This is where the staff of the Reeve Foundation is sharing up-to-the-minute information and putting some context around the news affecting the spinal cord injury and paralysis community. Not to mention insight into what's going on here at the Foundation.
Feel free to comment and offer suggestions. We'll respond.
Category: NeuroRecovery Network Category
Happy May everyone! This is the time of year when the weather turns warm, prom season begins, and graduation isn't too far off. For one high school senior who attended prom via Skype, he is working hard in rehab at the Reeve Foundation's NeuroRecovery Network, Frazier Rehab Institute, after a spinal cord injury on April 2, so he can attend graduation later this month. Here's the story: Read More
As we are all looking for ways to live easier in the digital age, I just had to share this. This comes from our friends at the Shepherd Center, a Reeve Foundation NeuroRecovery Network Center.
Shepherd Center Shares new Personal Care Manual for People with Spinal Cord Injury as a Free iBook on iTunes
A comprehensive guide covering personal care issues for people with spinal cord injury is now available free of charge on iTunes (search: Shepherd Center).Read More
This from our friends at the NeuroRecovery Training Institute
Have you been thinking about elevating your neurologic physical therapy clinical expertise? If the answer is yes, now is the time to act! Read More
Frazier Rehab Institute, part of KentuckyOne Health, recently announced their plans to join the NeuroRecovery Training Institute (NeuroRTI)
as a training center for licensed physical therapists interested in pursuing neurologic physical therapy certifications. The NeuroRTI is an equal partnership between NeuroRecovery Ed, Evidence In Motion, and Phoebe Wood (former Vice Chairman and CFO, Brown-Forman). While the NeuroRecovery Training Institute will have additional training centers or network partners across the country, Frazier Rehab Institute will be the group’s exclusive partner in Kentucky.Read More
Our friends over at Magee Rehab Hospital in Philadelphia, PA put out a wonderful publication (pictured here) called "Can Do!"
A recent edition talks about the work they are doing with the "Ekso
" -- one of those exoskeleton suits you wear that allows you to walk. They also have a nice piece about the Reeve Foundation's NeuroRecovery Network
Have a look. It's a pretty cool delivery system for the magazine too.
[A quick note before you continue reading... I wrote the following blog on Thursday, just one day before the tragedy in Newtown, CT struck involving the loss of 20 children. The following blog is about the goodness and unselfishness of children. My hope is after reading it, each person will remember the innocence of children and make your day a little brighter after last week's events were so heartbreaking.] Read More
Nice video interview with a woman who was implanted with a stimulator from Case Western Reserve University developed by Hunter Peckham, Ph.D., Donnell Institute Professor; Director, Functional Electrical Stimulation Center.Read More
Intensive, activity-based rehabilitation therapy can lead to significant functional improvements in patients with spinal cord injuries. New research, based on studies from the Christopher & Dana Reeve Foundation NeuroRecovery Network (NRN)
, shows that recovery of walking and balance can occur even years after injury in people with incomplete spinal cord injury who participate in locomotor training
. Read More
For the first time, new research demonstrates that innovative rehabilitative treatments for individuals with spinal cord injuries can lead to significant functional improvements in patients and a higher quality of life.Read More
Put yourself in their shoes. That's exactly what Janne Kouri and NextStep Fitness (a Reeve Foundation Community Fitness and Wellness Facility) are doing.
This number may surprise some, but there are 6 million people living with paralysis in the United States. This is the population of L.A., Washington D.C and Philadelphia combined.
So to understand what it's really like, NextStep's 'Wheelchair for a Day' Campaign is asking able-bodied people to spend one day in wheelchair and then use social media to tell others about their day.Read More
I just read the book Leadership Secrets of Attila the Hun
for my graduate classes. This book tells some obvious aspects of leadership but it also keenly narrows in on what everyone should follow. As we near the middle to the end of NRN Month
here at the Reeve Foundation, I recognize that in their own rights, our NRN patients are truly leaders.
Some comparisons of Attila to the hundreds of patients:
- Committed: Just as Attila was, they posses such courage and strong commitment to their well-being, to get better, to drive their own potential. They are so resilient in their passion to succeed. Father of four, Mike DePetris, is a NRN participant at Magee Rehab in Philadelphia. He is commited to working hard so he can get back to enjoying activities with his family.Read More
Here a remarkable story of determination, tenacity, and love from ABC News about Janne Kouri, of NextStep Fitness, a Reeve Foundation Community Fitness and Wellness Facility
"There were many times he came to me and said, 'You know, you don't need to do this. You don't need to be here,'" Susan said. "I promised him that as long as his heart and his mind stayed the same that I would love him."
That love would change everything, giving Kouri the determination to move forward with his life. As his health returned, the reality of his paralysis was grim and treatment options were bleak.
Finally, the couple found their ray of hope. In their research and after months of Susan traveling around the country visiting rehab centers, they discovered Dr. Susan Harkema at the Frazier Rehabilitation Institute in Louisville, Ky.
Harkema helped develop a cutting-edge therapy known as "loco-motor training," which teaches the spinal cord how to control motor functions like walking, through repetitive motion. The late actor Christopher Reeve was among her first test subjects to utilize the training; the therapy has now helped hundreds of spinal cord injury victims.
"Dr. Harkema was the one person that told us, 'There is hope for recovery,'" Kouri said.
Read the rest and watch the video of Janne's journey.
Learn more about NextStep Fitness.