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Have you seen this JLO?http://www.youtube.com/watch?v=7n_ayBg2AMIThey talk about making the impossible possible, going t...
by Paolo on Wednesday, Febuary 01, 2012
we are an advocacy group who will be addressing wheelchair users in Philly in 2 weeks. We would love to get in touch wit...
by Steven on Tuesday, January 31, 2012
If we keep celebrating life with SCI a cure will never happen. The messagge should focus on curing SCI, not on "celebrat...
by Paolo on Thursday, January 26, 2012
I say cr org needs to be living upto cr's goals and they become all about feely good ####, not the stuff chris wanted. D...
by ROBERT on Saturday, January 14, 2012
What is this org all about if they have deaf ears. who is sam maddox, who appointed him?
by ROBERT on Saturday, January 14, 2012
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This is where the staff of the Reeve Foundation is sharing up-to-the-minute information and putting some context around the news affecting the spinal cord injury and paralysis community. Not to mention insight into what's going on here at the Foundation. Feel free to comment and offer suggestions. We'll respond.
Category: Life Rolls On Category
JLo
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Posted by JLo
Thursday, December 08, 2011
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You may know Zach, as you guys helped him win the Oprah contest to host his own show. It's hitting the air waves Monday! He sent us this note about it!Read More
Categories:  Life Rolls On
JLo
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Posted by JLo
Wednesday, October 12, 2011
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We are proud to announce Christopher Reeve has been anounced as a finalist for the 2012 New Jersey Hall of Fame. Please help us honor him and VOTE! Read More
JLo
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Posted by JLo
Wednesday, October 12, 2011
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We would like to congratulate Life Rolls On ambassador Patrick Ivison for being named to San Diego County's list of 30 Under 30. Read More
Categories:  Life Rolls On
JLo
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Posted by JLo
Monday, October 03, 2011
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Over the weekend I went down to the Jersey Shore (no, not the one that's on TV) and though I had a fun time on the beach, I'm pretty sure some people over in Wrightsville Beach, North Carolina had an even better time! Read More
JLo
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Posted by JLo
Friday, September 23, 2011
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It is not always easy to express the amount of respect, joy, love, or admiration you have for someone...especially someone you have never met, never will meet.

With this, I speak of Christopher Reeve. This Saturday, September 25, would have been his 59th birthday. I, as well as I hope many of you, will celebrate this day, not mourn it. Even after Christopher (and Dana) are no longer with us physically, there is no doubt they are here in other ways.

They are everywhere... How we can look at the impact of Christopher in the paralysis field, and not be moved is simply impossible.

So even though I am writing this birthday wish in honor of Christopher as someone who never knew him, I encourage you to read this letter from his oldest son, Matthew, someone who knew him quite well. Here's part of the letter:

Rather than allowing his injury to define him, my father redefined what was possible for people living with spinal cord injuries. And, with the generous help of caring friends like you, he energized an international search for treatments and cures for paralysis -- a search that, with your help, led to this remarkable breakthrough.

We are now closer than ever to realizing my father's dream of regained movement, recovered function, and new steps for individuals living with spinal cord injuries. And though he is not here to continue the journey with us, you and I keep his memory alive by carrying on the work he began. (Picture credit above: Ken Regan; Matthew, Christopher, and Alexandra 1996)


Read all of Matthew's letter here
.

Happy Birthday Christopher. May we all celebrate your legacy!

Janelle

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JLo
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Posted by JLo
Thursday, September 22, 2011
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I look up the definition of "power" and all the definitions I am finding don't really express the power of our Social Mediathon this past Tuesday. The theme of the first ever Reeve Foundation Social Mediathon was "The Power of We;" all of us coming together to empower the paralysis community to raise funds for our mission of "Today's Care. Tomorrow's Cure.

We raised over $4,000 and counting. But more than this tangible amount was the intangible evidence of everyone who supported us. This, to me, is "power."

So I thank everyone on behalf of the nearly 5.6 million Americans living with paralysis for their support, compassion, and selflessness to spread the message. (8-year-old Chase Ford, pictured, is walking again thanks to the Reeve Foundation's NeuroRecovery Network.)

My favorite quotation that we used in many of our posts was from Dana Reeve, "Giving back is the rent you pay for being on the planet." It is so simple, yet, well, powerful. While we are all on our Facebook and Twitter accounts several times daily, we gave back during the Social Mediathon to disperse our message into cyberspace, to donate, to support our work.

So one more time, I will say, thank you, because each and every one of you is ultimately THE POWER OF WE. YOU are part of this movement.

Janelle

PS: There's still time to donate. We are asking to donate $1 for every year you have been fortunate enough to walk. Whether it was $5 or $500, you are helping us to carry on Christopher and Dana's legacy.



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JLo
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Posted by JLo
Thursday, September 22, 2011
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Dust off your golf clubs, pick out your favorite polo shirt, and head down to Cape May, NJ this weekend for the 6th Annual Life Rolls On (LRO) East Coast Charity Golf Tournament on Saturday, September 24 at the Cape May National Golf Club.

The LRO East Coast Charity Golf Tournament will be more exciting than ever with fabulous prizes and tournament surprises to celebrate its 6th annual event! The tournament is one of Life Rolls On's most anticipated fundraisers of the year, as a fun day is had by all -- regardless of your golf score! Golfers are treated to a wonderful day on the course followed by an awards reception on the deck of Harbor View Restaurant. While this entertaining tournament is all about fun, for serious competitors, there are incredible prizes to be won, and of course, bragging rights for winning teams!

Click here for schedule of events and to register.

Watch a video of adaptive golf.

Fore!

Janelle



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JLo
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Posted by JLo
Friday, September 16, 2011
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We are just days away from the Reeve Foundation's first ever social mediathon happening on Tuesday (September 20) beginning at 8am.

That's right, I'll say it again so you can mark your calendars:
REEVE FOUNDATION SOCIAL MEDIATHON
TUESDAY, SEPTEMBER 20
8AM - 11:59 (EST) PM


Here's the plan people. Plain and simple. Via social media (mostly Twitter and Facebook) we are trying to raise awareness and donations for our mission of "Today's Care. Tomorrow's Cure." Sounds easy, right? It is, I promise. So now you're probably wondering, 'Well, that's easy enough, how can I help?' Great question!

1. First, click here: it outlines the social mediathon with all the basics you need to know.
2. Then, click here to donate ($1 for every year you've been walking) and help us kick this off!
3. Finally, be sure to post it on your own Facebook and Twitter pages, email your friends and family, spread the word!

THE POWER OF WE! That is what this is all about. Coming together via the power of cyberspace and the social media world. We are asking to let your fingers do the talking so that those living with paralysis may have the chance to start walking!

Are you in? Let's go!


Janelle

 


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JLo
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Posted by JLo
Tuesday, September 13, 2011
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On September 20, next Tuesday, the Reeve Foundation will be hosting their first ever Social Mediathon. We are letting your fingers do the talking so others may have the chance to start walking!

Via Facebook, Twitter, and all other forms of social media, this 16-hour event will consist of promoting our mission to raise funds for "Today's Care. Tomorrow's Cure." Messages posted and tweeted throughout the day will ask for donations to support the Reeve Foundation's efforts in honor of spinal cord injury awareness month.

The event, ongoing from 8 am to 11:59 pm EST is ultimately, the power of we.

Join us, our ambassadors (like Major League Soccer star Daniel Hernandez pictured at left,) friends (like Team Reeve athlete John Carson pictured at right,) and celebrities (stay tuned to find out who!) as we raise awareness among the social media crowd to the fact that we cannot support the research without donations and motivate social media followers to make a gift to help find cures.

We are asking people to give a dollar for every year that they have been walking.



We hope you'll join us!

Help get us started, donate now!

Janelle

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JLo
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Posted by JLo
Thursday, September 01, 2011
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How would it feel for a wheelchair-bound person to experience the thrill of surfing in the Ocean? Tune in to the premiere of the new television series Everyday Health. Each episode profiles ordinary people who overcome extraordinary obstacles and who are helping others lead healthier, happier lives. Laila Ali, Ethan Zohn and Jenna Morasca will host the weekly program premiering in over 95% of the country's ABC affiliates including ABC owned stations. EverydayHealth.com/TV will provide additional content and supporting materials. The show is brought to you by the leading online health site, Everyday Health, and will air as part of Litton's Weekend Adventure, beginning Saturday, September 3, 2011.

Each week, Everyday Health profiles people who are either facing a health crisis or are close to someone facing a life-altering health event, and they are not wasting time helping others in a similar situation. Each program addresses a medical condition, sometimes includes a celebrity guest, and always provides a surprise reveal for the person profiled.

Hosted by a trio of health ambassadors -- Laila Ali, a world-class, elite athlete; Ethan Zohn, a former professional soccer player and humanitarian; and Jenna Morasca, champion of Survivor: The Amazon -- the premiere episode features Jesse Billauer and his organization Life Rolls On. At age 17, Billauer had his surfing career cut short following a spinal cord injury which left him a quadriplegic — and there are an average of 6,700 new spinal cord injuries among youths annually. Determined to surf again and help others, he founded Life Rolls On. His organization improves the quality of life for young people affected by spinal cord injuries and utilizes action sports as a platform to inspire infinite possibilities despite paralysis. Everyday Health surprises Billauer by hosting an overwhelmingly successful fundraiser, with help from friends including a musical performance by Jason Mraz. Jesse is surprised with an adaptive bicycle, and an adaptive surfboard is also provided by Everyday Health.

For more information, click here.

More on Life Rolls On.



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Categories:  Life Rolls On
C_Fan
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Posted by C_Fan
Tuesday, August 30, 2011
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Starting an internship, for many, can be scary. You never know what kind of journey is in front of you, or even better, what kind of tasks you’ll be performing. I’ve heard horror stories of interns getting placed in closets with office supplies, or others where interns were simply invisible until they were needed.

Three months ago I stepped into the Christopher & Dana Reeve Foundation Short Hills, NJ office (at right) not knowing what to expect. All I knew was that I had the opportunity to intern for the Foundation. Little did I know that this wouldn’t be just an internship, it would be a life changing experience.

I remember my first days as an intern were hectic, exciting, and nerve wracking. I started with two other communications interns right as the announcement about Rob Summers and EpiStim was made. It was thrilling to see the Foundation, which I was now interning for, help people living with paralysis literally take steps forward.

As if the breakthrough wasn’t enough excitement, I had the opportunity to volunteer at Life Rolls On’s flagship program, They Will Surf Again (pictured below). If you didn’t get a chance to read my Daily Dose about it earlier, it was absolutely amazing! Not only did I get a nice tan at the beach, but I got to watch people living with paralysis throw their boundaries away and glide into shore on a surfboard.

Through all this excitement I also worked with Team Reeve and some individuals running the 2011 ING New York City Marathon, 2011 Bank of America Chicago Marathon, and the Escape from Alcatraz Triathlon. I got to listen to each one of their stories, why they were running the marathon, and what their motivation is. I can’t even tell you how inspired I am from each and every one of these dedicated Team Reeve members (maybe I’ll even run next year’s marathon!) Chris Cawley, Molly Ruben, Molly Umble, Matt Bledsoe, Mike Buckley, Kathy Adams, and Deedee McCarty – you are all FABULOUS people with truly touching stories.

Here’s the fun project that I like to call, my child (no really, ask Rob and Janelle, it’s my child), it can also be known as the 2011 Holiday Gift Guide for People Living with Paralysis. I still like “my child” better. This project has been such an astonishing experience. I got to surf the internet all day long looking for products and even got some free samples for community members to test out. Keep a look out for my child ... err… I mean the Gift Guide and some great products.

Don’t worry, my journey doesn’t stop there! What would an incredible internship be without a benefit concert to attend? Well maybe just an internship, but hey this is one of the many things that’s made it unforgettable. Attending Reeve Rocks at Tenjune in New York City allowed me to see Jesse Ruben and Parachute perform, but what’s even better is I got to see how many people support the Foundation. Now, full disclosure, I am a 21-year-old college student, but I LOVE my sleep! With that being said, staying out late on a work night is not what I usually do. But for this event, I put my big girl pants on and ignored my bed time. What shocked me was how many people, who probably had work the next morning, came out to support the Foundation. It never fails to blow me away each and every day how many people are willing to give.

What an exciting three months, right? I know, I know, you’re probably asking why I would ever end my internship after great experiences like those. Well, I asked myself the same question, so I decided not to. Rather than getting placed in a closet and ignored by my supervisors, I decided to stay as a volunteer so I can continue to absolutely love what I do every single day I walk into the office. (Team Reeve manager, Leigh, and I pictured below at Reeve Rocks.)

I’ve had experiences that hurt and changed my life, but I don’t know if I would be able to stay strong through a spinal cord injury resulting in paralysis. Having to relearn the way things are done in life is a curveball that no one would choose, but to every single person that has done it, I give you more credit than I could ever explain. This Foundation has shown me what true strength is. From interviewing those running marathons and hearing each of their stories, to selling raffle tickets at a benefit concert, each event has been a journey within itself where I’ve learned what “strength” really means.

I gained more knowledge in these past three months than I thought I would. I look forward to my journey as a volunteer, but I would like to leave you with a few snippets of a recent Team Reeve interview I did. Deedee McCarty’s son, Nate Bibaud, was injured in a car accident. At 27-years-old he is now living with paralysis, but the two refuse to settle for life in a wheelchair. Her endless advocacy truly touched me. Maybe it’s because her love and determination for her son remind me of my own mother’s, but she gave me chills during our interview and here’s why …

It’s made him and I closer, but I wouldn’t wish it on my worst enemy … Just to watch your child struggle and not being able to do things. He was just getting ready to soar. He had an architectural job offer on the table. He was just getting ready to fly.

Ultimately, we are not settling for life in the chair. The ultimate goal is to get out of the chair. That’s the forefront of every day. Some people may think that’s a little bit of denial, that you just need to accept it, but you don’t need to accept it.

Christopher Reeve taught everybody to dream the impossible. We have a goal and we are not stopping short of it.

A mother’s love is the secret. My love for him and what I want for his future drives me to keep building relationships, connecting with people, putting more people together, and letting people know what he’s going through. It’s just being a tireless advocate, that’s really the key.

Christine Fanning
Reeve Foundation Communications Intern

PS: Find out how to become a Reeve intern.



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JLo
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Posted by JLo
Thursday, August 04, 2011
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Legendary NFL coach Vince Lombardi once said, “It’s not whether you get knocked down, it’s whether you get up.”

When Lombardi said this years ago, I don’t think he knew he was directly speaking to Rutgers University football player Eric LeGrand.

By now, we all know this story of Eric. One bad hit on the gridiron changed his life forever on October 16, 2010. One-quarter of an inch, one second slower, one play later… it all could have been different. We know the “what ifs.” But we can’t dwell on them… and neither does Eric.

Eric and his mom visited the Reeve Foundation’s Short Hills, NJ office on Tuesday. Like any other 20-something-year-old, Eric is just living his life. The only difference? Eric smiles more than anyone else I have ever met (above.) Some might wonder what he has to smile about. I think his mom, Karen, said it best. (Eric, Karen, and Reeve Foundation staff, Alan Brown, Maggie Goldberg, and President & CEO Peter Wilderotter pictured below.)

When I asked her about this journey they have been on and what happens next, she simply said: “Oh we’re still on it. The sky’s the limit.”

I introduced myself to Eric as the office’s “resident football fan” (and then my coworkers chuckled and said ‘Fins up!’) So naturally, Eric’s story hit me more than most spinal cord injury cases I hear about. I questioned if I would ever be able to watch football the same again. No question, I’m still as big a fan as ever (just ask my boss… I’m debating which Dolphins game to fly out to Miami for this season!)

So when it comes to the pigskin and the turf, I wondered how Eric felt now. I asked him, “What would you tell the football world now?” Admittedly, I was expecting his answer to be on the cautious side, but just like with his contagious smile, he surprised me and said, “Play hard. Every single play. You never know when it’s your last.”

Ever since I was six-years-old, my idol has always been the legendary Miami Dolphins quarterback, Dan Marino. I met Marino when I was 16-years-old, was completely star-struck, and could barely utter two words. Standing in front of him, it hit me like a ton of bricks.

With Eric, I got that same feeling. (Eric and I pictured at right.) Except it was when I went home Tuesday night and replayed the meeting in my head. I have been following Eric’s story for months but being able to just chat with him and his mom for a few minutes gave me a sense of what Christopher advocated for, “Nothing is impossible.”

So many people look up to Christopher and Dana. So many people now look up to Eric. So who does Eric look up to? Ray Lewis, linebacker of the Baltimore Ravens, and Terrell Davis, former running back of the Denver Broncos.

What do all of these people have in common? They are leaders. To quote Lombardi one more time, “Leadership is based on a spiritual quality --- the power to inspire, the power to inspire others to follow.”

Thank you Eric, Karen, and the entire paralysis community for being leaders. Let’s all join together and stand up for those who can’t!

Look for Eric on ESPN Thursday at 3:15 (EST) as he stops by to talk about rehab and life after his injury. (Update: Here is the link to Eric's ESPN appearance.)

Janelle

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JLo
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Posted by JLo
Thursday, August 04, 2011
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Life Rolls On is at the Nike US Open of Surfing Life Rolls On and is proud to celebrate its 10th Anniversary as the Official Charity of the Nike US Open of Surfing.

Don't miss the action at Huntington Beach Pier, as LRO will be on-site from August 4-7. Also, be sure to catch Life Rolls On's They Will Surf Again Expression Session on Friday, August 5 at 1:45p.m., as adaptive surfers ride waves alongside the pros.

Click here for more information.

From CharityBuzz.com:

The They Will Surf Again Expression Session is an opportunity for surfers to showcase their most creative moves, while highlighting a special exhibition of Life Rolls On’s adaptive surfing program, They Will Surf Again, which empowers paraplegics and quadriplegics with the opportunity to surf. Led by world-famous adaptive surfer and Life Rolls On Founder Jesse Billauer, who has been featured in the surf epic, Step Into Liquid, Kelly Slater, Mick Fanning, Rob Machado, Brett Simpson, Courtney Conlogue, and Coco Ho are just some of the incredible surfers who have surfed in the They Will Surf Again Expression Session.

Read the rest.


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Categories:  Life Rolls On
JLo
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Posted by JLo
Thursday, July 28, 2011
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No two success stories are alike -- except for one thing. Most of the individuals living with paralysis and spinal cord injuries that I have spoken to have said that walking isn't always the first thing they want back.

Do you agree?

The Reeve Foundation wants to know: As a person living with paralysis, what one function would you most like to regain?

We have set up an easy poll with 11 choices from you to chose from -- everything from bowel and bladder functions to spasticity and sexual functions.

So let us know!

Take the poll now!

Janelle



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JLo
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Posted by JLo
Monday, July 25, 2011
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Lifeguards are out in full force during the summertime so it is time to honor them. Join AtlantiCare Regional Medical Center (New Jersey) this Thursday (July 28) at 6:30 pm for the 2nd Annual Lifeguards SAVE event at the Atlantic City Country Club in Northfield.

This is "an attitude and gratitude event recognizing the region's lifeguards" with dinner, drinks, and speakers. The event is FREE and open to all ifeguards and those who do water rescue.

To register to attend, go to AtlantiCare.org or call 1-888-569.1000.

More information here.




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