• COMMUNITY
  • |
  • MY STUFF
  • |
  • DISCUSSIONS
  • |
  • CHAPTERS
  • |
  • GROUPS
  • |
  • PHOTOS
  • |
  • INVITE
  • |
  • EVENTS
  • |
  • FIND OTHERS
    Discussions

    Search Discussion
    Categories
    There are no topic categories.
    Most Recent Posts
    Kerry says:
    It makes me so mad to see a car with a handicapped tag parked in a handicapped van space, bc then there are no van spaces available to let down our ra...

    Kerry says:
    My brother, who has quadriplegia, constantly has major UTI's that scare me. I am not used to seeing urine looking like Chinese egg drop soup! Yesterda...

    Caregivers, the men and women who care for family members and loved ones, play a vital role in the lives of people with paralysis. Share the challenges and the joys, or just sound off.  
    View All TopicsSubscribePost a Topic
    1 Posts
    Bedsores, I have the answer:)
    By Tammy   
    My son is quadriplegic, C4/5 and L/11 bullets still remain, it has been 5 years, he is bedbound for most of the time, due to many different situations surrounding his injuries, he has never had a bed sore, he lays sometimes 8 to 10 hrs NOT KIDDING at a time with nothing more than a light pink spot that blanches, we through Invacare have a pressure pump mattress which is the miracle mattress and I know there are others out there, I have seen the ones at the hospitals don't compare, all who are bedbound and deal with any kind of sores have to have this particular one, I have been given alot of credit from docs for his skin not breaking down, but I cannot take any of the credit, we have had his mattress get shut off accidentally and also it has gotten leaks or our electric has gone out and I have watched his skin break down within a few hours, at those times he came close to having a sore, but a new one comes or electric comes back on I literally watch his skin heal back to normal within hours, not days hours,  it has blown my mind and after myself experiencing what a true pressure sore is because before my sons shooting I cared for his dad who had terminal lung cancer and could not laydown for weeks before his death and caring for a pressure sore on his tail bone because he could not get off of it for relief, I was horrified by it and felt so helpless and that sore just added to his pain, I wish I knew then what I know now, I would have had this pressure mattress for him it would have helped relieve at least one pain he was dealing with, I have been trying to let people know I have even called Invacare myself because I am just a average person dealing with a tradgedy the best I can I just can't sit back with this info when I know so many people regardless whether SCI or other reasons people are bed bound. I know there are pressure pads out there but this one is a have to HAVE, I drag it to the hospital, i have seen theirs doesn't compare to his, If you know anyone with anykind of bedsores, you will watch them heal within no time with this pressure mattress it will blow your mind:)  insurance should cover it buying it is around 450 dollars my son will never be without it, help me spread the word if I help just one person its worth it to me  Thank you to anyone who will listen:)
    ReplyRemoveEditUnsubscribeSubscribe

    Visit toni's profile
    6 Posts
    toni  says:
    my son has one too(same mattress)...he has never had a bedsore either but we change his position a lot,too
    Posted:   
    ReplyDirect LinkRemoveEdit

    Visit kim's profile
    1 Posts
    kim  says:
    My brother has been in the hospital since sept.2012 has has a bedsore a size of a dinner plate..they are using a wound vac its helping, but has a long road ahead of him. Hopefully will make it home...PLEASE give me the info needed for this we are desparate for any help to not get any more bedsores. My e-mail is ksj1965@insightbb.com...thanks for your help. Kim
    Posted:   
    ReplyDirect LinkRemoveEdit

    Visit Rebecca's profile
    1 Posts
    Rebecca  says:
    Yeah that's awesome but if you find one starting out try this I did and worked wonderfully http://youtu.be/VDqfdVMgcjQ
    Posted:   
    ReplyDirect LinkRemoveEdit