Share with your friends:

Disability confidential. Informing. Empowering. Agitating.
Life After Paralysis is a blog that represents a variety of paralysis community members. It is a place for open conversation about the issues and the interests of people living with paralysis, their family, friends, caregivers, and the professionals that serve them. Comments are welcome!
 
The opinions expressed in these blogs are the author's own and do not necessarily reflect the views of the Christopher & Dana Reeve Foundation.

Most Recent Life After Paralysis Blog Posts

If there was ever a good time to become paralyzed with a spinal cord injury or from some other reason, this may be it. Paralysis itself is never good of course, under any circumstances, but the timing happens to be right when it comes to counteracting the damage that causes paralysis. Newly injured individuals today are being treated by a generation of ... more...
Posted by Michael Collins on Life After Paralysis May 21, 2015 2:19 PM EDT
When my fingers brush along my body, it's skin that my fingers slide over, skin that feels and doesn't feel, alive, leaving me with a shaky love/exasperated relationship with it, that fascinates and irritates me. This relationship has all the appreciation, liberation, confusion, ire, compromise, duality, cherishing and edginess any ... more...
Posted by Candace on Life After Paralysis May 20, 2015 12:42 AM EDT
We celebrate the 25-year anniversary of the Americans with Disabilities Act (ADA) of 1990 this July 26th. That may not seem like much time when compared to some of the other anniversaries or milestones we all have in our lives, but that's a "quarter of a century."  While that phrasing may make the period during which we have been ... more...
Posted by Michael Collins on Life After Paralysis May 12, 2015 6:54 PM EDT
The catch phrase of the day – heck, maybe the catch phrase of the year – is “ implicit bias .” All of a sudden, the media is swamped with stories about implicit, or unconscious, bias. Implicit bias is just what it says – someone who shows a bias or somehow discriminates against a person of a different sex, race, religion or such without being conscious ... more...
Posted by ARucker on Life After Paralysis Apr 29, 2015 1:02 PM EDT
For the past 27 years I have considered myself a champion for the wonder of mobility. Beginning with the day when I found myself unable to move on a snowy ski slope, all of my efforts have been directed at getting off my back and getting moving again. My recent blog expressing gratitude for what a succession of wheelchairs has done for me in that regard was the ... more...
Posted by Michael Collins on Life After Paralysis Apr 21, 2015 5:12 PM EDT
Sometimes Facebook is not just a colossal waste of brain cells. It can be downright thought provoking. A friend and colleague, David Radcliff, a real Facebookian and in his off-line hours, a talented young screenwriter and journalist, posted an illuminating FB entry the other day about disability. David has CP and is very astute about what many young ... more...
Posted by ARucker on Life After Paralysis Apr 15, 2015 4:21 PM EDT
It took only a short while after my spinal cord injury before I came to realize that the most defining feature of my newfound disability would be my means of transportation. I instantly went from being identified as "that tall guy with dark hair and blue eyes" to my newfound persona as "that guy in the wheelchair." Whenever I entered ... more...
Posted by Michael Collins on Life After Paralysis Apr 3, 2015 4:55 PM EDT
Traveling by aircraft these days’ means dealing with a variety of people when traveling from the curb or car park to boarding the aircraft. If that person has a disability there is a very good chance that the people that are encountered along the way, may or may not understand that are laws that protect and guarantee certain accessibility rights. ... more...
Posted by Candace on Life After Paralysis Mar 31, 2015 11:33 PM EDT
My lovely wife turned seventy last weekend and I have six months to go until that fateful day, but I like to get the jump on things so I'm already acting seventy. What does that mean? I'm still working on that answer, but it doesn't seem that my paralysis plays any bigger a role in my aging than it did when I was fifty or sixty. Sure, I can't ... more...
Posted by Community Admin on Life After Paralysis Mar 30, 2015 4:06 PM EDT
Advocacy is a powerful thing. Yet taking part in the act is sometimes as simple as telling your own story. Recently, MedPac ,  voiced support for "site-neutral" payment. The Medicare Payment Advisory Commission is a nonpartisan legislative branch agency that provides the U.S. Congress with analysis and policy advice on the ... more...
Posted by Community Admin on Life After Paralysis Mar 24, 2015 3:50 PM EDT
The first few months after my spinal cord injury were similar to being lost in a fog at night. Like many of my peers, I was suddenly paralyzed and adrift in a world that I had never expected. There were pains originating from areas I could not identify, and itches in places that my inert hands could not scratch. With my neck immobilized to prevent further ... more...
Posted by Michael Collins on Life After Paralysis Mar 24, 2015 1:42 PM EDT
Update: Should Tomorrow Be will have its NY Premiere at the NY Indian Film Festival on Saturday, May 9th at 12:30pm at the Village East Cinema (at 181 2nd Avenue, NY, NY). Purchase tickets here.   As a parent and caregiver, I am always interested in understanding the journey of other family members impacted by paralysis. I first learned of Malini Goel as a ... more...
Posted by KarenLeGrand on Life After Paralysis Mar 23, 2015 10:10 AM EDT
I like having choices, really, who doesn’t like to choose the direction of their path, right? So when the question and choice is posed to me, do you want the good news or the bad news first? I choose the bad news first. By my way of thinking, after hearing the bad news it’s nothing but good from there on out. Right? Maybe if I have some information ... more...
Posted by Candace on Life After Paralysis Mar 17, 2015 2:25 PM EDT
It takes more than a nagging pain to get me to a doctor's office. I know that I share that philosophy with many others, and I believe that tendency to avoid medical professionals except in extreme emergencies originates from the male role models of our youth. We didn't see John Wayne or other Western movie heroes running to the doctor to patch up ... more...
Posted by Michael Collins on Life After Paralysis Mar 9, 2015 8:19 PM EDT
If you watched the Oscars the other night -- a relatively few people did, ratings-wise – then you probably noticed a couple of things. One, seven out of the eight “Best Picture” nominees were small films virtually unknown to the audience watching the show. Only one, “American Sniper,” could be called a popular movie and it ... more...
Posted by ARucker on Life After Paralysis Mar 3, 2015 1:45 PM EST
If we are lucky enough to live long enough, parts of our body are going to begin wearing out. Many people my age, and even younger, are moving around on replacement knees and hip joints. For those of us who are paralyzed at various levels, I would argue that two of the most important body parts are the shoulders. We need them for basic mobility (propulsion), ... more...
Posted by Michael Collins on Life After Paralysis Feb 19, 2015 1:02 PM EST
The great divide, the gaping chasm, between the disabled and the non-disabled in this country is work. Post-ADA, so many of the problems people with disabilities face are due to hoary old stereotypes and continual isolation from mainstream Americans. Much of the fear or discomfort that non-disabled people feel toward people like you and me is caused ... more...
Posted by ARucker on Life After Paralysis Feb 18, 2015 11:25 AM EST
I’m experiencing the world’s strong feelings and emotions of anxiety and fear as one of those toys designed to spin that children play with, a spinning top. This toy seems perfectly balanced as the rotating speed keeps it spinning, it almost seems to be a forever and ever perpetual motion machine, never gonna stop spinning. But as the ... more...
Posted by Candace on Life After Paralysis Feb 17, 2015 2:37 PM EST
I am the chair of the Writers with Disabilities Committee at the Writers Guild of America West and our job is to get TV and film producers to hire more disabled writers and at the same time include more characters/actors in their shows and films. To this end we recently produced a PSA to make that point. It's called "Look Around" and is one ... more...
Posted by ARucker on Life After Paralysis Feb 5, 2015 7:00 PM EST
Apprehension has been a constant presence in my life for the past 27 years, and probably will continue to be during whatever time I have left. Each day starts the same, as I lie in bed waiting to hear the familiar sound of the power door opener which signals the arrival of my morning caregiver. On a good day, that door will open. An even better day starts when ... more...
Posted by Michael Collins on Life After Paralysis Feb 5, 2015 1:36 PM EST

Most Recent Comments

Like many of my peers, I gained significant mechanical abilities by working on cars, operating farm equipment and d...
I have only limited sympathy for those complaining about the difficulty of getting rehab gear fixed... It is like al...
So eloquently put. I have been using scooters as I went from a manual chair. I just got my first truely motorized wheel...
I call my resistance movement AMazinGrace. I'm not fond of the association with Che or the Mafia, but I believe that a...
Nice. Still seeking my cadre up north.

Tags