I am 70 and have been paralyzed 50 years. I started out paraplegic (hands and arms) but aging and spinal cord loss at my injury site C4-C6 (the result of hemorrhaging during spinal surgery) has caused an insidious decline making me a quadriplegic and subject to all the life threatening results.
In spite of this, my health is good. My recent physical showed all my blood parameters in the normal range. My wake-up call last December was the failure of antibiotics to deal with pneumonia and I had to have surgery on my right lung to save my life.
I'm an existentialist and writer, like you. I'm currently completing my illustrated (with many pictures I scanned) autobiography that I started in 1992, typing with one finger at a time. In the meantime, I've written four novels and two books of short stories that should live well beyond my life. My legacy, you will, because I have no children.
My primary helper of twenty years worries a great deal about my death, but I don't. I have prepared well with my will work up until the day that I can't anymore writing. I've always said that my paralysis will shorten my life ten years. That means that, since my relatives have all lived in the high nineties, I will probably make 80… Enough for me.
Ronald W. Hull, EdD