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15 Posts
Thank you for sharing! I have come further than what I was told was going to be possible for me.. and I'm still exploring the possibliity of even further improvement a bit over three years past my initial injury. As my mother put it, the doctors or physicians are practicing medicine... a practice because nothing is for certain. I totally agree with the encouragement, I had a hard enough time accepting me for me without negativity tossed in the mix... a positive attitude helps more than anything else I've come across.
6 Posts
Thanks for the encouraging word. We are in the sixth month of our recovery, and sometimes you need encouragement!!
36 Posts
The physical therapy team assigned to me when I was in rehab, kept telling me not to measure myself against my former self and to give myself time. They were awesome. They told me right from the beginning, that time would actually give me the perspective of just how hard I worked and how far I would come. Progress they said, would be measured best once there I had weeks, months and even years to look back. The very best to you both.
1 Posts
In hindsight I am feeling grateful that my rehab doctor was so non-commital about my prognosis. He kept saying 'people we think will never walk do, and people we think should walk sometimes don't, it's all individual'. I am almost 9 years post spinal infarct and have experience changes well past the 1, or 3 year window. Keep working at it and never say never!
1 Posts
I agree with your post on how doctors do not know all the answers. My brother is a C4/C5 quad and was also given a bleak future. This was 5 years ago and he is now attending college in Miami and lives alone and is doing what he would be doing if he was not injured. Your loved one will have a happy and fulfilling life, it just will be one that you have not planned for. It gets better. My brother has not regained any function, but he is doing more and more with what he does have. Also remember you are not alone, there are many support groups that will help you way more than any doctor. Talk to other quads and their caregivers/family to learn new ways to get your loved one living as independently as possible. It gets easier. I wish you the best of luck.
3 Posts
Your word is so encouraging. My husband's injury happened this week. Doctors are very pesimist for his contition, but I can't come with the idea that he will be a weak man, as he always used to be a strong man and a great athlete. You give me a hope that we may have improvement if we try....thank you so much!!!
2 Posts
I was told I would never be able to hug my children again! We are bound and determined to prove them wrong! KEEP THE FAITH
61 Posts
you'll never walk again, the doctor said, then just walked out of the room. the dr.s told me i'd never move any thing below my neck at one time. i now have my arms and some legs, hips and abs and 21 years post injury i'm still getting return, i credit this to devine intervention and a lot of hard work. i have walked with braces and a walker and exercise at least 3-5 hours a day. exercise is key to his recovery, push every little movement as far as he can. i'll say a prayer for you and him. God bless!
5 Posts
I find all of this very encouraging too ... my son had complications during surgery and for six weeks the medical team was convinced that he would have all or at least some return of sensation and movement below the level of injury T-10 ... as days turned into weeks and my son's care became more complex I was the one that needed to convince the team that he needed to be transferred to a hospital with a spinal cord injury rehab program - I was the only one willing to use the word parapeligic. Now with a few weeks of rehab and training for me to able to assist him in his ADL's when we get home I am feeling the same as many of you ... that the medical team can only provide their opinion and then it is up to us to dream big dreams and move into each day confident that great things are ahead.
