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Disability confidential. Informing. Empowering. Agitating.
Life After Paralysis is a blog that represents a variety of paralysis community members. It is a place for open conversation about the issues and the interests of people living with paralysis, their family, friends, caregivers, and the professionals that serve them. Comments are welcome!
 
The opinions expressed in these blogs are the author's own and do not necessarily reflect the views of the Christopher & Dana Reeve Foundation.

Most Recent Life After Paralysis Blog Posts

Advocacy is a powerful thing. Yet taking part in the act is sometimes as simple as telling your own story. Recently, MedPac ,  voiced support for "site-neutral" payment. The Medicare Payment Advisory Commission is a nonpartisan legislative branch agency that provides the U.S. Congress with analysis and policy advice on the ... more...
Posted by Community Admin on Life After Paralysis Mar 24, 2015 3:50 PM EDT
The first few months after my spinal cord injury were similar to being lost in a fog at night. Like many of my peers, I was suddenly paralyzed and adrift in a world that I had never expected. There were pains originating from areas I could not identify, and itches in places that my inert hands could not scratch. With my neck immobilized to prevent further ... more...
Posted by Michael Collins on Life After Paralysis Mar 24, 2015 1:42 PM EDT
As a parent and caregiver, I am always interested in understanding the journey of other family members impacted by paralysis. I first learned of Malini Goel as a star member of Team Reeve in which she raised considerable funds in honor of her father, Dr. Arun Goel, who sustained a spinal cord injury at C2-C3 in 2006. When her father was first injured, he was ... more...
Posted by KarenLeGrand on Life After Paralysis Mar 23, 2015 10:10 AM EDT
I like having choices, really, who doesn’t like to choose the direction of their path, right? So when the question and choice is posed to me, do you want the good news or the bad news first? I choose the bad news first. By my way of thinking, after hearing the bad news it’s nothing but good from there on out. Right? Maybe if I have some information ... more...
Posted by Candace on Life After Paralysis Mar 17, 2015 2:25 PM EDT
It takes more than a nagging pain to get me to a doctor's office. I know that I share that philosophy with many others, and I believe that tendency to avoid medical professionals except in extreme emergencies originates from the male role models of our youth. We didn't see John Wayne or other Western movie heroes running to the doctor to patch up ... more...
Posted by Michael Collins on Life After Paralysis Mar 9, 2015 8:19 PM EDT
If you watched the Oscars the other night -- a relatively few people did, ratings-wise – then you probably noticed a couple of things. One, seven out of the eight “Best Picture” nominees were small films virtually unknown to the audience watching the show. Only one, “American Sniper,” could be called a popular movie and it ... more...
Posted by ARucker on Life After Paralysis Mar 3, 2015 1:45 PM EST
If we are lucky enough to live long enough, parts of our body are going to begin wearing out. Many people my age, and even younger, are moving around on replacement knees and hip joints. For those of us who are paralyzed at various levels, I would argue that two of the most important body parts are the shoulders. We need them for basic mobility (propulsion), ... more...
Posted by Michael Collins on Life After Paralysis Feb 19, 2015 1:02 PM EST
The great divide, the gaping chasm, between the disabled and the non-disabled in this country is work. Post-ADA, so many of the problems people with disabilities face are due to hoary old stereotypes and continual isolation from mainstream Americans. Much of the fear or discomfort that non-disabled people feel toward people like you and me is caused ... more...
Posted by ARucker on Life After Paralysis Feb 18, 2015 11:25 AM EST
I’m experiencing the world’s strong feelings and emotions of anxiety and fear as one of those toys designed to spin that children play with, a spinning top. This toy seems perfectly balanced as the rotating speed keeps it spinning, it almost seems to be a forever and ever perpetual motion machine, never gonna stop spinning. But as the ... more...
Posted by Candace on Life After Paralysis Feb 17, 2015 2:37 PM EST
I am the chair of the Writers with Disabilities Committee at the Writers Guild of America West and our job is to get TV and film producers to hire more disabled writers and at the same time include more characters/actors in their shows and films. To this end we recently produced a PSA to make that point. It's called "Look Around" and is one ... more...
Posted by ARucker on Life After Paralysis Feb 5, 2015 7:00 PM EST
Apprehension has been a constant presence in my life for the past 27 years, and probably will continue to be during whatever time I have left. Each day starts the same, as I lie in bed waiting to hear the familiar sound of the power door opener which signals the arrival of my morning caregiver. On a good day, that door will open. An even better day starts when ... more...
Posted by Michael Collins on Life After Paralysis Feb 5, 2015 1:36 PM EST
Last week was a chance to celebrate a friend's 85 th birthday. As you can imagine there were people of all ages in attendance, from the age of three to one hundred offering pleasant and heartfelt greetings on this wonderful day. At some point in idle conversation, how our health is and the subject of the spare parts we all now have when a joint cracks or a disc ... more...
Posted by Candace on Life After Paralysis Jan 27, 2015 3:11 PM EST
Hundreds of books have been written about how to be a good parent, but there seem to be very few about "grandparenthood." I guess the experts figure that once someone has the hang of parenting, helping raise grandkids should be a piece of cake. That is all well and good, but sometimes the presence of a grandparent in a wheelchair complicates things a bit. ... more...
Posted by Michael Collins on Life After Paralysis Jan 26, 2015 9:27 PM EST
In case you haven’t heard, the newly-elected governor of the Great State of Texas is a wheelchair user. As every local pundit agreed, Greg Abbott, a waist-level para, crushed his opponent Wendy Davis, getting almost 60% of the vote. There hasn’t been a disabled governor in America since populist George Wallace’s last term in 1983. ... more...
Posted by ARucker on Life After Paralysis Jan 21, 2015 3:02 PM EST
When I awoke on New Year's morning it felt a lot like it did the morning of the day before. My process for getting up, dressed and into my wheelchair took as long as usual, and the cold, cloudy weather cast a somber mood over the day. I felt more like the old bearded guy carrying a sickle than I did the diaper-clad kid in a top hat that usually accompanies him ... more...
Posted by Michael Collins on Life After Paralysis Jan 13, 2015 4:50 PM EST
The year 2014 felt to be a turning point year for me, a really blessed and appreciated year for me so full of new and  completely engaging experiences that presented to me a adjusted map of how I want my life to play out in the coming years. Maybe it had to do with turning sixty about mid-way through the year or maybe it was changing the title of the webcast I ... more...
Posted by Candace on Life After Paralysis Jan 6, 2015 12:51 PM EST
I’m probably mangling his words, but in his welcoming remarks at the 2nd Annual “Hope for the Holidays” Reeve Foundation gala in Los Angeles, Reeve President Peter Wilderotter used the analogy of wandering around a pitch dark room, looking for a light switch, to describe finding a treatment for SCI. In other words, it’s a bit ... more...
Posted by ARucker on Life After Paralysis Dec 30, 2014 2:13 PM EST
Those who are familiar with paralysis realize how devastating and life-changing that diagnosis can be to an individual of any age. Paralysis, resulting in loss of function at a variety of levels, is a sentence to a life that is completely different than what might have been before. However, there is another situation involved, often overlooked, that ... more...
Posted by Michael Collins on Life After Paralysis Dec 30, 2014 2:03 PM EST
My gift-giving list for the holidays is fairly short, by necessity. My bank account suffers from the usual end-of-month bills, and it wasn't very large to begin with thanks to my life with this spinal cord injury. Making sure my personal care attendants are reimbursed, rent is paid, insurance updated, groceries purchased and all utilities are ... more...
Posted by Michael Collins on Life After Paralysis Dec 19, 2014 2:39 PM EST
I t’s time for the season of holiday travel. Planning for bouncing along the highways, clicking on train tracks or zipping through airports to spend precious moments with family and friends can swiftly develop into torture. To help cut down on  the dread and brain burnout I’ve gathered some ideas to consider and actions to take that ... more...
Posted by Candace on Life After Paralysis Dec 16, 2014 11:58 PM EST

Most Recent Comments

You are totally right. My mom was sent to a rehab after her spinal injury at the age of 71 that was not Craig because they...
Mom actually turns 91 this March. In my defense, she says it feels like at least 92.
Another great blog by Allen. I never thought he could bring me to tears but writing about Richard Glatzer did.
I'm 53 and have been racing since I got in the chair at 35. Last year I had my first bout with shoulder pain. I found out it...
To illustrate my blog I chose an online photo of Australian Paralympic Champion Louise Sauvage, due to her massive s...

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