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    Tiffany  says:
    Mark, Like Kimberly asked above what type of bicycle short, do you recommend? I have been looking online for different types, but it seems that t...

    Learning that you, a family member or friend has gotten a spinal cord injury is devastating and overwhelming news.  
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    3 Posts
    Feet Movement
    By sandra   
    Hi 
    My mother had a ruptured aneurism two months ago and the operation caused her to become paralysed. The doctors have stated that she will never walk again but we are puzzled as to how they can come to that conclusion when she can move her feet and toes but cannot lift the legs. She has complete sensation in both her legs and feels a burning sensation in her feet if they are not moved enough. Can anyone advise as to whether we can still have hope of her ever walking or even just standing up briefly. Seems as the doctors and phisiotherapists at the rehab hospital she is at has given up on her. She is a very young 80 year old. Any info would be gratefully accepted. Thanks.
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    Visit Trish-411's profile
    175 Posts
    Trish-411  says:
    Hi Sandra,

    I think there is always hope.  Doctors can’t predict the future.  I think they try to give you the best prediction they have, but my experience is that it usually leans toward the pessimistic, worst case scenario. 

    I was told many….your husband will never “fill in the blank”.  Some of those predictions were true.  Some were not.

    Is her movement deliberate movement instead of random movement?  Like can you say, move the toes on your right foot and she can achieve that?  Deliberate, repeatable movement is a good sign.  Spasm and exaggerated reflexes can cause movement which is just that, reflexes but is not a sign or returning or regaining function. 

    Early on, I can remember one nurse showing me how my husband’s foot would move if she stroked the bottom of it.  She indicated that was recovery.  Little did I know that was merely a reflex not any sign of recovery at all.

    The burning sensation is often associated with neuropathic pain with is common in paralysis and SCI.  It isn’t really a sign of recovery.  It is caused by abnormal signals from the nerves that were damaged by her SCI , and this is why a person can feel neuropathic pain in an area that otherwise has no sensation.

    I think most people will tell you that 2 months post paralysis is too early to make the final prediction about the ultimate outcome.  My advice would be to be realistic.  Plan for the worst, hope for the best but don’t give up hope.  Where there is life, there is hope.

    Trish
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    Visit Michael's profile
    4 Posts
    Michael  says:
    Listen to Trish she know's what she's talking about!
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    Visit MARY & RON's profile
    11 Posts
    MARY & RON  says:
    Sandra, no doubt you are going through a very scary time with your mom, but don't give up.  My husband fell in the bathroom, broke his neck and was supposedly "paralyzed" from the neck down, forever.  Yet today he can stand, with help, for almost 3 full minutes.  Don't listen to the doctors.  Listen to your heart, and your mom's, and encourage her by taking it in very small increments.  It might be too soon to expect big advances; my husband didn't really start making progress until 8 months after his injury.  However, I can tell you that Lyrica made a big difference in the burning/ tingling sensations in his hands & feet; he also takes Baclofen for muscle spasticity in his legs.  It took a long time to get the dosage right, but they both helped a lot.  If she is getting physical therapy, have the therapist show you how to work with her every day to do leg stretches, foot & ankle stretches and bridging (lifting her hips while lying down) for balance.  Then eventually you can work into lifting her with a gait belt from a sitting position in her bed or chair to standing for a few seconds at a time until she gets stronger.  It took us almost 16 months, but I am finally able to transfer my husband to and from his bed & chair by using a transfer disc- a round flat plastic disc that acts like a turntable, that he stands up on, then I use his weight to swing him around into bed or chair.  Very low tech & easy to use.  If Mom can still feel her legs and feet, chances are EXCELLENT she can at least stand again.  Don't give up hope.  I'll be praying for you!!! 
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    Visit WJK's profile
    5 Posts
    WJK  says:
    Sandra – First, thanks for taking a lead in your mother’s treatment care and services.  She may not now have the stamina to speak up… but you rightfully ‘stepped in’ to encourage her recovery toward always (as Christopher Reeve would say) ‘going forward’. 

    Second, I agree with what has been said, but would add that if her quadriceps muscles are damaged she will not be able to walk safely.  Without the active action of the quadriceps, one can only ‘shuffle’ or ‘wobble’ but not have the ability to lift the leg to propel the gait in a normal walk, step or stride.  And, since the geriatric population (and your Mon is 80 y/o) is 33% at risk for falling, I’m sure that there is a concern regarding her stability and/or possible fracture. 

    That being said BTW – I was the only one in the Hospital and follow-up rehab unit that was not told that I was expected to spend the rest of my life paralyzed in a power wheelchair or Medicaid bed.  Gee... I never got that Memo.… so one day (at age 58) I stood at the sink to wash my hands; and now after five years of exercise, I walk anywhere and anytime I want.

    So, never give up, and, tell your Mother to never stop trying to live her life to the fullest.


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