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hi Michelle,
you were so young when you contracted this terrible disease, you must have been terrified. Of course, you are still young but I understand how your body feels old. My body felt old from the time of my accident over 30 years ago. (Now, I actually an old!).
I would like to know more about the interaction with your doctors. Why they seem so problematic. But just as important to me is what's happening internally and what does your body/mind/spirit need to be more comfortable inside the life you have?
So this might be a bold question for a public forum, but if you are willing, tell me a bit more about your thoughts and emotions.
By the way, the vast majority of people with Guillain-Barré show significant improvement pretty spontaneously. Any idea about what's happening with you?
I look forward to hearing from you Michelle
Dan