This is where the staff of the Reeve Foundation is sharing up-to-the-minute information and putting some context around the news affecting the spinal cord injury and paralysis community. Not to mention insight into what's going on here at the Foundation.
Feel free to comment and offer suggestions. We'll respond.
Category: Quality of Life Category
Posted by
GerthroFriday, January 06, 2012
Posted by
JLoMonday, December 12, 2011
These are some of my favorite emails we receive. Friend of the Foundation, Tom Hernon recently wrote me a note about a Quality of Life Grant his organization (Muskegon Sports Council) received two years back and how they have used it.Read More
Posted by
JLoMonday, November 28, 2011
Here is a new product from a previous
Quality of Life Grants recipient, Mind Body Solutions, that is sure to be a great gift this holiday season.
Beyond Disability, A Yoga Practice with Matthew Sanford illustrates the wisdom of Matthew Sanford's teaching in this full-length seated yoga practice for people of all abilities. Read More
Posted by
JLoMonday, November 21, 2011
Posted by
JLoMonday, November 21, 2011
This comes to us from out friends at Northwest Regional Spinal Cord Injury System:
The SCI Forum presentation “Everyday Nutrition for Individuals with Spinal Cord Injury,” which took place on April 12, 2011 at the University of Washington Medical Center, is now available for viewing on our website. Read More
Posted by
JLoFriday, November 18, 2011
This story coming out of Georgia is one of those that warms your heart, it did mine. A newlywed couple, Jaimie Reda, a producer and Jimmy Moore a photojournalist, had their lives ready to be lived. But all that changed when Jimmy was in a car accident on August 8; Jimmy is now living with paralysis from the neck down. Read More
Posted by
JLoThursday, November 17, 2011
Posted by
JLoThursday, November 17, 2011
A story just released in The New York Times reveals that Oregon has been the first state in the U.S. to allow those living with disabilities to cast their votes via iPads, intending for use again in January for another election. Read More
Posted by
JLoMonday, October 17, 2011
Join the New England Regional Spinal Cord Injury Center on Saturday, November 12 from 10am - 4pm (EST) for a FREE webcast and live chat. Read More
Posted by
JLoWednesday, October 12, 2011
Categories:
Contests,
Events and Workshops,
Community,
Chapter News,
Advocacy,
Campaign to Cure Paralysis,
General,
Library,
Life Rolls On,
Military,
Multicultural Outreach,
Quality of Life,
Research,
Resource Center,
Success Stories,
Team Reeve
Posted by
JLoWednesday, September 28, 2011
Melanie Winkler D'Andrea is a caregiver who's memoir, One Door at a Time, reveals the struggles, reality, and hardships of being the caregiver to her husband, Dan, who is living with paralysis from a construction accident. Read More
Posted by
JLoWednesday, September 28, 2011
A Quality of Life Grant has helped Penn State create an "Ability Athletics" program empowering those living with physical disabilities. Read More
Posted by
JLoFriday, September 23, 2011
It is not always easy to express the amount of respect, joy, love, or admiration you have for someone...especially someone you have never met, never will meet.
With this, I speak of Christopher Reeve. This Saturday, September 25, would have been his 59th birthday. I, as well as I hope many of you, will celebrate this day, not mourn it. Even after Christopher (and Dana) are no longer with us physically, there is no doubt they are here in other ways.
They are everywhere... How we can look at the impact of Christopher in the paralysis field, and not be moved is simply impossible.
So even though I am writing this birthday wish in honor of Christopher as someone who never knew him, I encourage you to read this letter from his oldest son, Matthew, someone who knew him quite well. Here's part of the letter:
Rather than allowing his injury to define him, my father redefined what was possible for people living with spinal cord injuries. And, with the generous help of caring friends like you, he energized an international search for treatments and cures for paralysis -- a search that, with your help, led to this remarkable breakthrough.
We are now closer than ever to realizing my father's dream of regained movement, recovered function, and new steps for individuals living with spinal cord injuries. And though he is not here to continue the journey with us, you and I keep his memory alive by carrying on the work he began. (Picture credit above: Ken Regan; Matthew, Christopher, and Alexandra 1996)
Read all of Matthew's letter here.
Happy Birthday Christopher. May we all celebrate your legacy!
Janelle
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Categories:
Chapter News,
Advocacy,
Community,
Campaign to Cure Paralysis,
Contests,
Events and Workshops,
General,
Library,
Life Rolls On,
Military,
Multicultural Outreach,
Quality of Life,
Research,
Resource Center,
Success Stories,
Team Reeve
Posted by
JLoThursday, September 22, 2011
I look up the definition of "power" and all the definitions I am finding don't really express the power of our Social Mediathon this past Tuesday. The theme of the first ever Reeve Foundation Social Mediathon was "The Power of We;" all of us coming together to empower the paralysis community to raise funds for our mission of "Today's Care. Tomorrow's Cure.
We raised over $4,000 and counting. But more than this tangible amount was the intangible evidence of everyone who supported us. This, to me, is "power."
So I thank everyone on behalf of the nearly 5.6 million Americans living with paralysis for their support, compassion, and selflessness to spread the message. (8-year-old Chase Ford, pictured, is walking again thanks to the Reeve Foundation's NeuroRecovery Network.)
My favorite quotation that we used in many of our posts was from Dana Reeve, "Giving back is the rent you pay for being on the planet." It is so simple, yet, well, powerful. While we are all on our Facebook and Twitter accounts several times daily, we gave back during the Social Mediathon to disperse our message into cyberspace, to donate, to support our work.
So one more time, I will say, thank you, because each and every one of you is ultimately THE POWER OF WE. YOU are part of this movement.
Janelle
PS: There's still time to donate. We are asking to donate $1 for every year you have been fortunate enough to walk. Whether it was $5 or $500, you are helping us to carry on Christopher and Dana's legacy.
Join our community.
Categories:
Chapter News,
Advocacy,
Community,
Campaign to Cure Paralysis,
Contests,
Events and Workshops,
General,
Library,
Life Rolls On,
Military,
Multicultural Outreach,
Quality of Life,
Research,
Success Stories,
Team Reeve,
Resource Center
Posted by
JLoThursday, September 22, 2011
Dr. Dan Gottlieb (pictured at right in the Reeve Foundation offices last summer) is the resident psychologist here in the online community. He recently contributed to The Huffington Post about what it means to have compassion for your body. Here's a snippet from his piece:
In that moment I woke up to the love in my life and I saw everything in perspective. I was again reminded that love is a treasure and that arms are arms. The paralysis remained, as did the burning pain, but the suffering was diminished. At least for that moment!
All pain demands attention. And paying attention to pain saves lives. For most of us humans, when we feel any kind of pain, we begin to tell ourselves stories about what the pain means, how it happened, and who's to blame. As we speculate about what this means for our future lives, and so on, our stories become more detailed and elaborate until we have constructed grand works of fiction that we believe to be true. That's exactly what happened to me. The feelings of all-embracing love had been my grand awakening. But after that, it was as if I went right back to sleep, telling myself that the paralysis would never heal and that I would be in anguish for the rest of my life. (Of course my stories got even more elaborate, but no need to share them here; I am sure you all know what I mean.)
Read the rest.
Join in Dr. Dan's discussions.
Janelle
Join our community.
