My name is Steven and I am the sole caregiver for my partner, Scott age 59 C4 tetraplegia incomplete, and we are coming upon the fifth year of his injury. All of our families and friends, even though they seem to be somewhat concerned, have fallen by the wayside and never call or offer to help. I ask for help at times and not anyone seems to have the time. I recently sent out an email to everyone just asking them to send him a greeting card or give him a call. Out of over 100 on the list, only one person sent a card. It seems as if nobody except for myself can understand the implications of being paralyzed from the neck down, the medical complications associated with this, and the constant hospitalizations for sacral wound infections, blood infections, UTIs -- all hospital acquired. I am the one who gets blamed for not taking good care of him and I am the reason, they mistakenly think, he ends up in the hospital. Well, we al know that's not true but I cannot convince them otherwise, nor can I even reason with them. I had to quit my job to take care of Scott 24/7. He was thankfully able to retire and receive his pension, long-term disability, and social security. We are able to hire an assistant to come in for 10 hours a week so that I can shop for groceries and go to the pharmacy. We just live from pay day to pay day. I need some more help so that I can at least get an afternoon off to go spend at the beach or just go on a recreational outing. In addition, because of the recurring nosocomial infections, he is in hospital approximately 75% of the time and at home the remainder of this time. When he is in hospital, I have to constantly guard him because long-term acute care facilities are not able to properly handle spinal cord injury patients and when I am not there he is injured from not being turned properly, medication mistakes, and neglect. Therefore, I have to do the hospital thing and then take care of our apartment, too. I am completely run ragged with no end in sight. To compound things, Scott has chronic pain that cannot be treated with medications effectively so I basically get to sit with him and we suffer together as his body is on fire, all over, from uncontrollable pain. It is a living hell and I just don't know what to do anymore. It feels like we are all alone, suffering, and nobody even cares. Now we are financially and mentally broke and just wondering how much more we can take. I know we are not alone in this. I am sure there are scores of folks in our same position. What can I do? Can someone please help me understand that we are not alone? Any hope? Now we are having to face a change because when he is discharged from the hospital in a few weeks, then I am already burned out and at home taking care of him by myself again with hardly any energy left to do so or even the will to live myself. I am so distraught but I am not going to give up. I welcome any input, positive or negative that anyone may choose to contribute. Thanks for listening.