• COMMUNITY
  • |
  • MY STUFF
  • |
  • DISCUSSIONS
  • |
  • CHAPTERS
  • |
  • GROUPS
  • |
  • PHOTOS
  • |
  • INVITE
  • |
  • EVENTS
  • |
  • FIND OTHERS
Blog Search
Blog Latest Comments
The Beckett family efforts assisted many, my family being one . My oldest son was born very prematurely and with signif...
by PRC_Bernadette on Monday, May 21, 2012
Sorry to post this here but... I keep getting request for donations but its my family and I that could use the help. I h...
by Joe on Monday, May 21, 2012
Hi, Rob. I watched this new in tv on Wednesday. Here in Brazil, a man made a bionic hand controled using the thoughts. T...
by Selvina on Saturday, May 19, 2012
Thank you!!! I'm knowing the website and I'm liking the CRPF's work. Thank you again. Good night.
by Selvina on Thursday, May 17, 2012
Selvina, your interest is great! You have come to the right place to learn all about paralysis and SCI. Anything I can h...
by JLo on Thursday, May 17, 2012
Page  of  Total Items: 152

firstprevnextlast

This is where the staff of the Reeve Foundation is sharing up-to-the-minute information and putting some context around the news affecting the spinal cord injury and paralysis community. Not to mention insight into what's going on here at the Foundation. Feel free to comment and offer suggestions. We'll respond.
Archive for May 2011
PRC_Library
Bookmark and Share
Posted by PRC_Library
Tuesday, May 31, 2011
Comments (0)
New in the PRC Library…

Veterans Benefits for Dummies by Rod Powers. Wiley Publishing, 2009.

This book covers all of the different types of benefits that veterans are entitled to: health care, employment, education, housing, etc. Learn tips on how to navigate the VA healthcare system and TriCare—the military’s health care insurance. Chapters include getting your military retirement pay, disability compensation and pensions, benefits for survivors, burial and memorial benefits, VA Home Loans, and travel benefits. The appendices include contacts for VA centers and national cemeteries.

A copy of this book can be checked out from the Paralysis Resource Center’s library. Please see our online catalog and borrowing instructions.
Categories:  Library
JLo
Bookmark and Share
Posted by JLo
Friday, May 27, 2011
Comments (0)
Today is the 16th anniversary of Christopher Reeve's spinal cord injury from an equestrian accident. Ever since that day, Christopher became the courageous face of spinal cord injuries.

Sixteen years later, with the very exciting research breakthrough announcement last week, I can't help but to wonder how Christopher and Dana would feel if they were here to witness it. Fifteen, 20, 50 years from now when more breakthroughs emerge, I will be able to say "I remember when..."

So, on that note, Christopher said, "Nothing is impossible." How about that? Nothing is impossible, eh?

We'd love to hear your thoughts on this. What does this breakthrough mean to you?

Janelle


Like us on Facebook Follow us on Twitter YouTube LinkedIn CarePages Life Rolls On Foursquare Tumblr Digg Blogger Reeve Foundation Community Join our community.

JLo
Bookmark and Share
Posted by JLo
Friday, May 27, 2011
Comments (0)
“…in bringing up children and relating to others, sometimes being is more important than doing. I was also to learn that even if you can’t move, you can have a powerful effect with what you say.”

Christopher Reeve wrote the above statement in his book Nothing Is Impossible. It is exactly what our Best Dad on Wheels contest is all about.

Do you know a dad living with paralysis who is able to teach life lessons, encouragement and love, trust and goodwill simply by being? Then tell us about him! (At right, Best Dad on Wheels nominee, Damon Rozier with his two sons.)

You have until Tuesday, May 31 to nominate the dad living with paralysis that you know to be crowned the 2011 Best Dad on Wheels. Write 200 words about him, submit a photo, and optional video (we've received some really touching videos already!)

Ten semi-finalists will be selected followed by public voting online from June 6 - June 14. The winning dad will win bragging rights and a gift package from vineyard vines.

So hurry up, enter the Best Dad on Wheels contest now!

Janelle



Like us on Facebook Follow us on Twitter YouTube LinkedIn CarePages Life Rolls On Foursquare Tumblr Digg Blogger Reeve Foundation Community Join our community.

Categories:  Contests
JLo
Bookmark and Share
Posted by JLo
Friday, May 27, 2011
Comments (0)
Summer Safety ChecklistHappy Memorial Day weekend everyone! Most of us consider this is the official kickoff to summer, but with all the fun in sun, you can never be too safe.

There are nearly 1.3 million people in the United States living with spinal cord injuries; 24% of those were caused from motor vehicle accidents and 16% were caused from sporting and recreational accidents.

It's easy to forget to buckle your seatbelt while singing like a mad man on the highway driving to your weekend destination. It's easy to forget to walk into a pool or ocean instead of dive in head first when you're so hot from the sitting in the sun. It's easy to forget to put your helmet on when you go for a family bike ride around the park.

But please do not forget these simple summer safety tips tips.

Have a look at our summer safety checklist and be sure to share with all your family and friends this weekend!

Janelle


Like us on Facebook Follow us on Twitter YouTube LinkedIn CarePages Life Rolls On Foursquare Tumblr Digg Blogger Reeve Foundation Community Join our community.

JLo
Bookmark and Share
Posted by JLo
Friday, May 27, 2011
Comments (0)
Father's Day is Sunday, June 19. It's never too early to start shopping. So start shopping the Reeve Foundation Care & Cure Father's Day e-cards!

Your generous gift of $25 or more will help people living with spinal cord injury live longer, healthier, lives and support research to find the cures they so very much need. It's a fast and easy way to give a really meaningful Father's Day gift so click here now to see the three designs we have offered.

Get your Father's Day e-cards today!

Janelle



Like us on Facebook Follow us on Twitter YouTube LinkedIn CarePages Life Rolls On Foursquare Tumblr Digg Blogger Reeve Foundation Community Join our community.

Categories:  Community
Gerthro
Bookmark and Share
Posted by Gerthro
Tuesday, May 24, 2011
Comments (0)
Here is one of the latest (and earliest in the being a dad -- I'll have to check the rules, but I'm pretty sure he qualifies) entries we received for The 2011Christopher & Dana Reeve Foundation Best Dad on Wheels contest:

Derrick (with girlfriend in photo) has been living with paralysis for the past 5 months and he is expecting his first child on June 16 and despite all he has been through in the past couple of months, he is doing an awsome job of being there for his pregant girlfriend and staying strong for his new baby girl.

The Best Dad on Wheels contest is taking entries for just one more week! You have until the day after Memorial Day to get your dad, or another dad you know, who is living with paralysis, and demonstrate such important attributes as dedication, love, encouragement, and goodwill signed up!

Online voting starting June 6th. In the meantime, have a look at two of the videos we got. Although a video is NOT required!

Rob

Like us on Facebook Follow us on Twitter YouTube LinkedIn CarePages Life Rolls On Foursquare Tumblr Digg Blogger Reeve Foundation Community Join our community.

Categories:  Contests
Gerthro
Bookmark and Share
Posted by Gerthro
Friday, May 20, 2011
Comments (0)
A little behind the scenes look at all the press excitement generated around the announcement of our research breakthrough.

The research was being published in the British science journal called The Lancet. When they decide to publish your research -- which means outside scientists have looked at it and deemed it well-reasoned and well-done and thereby newsworthy -- everyone involved promises not to say a word about it until it hits The Lancet's website, as they want to be the first with the news. This embargo was until 6:30 p.m. Thursday EST.

This was a secret kept for months. Most of the Reeve employees only found out about it at a staff meeting on Wednesday afternoon!

At some point, you do have to start telling reporters around the world that something was coming, but we can't really say what, but you're going to want to be there for it, so they can make plans and interviews can be arranged.

We were doing a press briefing at 3:30 pm EST Thursday. Before that you want to target all the big name scientific reporters and all the big name media from Katie Couric to The New York Times to get the story. So all the scientists and the patient (Rob Summers, who was on hand with his parents and girlfriend Rachel -- wonderful folks from Oregon) and the reporters had to find each other. Which they did at a hotel in Jersey City, some in the flesh and some via cell phone.

What fun to watch everyone juggle! Not only interviews ...

"Hey, I got The Wall Street Journal here, they want to talk to Rob."

"Not before he talks to The BBC!"

"CBS needs someone from the Foundation for a TV interview in the next five minutes."

... but their cell phones (Rob had 2 going at almost all times). Cell phones were dying, signals dropping out, everyone hunting for a free electrical outlet to charge. (Note how everyone is looking at a screen in the photo to the left!)

This went on right up until we had to go over to Manhattan for the press briefing.

The press conference was calm in comparison even though beforehand it seemed like there was a reporter in every corner of this gallery space interviewing someone. The networks lined up their cameras (top photo) and dozens of reporters from around the world called in to a phone conference so they could ask questions. The scientists sat up front with Rob and patiently answered all their questions. It went on for over an hour.

At one point, Rob talked about how hard he's been working and how bright his future was, about how he had his confidence again, how he felt like he could get back out into life again. I could see them sitting next to each other in the audience with such pride in the watery eyes of his mom and Rachel (pictured to the right with Rob in a quiet moment just before the press briefing started).

After, we all hurried back across the Hudson River to the hotel in Jersey City. We wanted to get there in time for the 6:30 p.m. network news shows. The fastest way was the subway system called the PATH. It proved a bit of a challenge as construction made finding an elevator a pain and not one of us was a native New Yorker, but we made it.

As I waited on the train platform with Rob's family, I got to chat with his mom. This was their first time in New York, so they were going to stay a bit. She wanted to see Central Park and the Statue of Liberty. She said "the kids" had a few things planned for them to see too. They were getting back out into life again.

Rob Gerth

PS: I too managed to steal some of Rob's time for a quick video interview. Stay tuned for that.

Like us on Facebook Follow us on Twitter YouTube LinkedIn CarePages Life Rolls On Foursquare Tumblr Digg Blogger Reeve Foundation Community Join our community.

Gerthro
Bookmark and Share
Posted by Gerthro
Tuesday, May 17, 2011
Comments (0)
Summer is just around the corner – and if you’re looking for a fun activity that will help those living with paralysis, we have a few ideas for you. Why not join Team Reeve and make a difference?

You don’t have to run a marathon to be on our team – unless you want to! Pick out a pastime that you enjoy, or a project you’ve been meaning to get to, and turn it into a fundraiser!

Clean out your closets, attic and garage and have a yard sale – and make it a community event by inviting friends to join in.

Get the kids involved with a recycling campaign, or set up a car wash, or have a bake sale. Do you like to sing in the shower? How about a karaoke contest - unleash your inner Gleek!

What kind of event makes an appropriate fundraiser? One that everyone enjoys! Visit Team Reeve and start planning your summer fun today!

Rob

PS: If you are thinking really big, read about Jessica and Mark Burrell's (pictured) yearly softball tournament!

Like us on Facebook Follow us on Twitter YouTube LinkedIn CarePages Life Rolls On Foursquare Tumblr Digg Blogger Reeve Foundation Community Join our community.

Categories:  Team Reeve
Gerthro
Bookmark and Share
Posted by Gerthro
Monday, May 16, 2011
Comments (3)
We sent out a fundraising appeal in the last few days featuring a long time member of our online community -- Saralee Perel. We focused on how Christopher Reeve, even though she never met him, inspired her. Now I know from talking to her that see gets daily, hourly, inspiration from her loving husband Bob and from her beloved dog Gracie (pictured). After she had a look at the appeal, she asked if she could write about one of her other inspirations. I said sure. She chose Gracie. Sorry Bob.

I’m 8 years post injury. Since year one, I’ve had no choice but to find alternative means of care giving.

Often, I’m not in good spirits but I know someone who is. Someone who never gets frustrated with me; who never gets in a bad mood because I need more and more of her help. Someone who will never, ever let me down whether we’re hobbling along together in a downpour, or through mud, and no matter the time of day; my 15-year-old dog, Gracie.

I believe there is something even deeper than we’ve already discovered about human/pet communication that has yet to be fully embraced. I don’t think I’m crazy when I say that there is a look in Gracie’s eyes, as a friend recently said, that tells me she can read me like a book.

It has been Gracie who has selflessly cared for me all along. If I ever allowed it, she would go without eating for days if I was in bed. Anywhere – on the uneven ground of the backyard, on the sidewalk of our street, on what has become a treacherous walk from my bed to the bathroom, it has always been because of her that I rarely fall. She would rather fall herself than allow me to trip on any object in my path.

Gracie can still climb steps. At this point, I don’t think I will ever be able to climb even one. But a doctor friend told me that neural passages can learn to re-route themselves, so I keep trying. Each day, Gracie waits for me at the top of the one step which leads to our porch.

I see her standing on the porch, near the step . . . waiting . . . urging . . . assuming I can do it. After a dozen tries, when I still can’t make it, I grab onto her as she stands firmly so I can pull myself up.

Does holding on to her for help mean that I’ve failed? No. True victory is not found at either the top of a stair or at any finish line. True victory is all in the attempt.

Now, in her advanced years, I laugh at what a pair she and I make. Out back, when her limbs occasionally give out, I put my body on the ground, my hands under her belly, and lift her. And those times that I can’t get up, she sits as tightly next to me as possible, like a statue, staying good and strong, so that I can pull myself off of the ground.

Sometimes we just stay in that position on the ground, resting against each other, loving each other, knowing our time together will soon come to an end. When I’m laughing, she smiles, as all dog owners know that dogs truly do. When I am crying, she softly puts her pretty face under my hand.

Gracie thinks of me as her hero. But she is mine. She has put herself in harm’s way by protecting me from traffic, from joggers, bikers and dogs off leashes. She would give up her life for me. She is my biggest fan and my greatest supporter, my lifeguard and guardian. Gracie is my champion.

I have recently completed a book about her which is titled, “The Dog Who Walked Me.” Now it’s in my agent’s hands, who is connecting with publishers to see which company will publish it. I want Gracie to be remembered.

I thank all of my readers who responded so strongly with tender emotion and laughter to Gracie’s columns, in addition to sharing with me their own stories. It was purely because of this powerful “community for Gracie,” which grew so quickly, that this book in her honor was born.

In fact, without Gracie, I’d never be walking. I wouldn’t even be alive.

Saralee Perel Presents Gracie, My 4-Footed Coach!

Thanks to you, Saralee, for all you add to our community.

Rob

Like us on Facebook Follow us on Twitter YouTube LinkedIn CarePages Life Rolls On Foursquare Tumblr Digg Blogger Reeve Foundation Community Join our community.

Categories:  Success Stories
Gerthro
Bookmark and Share
Posted by Gerthro
Monday, May 16, 2011
Comments (0)
This is a wonderfully written, incredible sad story from the AP about a kid who is living with quadriplegia longer than the insurance company expected:

(Rocky) Clark (pictured here AP photo) can do little but swivel his head. He can't move his arms or legs. More than a decade ago, he was paralyzed from the neck down after being tackled in a high school football game. After nine months in rehab and a hospital bill approaching $1 million, he went home.

As a quadriplegic, his long-term prospects were slim. And over the years, there have been regular hospital stays and health scares – no surprise, considering Clark's fragile condition. He has just one working lung. His right lung is partially paralyzed; certain infections could kill him.

And yet Clark has endured. His doctor credits top-notch, round-the-clock home health care paid for by the school district's $5 million catastrophic health insurance policy. But that's run out, so the nurses and money are gone, replaced by his mother, growing financial pressures and a new sense of foreboding.


Read the rest.

We have information specialist that can help you we your questions about parlaysis. Call them at 1-800-539-7309 or visit our Paralysis Resource Center.

Rob

Like us on Facebook Follow us on Twitter YouTube LinkedIn CarePages Life Rolls On Foursquare Tumblr Digg Blogger Reeve Foundation Community Join our community.

Categories:  Resource Center
Gerthro
Bookmark and Share
Posted by Gerthro
Monday, May 16, 2011
Comments (0)
One of our own took part in the second running of the Superhero Half Marathon in New Jersey. Nearly 2,000 runners registered to compete in either the half marathon or two-person relay over a course. Over 1,600 runners registered for last year’s race, with about 1,250 finishing, and a total of $5,000 raised for the Foundation.

Katie Spiegel, who is the Foundation's Director of Corporate and Foundation Relations (pictured here in the Superman cape her brothers use to wear as kids), was one of many of the runners who wore costumes, some as simple as Superman T-shirts while others sported full-body Ironman or Batman costumes. 

Katie has only been with us a very months, but, luck for us has been a runner for a lot longer. She raised about $600.00 for Team Reeve.

Read more about the race
.

Find out how you can help raise money for research (no you do not have to run a half or even a full marathon).

Rob

PS: Katie had a personal best of 2 hours. She says, "See, if I can do this, anyone can."

Like us on Facebook Follow us on Twitter YouTube LinkedIn CarePages Life Rolls On Foursquare Tumblr Digg Blogger Reeve Foundation Community Join our community.

Categories:  Team Reeve
Gerthro
Bookmark and Share
Posted by Gerthro
Monday, May 16, 2011
Comments (0)
You can watch selected events from the U.S. Paralymics Warrior games this week. They are being help in Colorado Springs. The opening ceremony is being streamed live today!

Web Streaming Broadcast Schedule
Monday, May 16: Opening Ceremony, 5:00 p.m. MT
Friday, May 20: Wheelchair basketball bronze & gold medal games, 6:30 p.m. MT
Saturday, May 21: Sitting volleyball bronze & gold medal games, 1:00 p.m. MT

Find out more.

Check out our Healthy Living section for advice on staying active.

And be sure to visit our friends over at Life Rolls On, if you'd like to try surfing, skating, or skiing.

Rob

Like us on Facebook Follow us on Twitter YouTube LinkedIn CarePages Life Rolls On Foursquare Tumblr Digg Blogger Reeve Foundation Community Join our community.

JLo
Bookmark and Share
Posted by JLo
Wednesday, May 11, 2011
Comments (0)
Vanessa Boyce, Ph.D., is a postdoctoral fellow working in the field of neurophysiology- a branch of physiology that studies how the nervous system functions. She is also one of two Consortium Associates from the Mendell laboratory in the Reeve Foundation's International Research Consortium on Spinal Cord Injury.

Boyce, originally from Trinidad and Tobago, was always very interested in biology. She originally wanted to be an ophthalmologist because her aunt had sarcoid uveitis, an inflammation of the part of the eye called the uvea. However, as she got older, she became more engrossed in research. "My interest in biomedical research superseded my interest in medicine," says Boyce.

She received her undergraduate in biology from Franciscan University in Ohio, her masters in biology from Duquesne University in Pennsylvania, and her Ph.D. in neuroscience from Drexel University College of Medicine in Philadelphia, Pennsylvania. While attending Duquesne, Boyce began working with crabs.

"Crabs and crustaceans can regenerate entire limbs during successive molting periods," says Boyce. "When I started, I was interested in the genetics behind the ability of a crab to loose an entire claw and then the next molting season have one grow back."

Meet Dr. Boyce.

Like us on Facebook Follow us on Twitter YouTube LinkedIn CarePages Life Rolls On Foursquare Tumblr Digg Blogger Reeve Foundation Community Join our community.

Categories:  Research
JLo
Bookmark and Share
Posted by JLo
Wednesday, May 11, 2011
Comments (0)
Our online edition of Progress in Research is live. We are covering the people who are at the forefront of our research. Dr. James Fawcett (pictured) is just one of the stories.

James Fawcett runs one of the six labs that form the Reeve Foundation International Research Consortium on Spinal Cord Injury.

Dr. Fawcett started his career as a doctor, working in the autoimmune disease area, including very tough conditions such as systemic lupus. "One of the things about being a doctor, you eventually become competent at what you are doing. For some people, that's great. Others might feel, 'what's new? I don’t want to do this for 40 years.' I decided I wanted to start doing research."
Read the rest.


Also featured in Progress in Research:

New Individual Research Grants
AZ Symposium: Scientists Meet Their Shareholders
Time to think the way Industry thinks . . .
Benson: Uniquely Focused on SCI

Janelle

Like us on Facebook Follow us on Twitter YouTube LinkedIn CarePages Life Rolls On Foursquare Tumblr Digg Blogger Reeve Foundation Community Join our community.

Categories:  Research
JLo
Bookmark and Share
Posted by JLo
Wednesday, May 11, 2011
Comments (0)
The Reeve Foundation is bringing it's Road Show to Houston, Texas on May 26 at the Briar Club.

Sponsored by 180 Medical, these Roads Shows  offer residents opportunities to learn about the Reeve Foundation's programs, including updates on recent progress in spinal cord research, the Paralysis Resource Center, the Peer and Family Support Program, Team Reeve, and the Reeve Foundation’s Advocacy program.

Speaking at the Houston Road Show will be Reeve Foundation President and CEO, Peter T. Wilderotter and Executive Vice President of Research, Susan Howley. Joining them will also be Reeve Foundation ambassador and Major League Soccer star/FC Dallas captain, Daniel Hernandez (pictured). Daniel is connected to the Reeve Foundation mission because his brother is living with paralysis as a result of a car accident in 1998.

There is a $25 registration fee.

For more information and to register, click here!

Learn about Road Show sponsor, 180 Medical.

Janelle


Like us on Facebook Follow us on Twitter YouTube LinkedIn CarePages Life Rolls On Foursquare Tumblr Digg Blogger Reeve Foundation Community Join our community.

Categories:  Events and Workshops
Showing items of 32