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    Most Recent Posts
    Tricia says:
    I would like to invite you to participate in a SHOULDER PAIN PREVENTION Research Study at Rancho Los Amigos National Rehabilitation Center in Downey, ...

    Devin  says:
    I love Mary's suggestions. An interactive approach will seem less like exercise and be an enormous help to her emotionally. Sqeeze balls and putties a...

    How do you choose the right rehab center? What is a physiatrist? When will your rehabilitation begin?  
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    24 Posts
    Bladder function
    By Helen6fb5c   
    Hey, does anyone know if bladder surgery is good ? I was just wondering . I am so ready for change, I think my feeling is coming back . & when I wash I can feel a little bit down there & I'm getting some type of feeling in my thighs when I move my hand across the skin . My period came back last year which is a good sign, my mom asked my doctor if I could have kids the day of my last surgery when I was in the hospital & he said yes . I was so happy I'm still a virgin btw . & also I have a over active bladder, I had only 1 UTI when I came home & I cleared that up with antibiotics & I drink a lot of water anyway . I take Oxybutynin twice a day, it helps a little especially it stopped my sweating . I really don't care about the side effect "dry mouth" because I drink a lot & I chew gum & eat candy . At first it bothered me, but I just kept on taking it . Anyways I hope someone answers my question .
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    Visit prc_donnal's profile
    104 Posts
    prc_donnal  says:
    Welcome here!

    I have not had the surgery, but I can send you some information and resources to help you find the right answer for you.


    I am an information specialist at the PRC and have a spinal cord injury at C4-6. I can send you some information on physiatrists.It is a physical medicine specialty. You can go to their website (included in our fact shet) and find one in your area.


    I can also send you some information and resources on bladder management; you can use this as a basis for discussion with your doctor.


    Please let me know if you would like to receive thtis information.  My phone number is (800) 539-7309 x7202. My email is dlowich@christopherreeve.org
    .

    I look forward to hearing from you!

    Sincerely,

    Donna 
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    Visit Helen6fb5c's profile
    24 Posts
    Helen6fb5c  says:
    Thank you, that`s ok . My parents will handle it . 

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    Visit AlmaFuerte79's profile
    1 Posts
    AlmaFuerte79  says:
    I've had bladder augmentation and the mitrofanoff done.  I wish I had them done sooner.  From what I've read though, if you want to have children...you do not want to have the mitrafanoff done yet, if at all. I would imagine after having children it would be an option.  I was reading a post where one woman found that out after she had the surgery and was very dissapointed.

    For me, prior to having the mitrofanoff done, I had to transfer to bed in order to cath, and I would go as long as possible between cathing to do so...not healthy.  It also limited my ability to go back to work full time which I am doing now.

    I am still on vesicare but it's great to be able to cath whenever and pretty much wherever if necessary.  I live near Kansas City, but I went to Craig Hospital in Englewood, CO to have my surgery.

    I hope this information was helpful...and best wishes!
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    Visit Tamela's profile
    1 Posts
    Tamela  says:
     I had the  bladder augmentation surgery 17 years ago performed by Dr. Shlomo Raz, at UCLA urology department. At the time I  really had no other choice but to do it because  I had taken so many  antibiotics that I was immune  to them. I was sick with infections all the time affecting my ability to work.

    The surgery changed my life completely. It gave me the freedom from the ball and chain that used to be the indwelling catheter,  the leg bag and the night drainage bag.    I gained so much independence by not being tethered to a caregiver every 3 to 6 hours to  help me empty the bag.   Getting rid of those items made it easier to transfer, dress, and feel better about myself.

    In light of my success and happiness with having done the surgery, I need to make everyone aware that you must be healthy and honest with your surgeon. I recommended this surgery  to another quadriplegic who was desperate for a solution to change her life. What she did not tell the surgeon was that she was treating herself by going to multiple doctors and pharmacies for antibiotics and pain meds. During her surgery, she died because her heart just wasn't strong enough to handle the surgery.

    I am a C5–6 quadriplegic with limited hand function, however, I have no issues with inserting the catheter and empty the bladder.

    Here is a video from a bladder augmentation patient, a 22-year-old woman that discusses her surgery from UCLA by a  Dr. that I'm assuming is a student of Dr. Raz'.  

    Here is an articles about this surgery from New Mobility Magazine:

    What About Bladder Augmentation Surgery?
    By Bob Vogel



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    Visit Helen6fb5c's profile
    24 Posts
    Helen6fb5c  says:
    I'm a t2, my right arm isn't all the way straight yet . I'm not able to cath myself  .
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