http://www.spinalcordinjury-paralysis.org/discussions/care-issues en-us http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/04/23/1-thing-i-wish-someone-told-me http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/04/23/1-thing-i-wish-someone-told-me
When you drive, use a low-profile ROHO seat cushion. This will help absorb the bumps in the road and protect your butt. Even if your shower chair is padded, for those who are paralyzed and others, this is not enough padding. Don't kid yourself and put down a low-high profile ROHO.

The three best cushions for your chair I have found in my years of experience (I've been through many many cushions) are the following:

1. ROHO - good for active people in chairs
2. Easy Ride - custom to fit your butt to completely get the pressure off
3. Aquila - has a motor that moves air about to relieve pressure from sitting.

Take care of yourselves fellow wheelchair users! I wish someone told me these two important life adjustments to prevent skin-breakdowns, so I would like to pass on this wisdom to you. ]]> Mon, 23 Apr 2012 22:00:38 GMT Wheelchair Traveler http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/04/22/body-temperature-issues http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/04/22/body-temperature-issues
My son has an incomplete sci. We're dealing with a divorce, and my son's father isn't educated on sci. I need information for the lawyer/judge to help set safe conditions for visitation.

Thanks.]]> Mon, 23 Apr 2012 00:10:24 GMT Dash http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/04/05/mobility http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/04/05/mobility http://www.wimp.com/newdevice/

Please check out this website. I found it encouraging and facinating. Tell me what you think. I think it's awesome.]]> Fri, 06 Apr 2012 02:55:00 GMT annette http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/03/27/suprapubic-vs-urostomy http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/03/27/suprapubic-vs-urostomy
Cydnight  ]]> Tue, 27 Mar 2012 22:38:08 GMT cyd http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/03/26/bowel-and-bladder-care http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/03/26/bowel-and-bladder-care Mon, 26 Mar 2012 20:46:40 GMT vani http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/03/21/outpatient-rehab http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/03/21/outpatient-rehab Thu, 22 Mar 2012 03:38:07 GMT Jay http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/03/21/pressure-relief-false-alarms http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/03/21/pressure-relief-false-alarms
So now I'm 17 years into the rig as a t-12 para.  I've done multiple century rides on a bike, have driven cross country a dozen times, have spent YEARS in my chair sitting in front of a computer for work, have spent entire days in a plane (6 trips to Europe and 2 to India) and have NEVER gotten a pressure sore on my arse. If you live a normally active life;  transfer a dozen times a day and check yourself after strenuous activity you're just fine. If you sit and mope you will get pressure sores ( high level quads excluded, of course...). 

There are plenty of real problems out there that need to be addressed, but this one just takes common sense. Move around - use a cushion. nuff said. No need to freak out the newbies about a problem that doesn't exist. ]]> Wed, 21 Mar 2012 07:51:41 GMT Jama http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/03/09/baclofen-pump-leg-pain-questions http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/03/09/baclofen-pump-leg-pain-questions Sat, 10 Mar 2012 03:10:37 GMT Todd http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/03/09/shower-commode-chairs---need-new-one-for-new-roll- http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/03/09/shower-commode-chairs---need-new-one-for-new-roll- http://www.allegromedical.com/bathroom-assists-c517/advanced-folding-shower-commode-chair-p561141.html.  WHen his shower is finished and we have a new chair, it will be the first time in a year that he's had a SHOWER !!  WOO HOOO!!!! (don't think that he hasn't been bathed in all this time though! :) )

Would love to hear thoughts and any shower chairs and anyother thoughts / best practices for shower / self care you all may have.

]]> Fri, 09 Mar 2012 20:33:45 GMT SMG http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/03/06/gadgets-cell-phones http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/03/06/gadgets-cell-phones
]]> Tue, 06 Mar 2012 20:37:37 GMT Cindy http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/01/19/utis-that-wont-stop http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/01/19/utis-that-wont-stop syndrom. My URO said that I would be a good case for a bladder augmentation
surgery.
Anyone out there have any advice?
Any advice would be very helpful.
Thanks,
Gene]]> Thu, 19 Jan 2012 17:45:22 GMT gene701@msn.com http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/01/11/recurrent-uti-in-spinal-cord-injury------help-need http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/01/11/recurrent-uti-in-spinal-cord-injury------help-need
Please can anyone suggest how they are managing their UTI'S]]> Thu, 12 Jan 2012 04:38:51 GMT khawaja http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/01/02/baclofen-pump http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2012/01/02/baclofen-pump Tue, 03 Jan 2012 04:43:48 GMT Gloria http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2011/12/06/how-about-healing-the-body-when-one-is-allergic-to http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2011/12/06/how-about-healing-the-body-when-one-is-allergic-to Tue, 06 Dec 2011 21:42:29 GMT An http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2011/11/22/bladder-care http://www.spinalcordinjury-paralysis.org/discussions/care-issues/2011/11/22/bladder-care
Please let me know your thoughts.]]> Tue, 22 Nov 2011 12:27:14 GMT Krs