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    Most Recent Posts
    William says:
    Hi guys, I just want to start by saying I am with a start up and I am not in a wheelchair - but I also want to say that we are trying to create assis...

    How do you choose the right rehab center? What is a physiatrist? When will your rehabilitation begin?  
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    24 Posts
    What's going on ?
    By Helen6fb5c   
    So, is stem cell therapy in the usa ? I'm really wondering ... I want to gain feeling & movement back so bad . I need to talk to people with spinal cord injury . I just feel so depressed & desperate, but I'm in a good mood right now . Please help me !
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    Visit JoeMonte's profile
    44 Posts
    JoeMonte  says:
    Helen,
    All of us are waiting as you are. We all want to regain our old lives. I was a daily runner and now I am a T-10 complete. It is hard not just on me but my wife and family. It is a major life change. I don't know how long you have been injured but life does get better.
    It is always a challenge but you will learn how to deal with life. I work out and try to exercise the best I can. It keeps my mind clear and will prepare me for any future clinical trials down the road.
    There are many clinical trials being brought to light in the USA. Miami institute among many have started trials. You can check out www.clinicaltrials.gov.

    I have been injured six years and the best advice is to stay fit, healthy and positive. It will be the tools you need too enter any upcoming future trials. I have seen more posiitve feedback in the medical industry in the last few years. No one knows exact dates but a lot of companies are testing the safety aspects of the trials. Hang in there. We are all in the same boat and are excited about all the new medical advances science is acheiving. . Feel free to email anytime. joemonte@nep.net.
    Best Regards,
    Joe
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    Visit Helen6fb5c's profile
    24 Posts
    Helen6fb5c  says:
    Hello Joe, I know things are gonna get better . I shouldn't rush, even though I have to walk this year because I walk across the stage next year when I graduate highschool . & then I have prom . Therapy, determination, positive energy & eating healthy is good .
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    44 Posts
    JoeMonte  says:
    Helen,
    I know Sci  is a major life change for all of us. You will graduate and smile. I know it is not the same as walking but we can't change it. We can only stay positive and make the best out of everyday.
    I have good and bad days too. I just turned 50 and have been in the chair for six years. I too can't wait for the day I can walk again.
    We must have hope to keep us going. Sci is a rough injury to accept. Try to get involved in many things to keep your mind occupied. It is the best medicine for me. I workout as much as possible and tire myself out. The strength I have makes it easy to transfer and get around. Do you drive? Hang in there, life will always be a challenge but have patience and take one day at a time. I wish you well.
    Best Regards,
    Joe
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    24 Posts
    Helen6fb5c  says:
    It can be changed . I don't care if I have to walk with a walker/cane . I just wanna be walking for my graduation & I can't drive yet . I'm 16 .
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    Visit Casey Noel's profile
    1 Posts
    Casey Noel  says:
    I was told my chances of walking were basically 1 in a million. But about a year after after therapy I took my first step in the pool. I remember praying but questioning. Finally, I decided to believe God could heal. I would lay there and try my hardest to move my toes even when I was still. Anyway I am walong but it took lots of Physical therapy, braces, and even now I have about 50% feeling but it is over sensitive. Diagnosed as severe neuropathy. But after that first step I decided to find a way to a pook daily. But I thought it was much easier to walk in the pool because you don't have gravity. Anyway keep your faith up and remember if you can get any movement it's not impossible to walk. I too tried cains, leg braces, crutches, but feel the best way to get that injury to signal the brain to my feet was reducing gravity. But I'm not sure of your medical prognosis, but I found faith, time, exercise, and aqua therapy helped me and was easier than walking on land.
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    Visit Becky's profile
    17 Posts
    Becky  says:
    Just remember you can do anything now if you put your mind to it.  My motto is:  To not try is to fail.  I was injured two years ago and everyday I try to do a little but more than yesterday.  I do have bad days but just reach out to my firends and god.  More and more trreatment is becoming available to us.  Check out the Neuro Recovery Network and get involved.
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    Visit Ignacio's profile
    1 Posts
    Ignacio  says:
    For those of you close to Austin, TX, give my friend KeithAnn a call,  She is the Executive Director of Project Walk Austin  www.projectwalkaustin.org  Tell her Ignacio refererd you to her.  Best Wishes! 
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    Visit Helen6fb5c's profile
    24 Posts
    Helen6fb5c  says:
    Right & Thank you for your kind words !
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    Visit Helen6fb5c's profile
    24 Posts
    Helen6fb5c  says:
    I wish I could go there, they need one in Maryland !
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    24 Posts
    Helen6fb5c  says:
    That's great that you believe can heal you & you took a first step in the pool :) I am not currently doing any therapy, I did physical & occupational therapy at Kennedy Krieger in Baltimore city . Before that when I came home March 2nd 2012 I had in home therapy . After she left I got therapy at KKI . I decided not to go back because my father cannot come there . So I want to go to a place called Kernan in Woodlawn, Md & there times wasn't good so I left . I was wondering about being there for impatient therapy, I changed my mind . I looked into Shriners up Philadelphia & changed my mind . I'll just stay in Md & do as much therapy as possible so I can be walking for my senior year . My goal is to walk across the stage in 2014 . I have plenty of goals I want to achieve . With my attitude I can do it, sometimes I feel jealous of everyone else that is walking :( I just try to think about I'll be up on my feet soon again . I just think of others that won't walk again, but I think everybody should be walking . I just pray things will turn out the way they should be & that things are gonna be better than they was before my accident . I'm planning on getting a lot of help though ! Thanks for responding, god bless you !
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