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    <title>Care Issues</title>
    <link>http://www.spinalcordinjury-paralysis.org/discussions/care-issues</link>
    <description><![CDATA[The nitty-gritty of taking good care and staying healthy.]]></description>
    <language>en-us</language>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2013/04/12/self-cathing</guid>
      <title>Self Cathing</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2013/04/12/self-cathing</link>
      <description><![CDATA[My husband is a c6 incomplete since August 2011. He self caths about 6 times a day. Lately he has been having a hard time inserting the tube. He currently is using a straight tip cath. Is anyone else having this problem? Better yet, anyone have a solution?]]></description>
      <pubDate>Sat, 13 Apr 2013 01:36:18 GMT</pubDate>
      <dc:creator>JayBird</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2013/04/04/defective-medtronic-morphine-pump</guid>
      <title>Defective Medtronic morphine pump</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2013/04/04/defective-medtronic-morphine-pump</link>
      <description><![CDATA[I have a defective Medtronic morphine pump. I would like to hear from others who have had this same problem. I am attempting a settement directly with Medtronic. I still have the morphine pump which was sealed when it was taken from my body. Medtronic used questionable tactics to try to get the defective morphine pump.]]></description>
      <pubDate>Thu, 04 Apr 2013 19:54:31 GMT</pubDate>
      <dc:creator>Arlene</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2013/03/16/baclofen-pump-and-meds-update-2</guid>
      <title>Baclofen pump and meds update 2</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2013/03/16/baclofen-pump-and-meds-update-2</link>
      <description><![CDATA[Since my last post,. Pain meds have been removed from the pump along with the removal of pain patch and one anti depressant. Happy to say nothing changed for the worse and back to normal mental state. So glad the decision was made to back off the extreme pain control. Easing in with pain meds with more control of dosages I feel is a&nbsp; good idea.<br />
On a more convincing note: 1 week after pain meds were removed my family member felt good enough to travel 2500 miles to Mexico beach, get out of his long sleeve shirt and pants, and get into the ocean after freezing for 3 years. Miracles do happen. If I hadn&#39;t seen the pictures of him in the beach chair they offered I wouldn&#39;t have believed it myself.<br />
This chair floats and when the water reached high enough he just slid out of it, into his wife&#39;s arms. It was so inspiring. The courage and determination he has, makes me (his sister) very proud.<br />
Now, for a note on safety: The next morning, coming out from the <u>non</u> handicap rented motel room, (only one available) he started out over the open door threshold and his electric chair jolted him right out of it onto the concrete walkway, fracturing his hip and many areas of the leg. He didn&#39;t think to strap himself in his chair. That was really a heart breaker, but he is fine now 1 month into recovery, and ready to go back. Safety is always first and far most. Use the straps friends. Better safe than sorry.<br />
Take care,<br />
aan&nbsp;<br />
]]></description>
      <pubDate>Sat, 16 Mar 2013 04:37:50 GMT</pubDate>
      <dc:creator>aan1096</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2013/03/14/scales</guid>
      <title>Scales</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2013/03/14/scales</link>
      <description><![CDATA[I am a C3/C4 quad so it is not easy for me to weigh myself.&nbsp; The only solution we have found previously was to find a scenario whereby you had a scale that could weigh both you and the chair, then separately&nbsp;weigh the chair so you could deduct the difference.&nbsp; We have only seen this in a hospital &ndash; which is a place I try to avoid.&nbsp; I have seen scales that could attach to a Hoyer lift, but they are ridiculously expensive.&nbsp; Has anybody seen or heard of a device that someone in my situation could use that is also cost-effective?]]></description>
      <pubDate>Thu, 14 Mar 2013 15:47:06 GMT</pubDate>
      <dc:creator>JoeG</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2013/03/09/bed-baths</guid>
      <title>Bed baths</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2013/03/09/bed-baths</link>
      <description><![CDATA[I hate getting bed baths, I wanna take a shower :((( I feel real jealous, my brother & mother can get in the shower, but I can't. . It sucks & I have to wait until we move again -_- I'm so pissed .]]></description>
      <pubDate>Sat, 09 Mar 2013 17:21:56 GMT</pubDate>
      <dc:creator>Helen6fb5c</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2013/01/31/spinal-cord-tethering</guid>
      <title>Spinal cord tethering</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2013/01/31/spinal-cord-tethering</link>
      <description><![CDATA[Has anyone had untethering surgery on their spinal cord? If so, what was recovery like?]]></description>
      <pubDate>Thu, 31 Jan 2013 06:42:48 GMT</pubDate>
      <dc:creator>Wheelchair Mama</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2013/01/23/loosing-weight-</guid>
      <title>loosing weight !!!</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2013/01/23/loosing-weight-</link>
      <description><![CDATA[hi :-) 
my name is asif sayani !!! m from India (Bangalore)
m a C5/C6 quadriplegic and its been 4 years to my accident... Since my accident i've put on a lot of weight and have become really obese. I was about 65 kilos 4 years back, lost about 10 more kilos while I was in the hospital and during the first 6 months of my accident... Now m around 85 kilos... I keep asking my doctors and physiotherapist as to how I can loose weight but the only answer I get is 'ur on bed and so its difficult loosing weight, u need to worry about not putting on more weight n try and maintain this. Being an Indian I love spicy oily and unhealthy food... :-). 
n yes I can't do with non veg food !!!
frankly food and eating makes me very happy :-) :-) :-) 
m on bed most of the time... wen I sit on a wheel chair its not for more than 3 hours... 
I want to loose weight :-) :-) 

n stay happy as well ;) 
help :-) :-) :-) 


P.S. I don't understand this calorie intake system
1400 a day, 1800 blah blah
I went on a soup n brown bread diet wic somebody had suggested for 45 days where I ate jus tat ... Dint help... Must have lost one kilo I think...
Ate jus peaches for 3 days... Din't help ;((
]]></description>
      <pubDate>Wed, 23 Jan 2013 10:56:47 GMT</pubDate>
      <dc:creator>Asif</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2013/01/20/baclofen-pump-and-meds-update</guid>
      <title>Baclofen pump and meds update</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2013/01/20/baclofen-pump-and-meds-update</link>
      <description><![CDATA[Since my last post looking for pros and cons to pain meds added to the Baclofen pump, I thought I would share the experience through a family members point of view. I am not totally against the idea of Bacolfen being administered in the pump since I&#39;ve seen a positive outcome in controlling spasms without taking pills; although, since there has been morphine added to control pain I am not convinced the pump is the common since way to handle all issues. Aside from the severe confusion, the inability to stay awake and still not completely sure what other negative reactions going on may be the cause from this I have learned a few things about the pump in general. When two meds are added to the pump and one med needs to be increased or decreased the other med also increases or decreases with no option. We are being told by the pain doctor. This has caused major confusion finding the right mix in the correct dosages. Not to mention the mental confusion of my family member. When Baclofen was raised to control spasms, morphine got raised as well and had to be decreased, as well as the Baclofen which brought back spasms. Final result was to have to go and have Morphine withdrew, only to have Fentenyl put in to save time and effort of applying pain patches once a week. Really?<br />
Now its a matter of actual physical withdrawal from morphine and withdrawing the Fentenyl . The pain doctors present observation is hmmmm. Like, what can we try now? I might not be a medical doctor but common sense tells me that when it comes to the Baclofen pump, stick with one med and gradually up the pill dosage or decrease if needed for other ailments. This is a gradual approach and can be slowly adjusted and sometimes stopped&nbsp; immedietly if needed. It takes the usual waiting time for appointments to get these meds removed. Too long to suffer from the outcomes. It&#39;s been a roller coaster ride and I hope everyone will discuss these issues with their doctors before deciding on pain meds in the pump.<br />
Take care,<br />
aan]]></description>
      <pubDate>Sun, 20 Jan 2013 07:32:39 GMT</pubDate>
      <dc:creator>aan1096</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2013/01/03/reoccurring-fungus</guid>
      <title>Fungus, reoccurring problems-difficult to get rid of</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2013/01/03/reoccurring-fungus</link>
      <description><![CDATA[I would like to know what others have done to treat areas like the crotch, toenails, between toes that may have reoccurring fungus that it&#39;s difficult to get rid of.<br />
<br />
Especially any treatments, or ointments that are natural.]]></description>
      <pubDate>Thu, 03 Jan 2013 06:12:35 GMT</pubDate>
      <dc:creator>Michael</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/12/01/hi</guid>
      <title>hi</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/12/01/hi</link>
      <description><![CDATA[Hello&nbsp;What is most important is the care]]></description>
      <pubDate>Sun, 02 Dec 2012 00:02:09 GMT</pubDate>
      <dc:creator>Beatriz</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/11/03/t3s-can-you-feel-sick-to-your-stomach</guid>
      <title>T3's Can you feel sick to your stomach?</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/11/03/t3s-can-you-feel-sick-to-your-stomach</link>
      <description><![CDATA[My two year old daughter has no spinal cord below T2/T3 and had her first bout of stomach flu (or something) overnight. She handled it well, sleeping between being sick, and is very happy this afternoon. We haven&#39;t given her anything to eat and very little to drink. I am not sure what she can feel as far as feeling sick goes. I don&#39;t think she can tell when her bladder is full, any thoughts on her stomach?]]></description>
      <pubDate>Sat, 03 Nov 2012 18:29:41 GMT</pubDate>
      <dc:creator>Susan</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/10/16/what-should-i-do</guid>
      <title>what should I do?</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/10/16/what-should-i-do</link>
      <description><![CDATA[I am a C4 complete. I have been injured for about two years now. It had been two years since the surgery. My neck keeps going to the left and always super tight. My right shoulder/SCM has always been painful with spasm. My first &nbsp;front ribs are always tight and painful.<br />
<br />
I have tried pain management: Botox injection, chiropractor, acupuncture, etc. and still having the same problems.<br />
<br />
Does anyone having the same problem like I do? What should I do now? Thank you so much in advance for your help. Kinsley]]></description>
      <pubDate>Tue, 16 Oct 2012 20:34:26 GMT</pubDate>
      <dc:creator>Kinsley</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/10/10/still-time-to-take-my-survey-3-chances-to-win-100</guid>
      <title>Still time to take my survey! 3 chances to win $100!</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/10/10/still-time-to-take-my-survey-3-chances-to-win-100</link>
      <description><![CDATA[I posted this (bleow) under &quot;life&quot; recently. &nbsp;I have had a great turn out but still need some more participants. &nbsp;61 have taken the survey but I need to get to 100 so please help.<br />
<br />
Hello,<br />
<br />
My name is Zack Morris and I am a trying to complete my senior project for pharmacy school. I am a T2 paraplegic and wanted to develop my project on something that would benefit others in my current situation. I am surveying individuals with a spinal cord injury to assess their knowledge on management of urinary tract infections including risk factors, signs and symptoms, prevention and treatment. Below is the link for you to access the online survey that should take less than 15 minutes to complete. Your participation is greatly appreciated and you will have three chances to receive a $100 gift card for you participation! I need to survey at least 100 people to provide an accurate project so please spread the word. Thank you for your help!<br />
<a href="http:// http://kwiksurveys.com/s.asp?sid=eqjm175tite4vao17201">http:// http://kwiksurveys.com/s.asp?sid=eqjm175tite4vao17201</a><br />
]]></description>
      <pubDate>Thu, 11 Oct 2012 01:19:59 GMT</pubDate>
      <dc:creator>Zachary</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/09/14/extreme-gastric-problem</guid>
      <title>Extreme Gastric Problem</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/09/14/extreme-gastric-problem</link>
      <description><![CDATA[I wonder if anyone has this same problem.&nbsp; I am a c4-c7 incomplete, 2 yrs post injury.&nbsp; I am having extreme gastric problems.&nbsp; When I am moving things fine, I am fairly mobile, I can walk a few steps with crutches, my hands work well enough to work on the computer, my clothes fit well.&nbsp; Then all of a sudden, my hands begin to swell and I know I am about to have intestinal problems.&nbsp; Then my legs begin to swell and finally, my stomach bloats out hugely and I cannot have a bowel movement or pass gas.&nbsp; It just keeps getting worse from there.&nbsp;This basically immobilizes me as I cannot even stand much less walk!&nbsp; I constantly feel like I need to pass gas but cannot.&nbsp; I have to use strong suppositories and laxatives for days to get things moving again.&nbsp; Why does my bloating make it impossible for me to walk and use my hands ?&nbsp; How can I prevent this from happening?]]></description>
      <pubDate>Fri, 14 Sep 2012 15:19:41 GMT</pubDate>
      <dc:creator>Debra</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/09/07/baclofen-pump</guid>
      <title>Baclofen pump</title>
      <link>http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/09/07/baclofen-pump</link>
      <description><![CDATA[Has anyone used pain meds in the baclofen pump? Pros and Cons greatly appreciated.<br />
aan]]></description>
      <pubDate>Fri, 07 Sep 2012 04:25:17 GMT</pubDate>
      <dc:creator>aan1096</dc:creator>
    </item>
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