
175 Posts
Hi Sandra,
I think there is always hope. Doctors can’t predict the future. I think they try to give you the best prediction they have, but my experience is that it usually leans toward the pessimistic, worst case scenario.
I was told many….your husband will never “fill in the blank”. Some of those predictions were true. Some were not.
Is her movement deliberate movement instead of random movement? Like can you say, move the toes on your right foot and she can achieve that? Deliberate, repeatable movement is a good sign. Spasm and exaggerated reflexes can cause movement which is just that, reflexes but is not a sign or returning or regaining function.
Early on, I can remember one nurse showing me how my husband’s foot would move if she stroked the bottom of it. She indicated that was recovery. Little did I know that was merely a reflex not any sign of recovery at all.
The burning sensation is often associated with neuropathic pain with is common in paralysis and SCI. It isn’t really a sign of recovery. It is caused by abnormal signals from the nerves that were damaged by her SCI , and this is why a person can feel neuropathic pain in an area that otherwise has no sensation.
I think most people will tell you that 2 months post paralysis is too early to make the final prediction about the ultimate outcome. My advice would be to be realistic. Plan for the worst, hope for the best but don’t give up hope. Where there is life, there is hope.
Trish