This is where the staff of the Reeve Foundation is sharing up-to-the-minute information and putting some context around the news affecting the spinal cord injury and paralysis community. Not to mention insight into what's going on here at the Foundation.
Feel free to comment and offer suggestions. We'll respond.
Posted by
JLoWednesday, January 26, 2011
Posted by
JLoWednesday, January 26, 2011
Posted by
JLoWednesday, January 26, 2011
The Open Hearts Foundation, a nonprofit charity established to raise funds to enrich the lives of children in the areas of health, arts, sports and education, announces its inaugural Open Hearts celebration in Malibu, Calif. on Saturday, February 19, 2011.
The event will be hosted at the private residence of award-winning actress, artist and philanthropist Jane Seymour and her husband, director, producer and writer, James Keach. At the event, the Open Hearts Foundation will recognize the achievements of four outstanding individuals, each with an inspiring story that exemplifies the Open Hearts Foundation’s mission.
“Living with an Open Heart allows you to overcome adversity and create something positive in your life. This philosophy, which reflected my mother’s advice, has inspired me to live my life with an Open Heart,” said Jane Seymour, a founding board member of the Open Hearts Foundation. “I’m truly humbled that so many people have found comfort and inspiration in my Open Heart symbol and philosophy.”
The notable honorees receiving the first-ever Open Heart Award will include individuals who live the Open Heart philosophy. Each honoree will receive a limited-edition bronze sculpture designed and signed by Seymour.
Jesse Billauer of Life Rolls On, a Reeve Foundation subsidiary, is among the honorees.
Learn more about the celebration.
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Posted by
JLoWednesday, January 26, 2011
Former New York Jets' player Dennis Byrd broke his neck and was paralyzed from the waist down during a game in November of 1992. Even though, the #90 jersey was cut from his body, he has used it for inspiration.
He shared his story with the CBS Early Show in the wake of the Jets' recent Super Bowl run.
When asked if it was tough to look at his jersey on daly-after-day, year-after-year, Byrd answered, "It's not hard to look at a jersey. The jersey, to me, was symbolic of so many things. All of the effort, the work, the sacrifice that it took to get to the point to earn that jersey."
Last week, Byrd's beloved Jets prepared for a playoff game against their biggest rival, the heavily-favored New England Patriots. In an effort to give them a boost, Byrd took that jersey off his shelf and sent it to Jets head coach Rex Ryan.
"It blew me away," Ryan said of receiving the jersey. "I thought, 'Wow man, this is incredible, it's such a honor."'
Ryan was so moved by the gesture he asked Byrd to visit the team. And the night before the game, Byrd stood before them.
Byrd said, "It was for them to understand the importance of the moment, as well as to understand the true gift of what they have as athletes."
Read the rest.
Watch the clip of Jets' players carrying Byrd's jersey out for a coin toss during their playoff game vs. the Patriots.
Janelle
Join our community.
Posted by
JLoMonday, January 24, 2011
Kim Harrison, 45 at the time, was on a business trip to Dallas, Texas when she was stricken with a neurological syndrome called transverse myelitis.
She was working as a supervisor for a warehouse in Atlanta, Georgia, and was flown out to Texas to help in another location. She woke up one morning while in Texas in her hotel room with her right foot asleep. "I wasn't doing anything adventurous, I wasn't doing anything dangerous," says Harrison. "I literally got up that morning, put my feet on the ground and my right foot was numb and had a pricking feeling."
Harrison assumed that she had slept wrong, or had pinched a nerve, or had picked up a box wrong at the warehouse and pulled a muscle in her back.
Learn what happened to Kim next.
You story matters, share it!
Join our community.
Posted by
JLoMonday, January 24, 2011
We've raved a lot about Jesse Ruben lately, but for good reason. Ruben is "one step closer to greatness" as an article in the New York Daily News explains.
On the list of what 24-year-old singer Jesse Ruben doesn't have is a record label, a publicist or a booking agent.
But what he does have — raw talent and unwavering determination — just about outweighs all the rest.
It's true. Ruben uses real-life experiences, like that of his best friend and Reeve Foundation ambassador Zack Weinstein, to find inspiration for his music. (Read more about Jesse and Zack). Though Ruben has a manager, he still makes the effort to book his own shows and get his name out there. He is after all, one step closer to greatness.
"It's not always an easy thing to do, but it makes my lyrics relatable," he says. "Hearing someone say that your music is significant to their lives is incredibly rewarding."
But rewarding doesn't pay the rent. The next step is, he hopes, a paying career doing what he loves.
"It's going to happen," he says confidently.
Read the rest.
Get to know Jesse.
Janelle
Join our community.
Posted by
JLoMonday, January 24, 2011
Posted by
JLoMonday, January 24, 2011
Posted by
JLoWednesday, January 19, 2011
The 2010 ING New York City Marathon wrapped up a few months ago, but watching this video I felt I was right there all over again! The video captures the intensity, drive, and unique characteristics that make up Team Reeve!
The spirit our New York athletes had was pouring out of them on marathon day as each of the 65 athletes crossed that finish line. Don't believe me? Watch for yourself!
It's hard to not be inspired by the athletes, their stories, and most of all the support and determination from them and their family and friends to help the Reeve Foundation. If you want to be a part of Team Reeve, click here. You don't have to run a marathon, either. Organize a local car wash, bowling party, or any other type of fundraiser, and be a part of the team. Turn your passions into a mission to help others today!
GO TEAM REEVE!
Janelle
Join our community.
Posted by
JLoWednesday, January 19, 2011
Posted by
JLoWednesday, January 19, 2011
Posted by
JLoWednesday, January 19, 2011
Case Western Reserve University School of Medicine and Athersys, Inc. (Nasdaq:ATHX) announced a joint scientific study on spinal cord injury will be published today in the January issue of The Journal of Neuroscience. The study, by leading researchers from the Department of Neurosciences at the School of Medicine and scientists at Athersys, presents data supporting the potential therapeutic benefit of Athersys' MultiStem® program for spinal cord injury. Researchers observed that administration of Multipotent Adult Progenitor Cells (MAPC) following spinal cord injury in rodent models prevented the retraction of neurons, a process referred to as "axonal dieback," reduced inflammation in the region of injury, and also promoted the regrowth of neurons.
According to the Christopher & Dana Reeve Foundation, there are currently more than 1,200,000 people in the United States living with spinal cord injury, and approximately 12,000 to 20,000 new cases occur each year. Most patients that suffer spinal cord injury are between the ages of 15 and 35. The long term cost of spinal cord damage is estimated to range from $500,000 to more than $3 million per patient, depending on the severity of the injury.
"This study demonstrates for the first time that an adult stem cell is capable of modifying multiple aspects of the wound response following a spinal cord injury, concurrently altering the inflammatory response to mitigate secondary injury in the central nervous system and increasing the regenerative potential of the damaged neurons themselves. Certain adult adherent stem cells are known to have immunomodulatory capabilities, but their potential to inhibit this detrimental inflammation-related process in spinal cord injury had not been investigated until now," said Jerry Silver, PhD, Professor in the Department of Neurosciences at Case Western Reserve School of Medicine.
Read more about the study.
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New in the PRC Library…
I Will Teach You Everything You Need to Know. By Steven Kirshblum. Short Hills, NJ: Christopher & Dana Reeve Foundation, 2010.
The Reeve Foundation has published a children’s book about spinal cord injury from a renowned physician at the
Kessler Institute for Rehabilitation. When Junior is seven years old, his father Ted is injured in an accident. The book explains the various emotions a family may feel when a loved one is injured. It also goes through all the steps of rehab and physical therapy. The son starts to take care of his dad and teaches him what he needs to know to get through the difficult period after a spinal cord injury.
We have free copies of this book to give away.
Please fill out this form for a copy.
Posted by
JLoTuesday, January 18, 2011
Sergeant Princess Juliet (PJ) Bartell (pictured at right) organized a 5K at her post called Soldiers for Superman. PJ wrote a little something about the 5K.
8 January 2011, Victory Base Complex, Baghdad Iraq
A couple of months into my deployment I had noticed a lot of benefit fun runs that had occurred throughout the Victory Base Complex and I had wanted to put together one as well. For a while I was not sure who/what I wanted to do the run for, after a little while the idea of Soldiers for Superman awareness run came to mind.
I had grown up a huge fan of Christopher Reeve and had continued to be amazed by him even after he no longer wore the cape. He was today's real live Superman, showing everyone that it doesn't take having super powers to be a hero. After confiding in a close friend about my idea she had confided in me a story of her step-son and his challenges with paralysis and that he had passed a few years ago. Hearing her words gave me that final affirmation that the Christopher Reeve foundation is who I wanted to create a run for here in Iraq.
The next day I began emailing the foundation and created the Soldiers for Superman team page. Soon I was in touch with both Leigh Alspach and Mark Zenobia and the 5K began to develop. It was a whirl wind after that, coordinating with everyone from the Mayor Cell here and everyone back home as well.
My commander had caught wind of what I was doing and was incredibly supportive; sponsoring shirts to give to the runners which I had put together. Soon from my company alone we had 25 runners and volunteers, total we had over 300 participants the morning of the run. Everyone from civilians to military, from ranks as lows a private E-1 all the way up to colonels. It was an amazing sight the morning of the run, seeing everyone waiting for us, it took my breath away for a moment. I had never imagined it would be what it was.
This had been an awareness run more than a fundraiser, but I hope that one day, a stateside Soldiers for Superman 5K can be put together to continue raising support and awareness. More than anything, I am just thankful that I was given the opportunity to put it together.
This is what I call team work! Great work PJ and thank you to all our troops! Want to organize an event of your for the Reeve Foundation? Here's how.
Janelle
Join our community.
Posted by
JLoTuesday, January 18, 2011