http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery en-us http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2012/04/25/technology-survey-at-stanford-university-2 http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2012/04/25/technology-survey-at-stanford-university-2
A research lab at Stanford University has developed a survey to assess the technology needs of people living with paralysis.  They hope to better understand what technology is most useful for people with paralysis as well as what movement and control is necessary to restore.

If you are a person living with paralysis of all four limbs (quadripegia), please consider participating in this survey.  This survey should not take more than 20 minutes to complete.  US Citizens only, please.

https://stanfordmedicine.qualtrics.com/SE/?SID=SV_3qlq5Y0nA1zSeR6

Thank you for your time in advance,

Christine]]> Wed, 25 Apr 2012 18:15:58 GMT ChristineNPTL http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2012/04/24/spinal-cord-cut http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2012/04/24/spinal-cord-cut  Does having the spinal cord cut mean the full  recovery is impossible ?]]> Tue, 24 Apr 2012 21:09:52 GMT mohammed http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2012/03/23/vocal-folds http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2012/03/23/vocal-folds Sat, 24 Mar 2012 00:08:08 GMT carriep http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2012/03/20/when-can-i-get-the-epidural-electrical-stimulation http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2012/03/20/when-can-i-get-the-epidural-electrical-stimulation Tue, 20 Mar 2012 20:51:19 GMT ify http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2012/03/15/broken-spinal-rods http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2012/03/15/broken-spinal-rods
I also have an indwelling catheter, continous urinary incontinence as a result of a neurogenic bladder, I have tried all the various drugs for infections, they are just chronic and have had no success.  Recenlty my neriologist suggested botox injections into the bladder, and/or bladder augmentation.  Have not been able to follow up as well, I am off topic here, back on to what I wanted to discuss today...lol

3 weeks ago a very large bruise (1/2 the size of my hand) appeared on my right buttock, not on any bony protrudance.  I had no idea what caused it, had not fallen or bumped my cheek to my knowledge.  I have had 2 previous skin flap surgies on my right ishial so am very cautious and check my skin every night, that is why i know it just appeared 1 day.  It was quite hard and hot.  I decided to stay off it, pretty much 24 hr/day for a few days to see if it would clear up.  It went through the regular stages of bruise, clearing up ever so slightly and turning green/yellow around the edges.  Continue to stay off it allot for 2 weeks, it is still hard and hot, I feel what seems to be a small circlular area near the middle.  Suddenly one day after sitting up quite a bit, I had some errands to run and such, a small hole appeared and some liquid drained out, we put a bandaide on it (BTW my husband was keeping an eye on it and photographing it for me as it was in a spot even with a mirror I really could not get a good look at it), the next night,more drainage, husband changes the dressing, photo and what appears to be silver we can see clearly, we thought it was just reflection of the lights??  Following evening, hubby removes the dressing and a metal rod 3.5" long and .8" in diametre slid out onto the bluepad I was laying on...you can imagine my husbands surprise!! Holy Cow!  my response was what? immediatly i thought the opening had doubled or something.
It was as you can guess, the broken rod!! Next morning after discussing with my rehab nurse (thank goodness I have contacts at the hospital as I am dealing with PT's to order a new w/c) she told me to go to the nearest hospital to get xrays, and some antibiotics.  I go in the morning and of course have to wait forever, have to convince the emerg room doctor to order the x-rays, after asking 3 times, begging him and telling him my doctor sent me to the hospital specifically for them, gheesh!! he didn't see any point in it, DUH, we want to see if there is more metal where it shouldnt be.  so frustrating.  well anyone i have talked to (minus the emerg room dr of course, he said he has seen this happen many times) have never heard of rods moving that much to the point of leaving the body through the gluteous maximus, maybe through the back!  In fact my first experience with broken rods, approx 1 year post injury my rods slipped and started poking through the skin around the t10 level, well never broke the skin, but they operated and just removed the rods at that time.  I guess they figured my back was fused and ok by then and did not need the external support.

My question today, has anyone heard of broken rods that have migrated south and exited the body?  

I have an appt next week with the ortho dr who will review my latest x-rays and compare to the previous set(s).  Not sure what is next.  In the meantime now I have to have a home care nurse come in and assess the wound (which they do not classify as a pressure sore, so that is good), more of a surgical wound, it is still open and perfectly round. Will be getting a CT or MRI to see how far the tunneling goes, not sure how long it has been moving, hopefully it was slowly moving and the track/tunnel has collapsed onto itself, not leaving an opening up to the bone in my spine.  and that there is not much under mining in the wound.
of course infection of the bone is the major worry right now.

I can keep you up to date if anyone is interested.  But I am curious if anyuoe has heard of this happening before.  

Have a good one. :) 
excuse any typos, i'm on my side and not terribly confortable typing this way, need to set up voice command typing soon, arms are starting to get sore from laying on hehe]]> Thu, 15 Mar 2012 08:08:15 GMT Marney http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2012/02/28/rehab-centers-in-europe http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2012/02/28/rehab-centers-in-europe Tue, 28 Feb 2012 08:56:23 GMT Annie http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2012/02/27/free-catheters-is-this-the-right-forum http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2012/02/27/free-catheters-is-this-the-right-forum Mon, 27 Feb 2012 17:07:51 GMT Joni http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2012/02/18/how-far-time-frame-past-initial-injury-is-progress http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2012/02/18/how-far-time-frame-past-initial-injury-is-progress Sat, 18 Feb 2012 08:13:35 GMT Joleen http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2012/02/14/can-propreoception-come-back http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2012/02/14/can-propreoception-come-back Wed, 15 Feb 2012 00:20:54 GMT Natalie http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2012/02/08/neurostimulator http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2012/02/08/neurostimulator http://www.poweroveryourpain.com/getting

I don't know anything about it. If anyone does, would you mind replying with your opinion please?

Thanks!
Saralee]]> Wed, 08 Feb 2012 14:28:46 GMT Saralee Perel http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2012/01/31/airplane-travel http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2012/01/31/airplane-travel Tue, 31 Jan 2012 23:05:07 GMT CHILL http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2011/11/18/what-should-we-expect-anything-we-can-learn-about- http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2011/11/18/what-should-we-expect-anything-we-can-learn-about- Sat, 19 Nov 2011 01:33:54 GMT jerri http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2011/10/30/need-assistance-with-locating-a-rehabilitation-cen http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2011/10/30/need-assistance-with-locating-a-rehabilitation-cen Mon, 31 Oct 2011 02:24:35 GMT Mendy http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2011/10/12/how-would-you-rate-your-rehab-facility http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2011/10/12/how-would-you-rate-your-rehab-facility Wed, 12 Oct 2011 15:41:34 GMT JoeG http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2011/10/04/re-walk-by-argo http://www.spinalcordinjury-paralysis.org/discussions/rehabilitation-and-recovery/2011/10/04/re-walk-by-argo I want to inform everyone of the Re-walk mechanical legs. I am in a clinical trial at the VA in Bronx, New York. Until someone can put us together, it is a great alternative to stand and walk. It takes sometime to get used too but it is a new, implemented piece of technology. I pray someday we are all walking. Until that day comes, the Re-walk is the "BEST" alternative to walk. It has a lot of great benefits to reduce pressure sores, regulate blood flow and help with blatter and bowels. Check out Argo's site. www.rewalk.com. If anyone has questions, feel free to email me anytime. joemonte@nep.net.
Best Regards,
Joe Monteforte]]> Wed, 05 Oct 2011 01:21:55 GMT JoeMonte