan 2013 01:42:21 GMT</pubDate>
      <dc:creator>Mark</dc:creator>
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