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Disability confidential. Informing. Empowering. Agitating.
Life After Paralysis is a blog that represents a variety of paralysis community members. It is a place for open conversation about the issues and the interests of people living with paralysis, their family, friends, caregivers, and the professionals that serve them. Comments are welcome!
 
The opinions expressed in these blogs are the author's own and do not necessarily reflect the views of the Christopher & Dana Reeve Foundation.

Most Recent Life After Paralysis Blog Posts

The statistics are not what you’d call eye-popping. Far from it. The annual GLAAD survey of characters with disabilities appearing on mainstream TV found this: the number of regular series characters with disabilities last year – not counting guest roles -- was 11. Hold your applause, please. That is up from seven the year before and the big news... more...
Posted by ARucker on Life After Paralysis Oct 23, 2014 4:01 PM EDT
If anyone had told me that there was something "special" about using a wheelchair when I first became paralyzed about 27 years ago, I would have told them that they didn't know what they were talking about. The situation I faced at that time was unknown, challenging and even a bit frightening.  It is important to understand that when... more...
Posted by Michael Collins on Life After Paralysis Oct 16, 2014 3:46 PM EDT
By definition, regulation is a way to control or govern and influence the direction of a system. I like to think of my body as my beautiful, valuable, and elaborate collection of systems that can take me where I want to go. As long I regulate my systems, or monitor and take care of my systems, to one degree or another when I want to press  the “all... more...
Posted by Candace on Life After Paralysis Oct 15, 2014 11:17 AM EDT
Three years ago, I participated in a state-wide disaster table-top exercise. I pointed out that certain procedures excluded people with disabilities. One of the people in charge calmly told me that “in the case of a true disaster, difficult choices would have to be made.” He already understood that PWD were being excluded and he was ok... more...
Posted by JenLongdon on Life After Paralysis Oct 2, 2014 9:30 AM EDT
This month of September has been dedicated to National Spinal Cord Injury (SCI) Awareness. To celebrate this month, the Reeve Foundation has asked the community to share experiences and information about secondary conditions that can accompany a SCI. The secondary conditions are as vast and varied just as the results of SCI are. I know this may sound... more...
Posted by Candace on Life After Paralysis Sep 30, 2014 1:01 PM EDT
(NOTE: In the wake of Peter Wilderotter’s moving eulogy to photographer Chris Voekler , I wanted to add my own personal remembrance. Chris was a dear friend and inspiration, both to me and untold others.) Chris Voelker was the Richard Avedon of people with disabilities. His distinctive style is most often compared to the famous Hollywood... more...
Posted by ARucker on Life After Paralysis Sep 23, 2014 2:37 PM EDT
Some recent events have started me thinking about greetings , and how those of us who are paralyzed are impacted by the greeting process. The instance when two individuals meet and greet each other is an important one, as it can set the tone for whatever interactions that follow. For the purpose of this discussion I will avoid interactions which are not... more...
Posted by Michael Collins on Life After Paralysis Sep 19, 2014 4:42 PM EDT
Jessup: You want answers?! Kaffee: I want the truth! Jessup: You can't handle the truth! (From the film, A Few Good Men , 1992) I’ve often thought that paralysis -- stripped down -- is simply another prism through which to see this world. In the same way that comedians or novelists draw material out of their own lives, paralysis can be a... more...
Posted by ARucker on Life After Paralysis Sep 17, 2014 6:55 PM EDT
I was going to talk about how certain secondary conditions of paralysis have robbed me of almost a year, due to being sick and my slow recovery. I was going to write about sepsis, simple infections that insidiously turn fatal very quickly.  How nearly a year ago, sepsis nearly killed me, again (eight times in ten years), and how I was in and out of... more...
Posted by JenLongdon on Life After Paralysis Sep 17, 2014 1:32 PM EDT
For the past few years I have used this blog and several other means to freely dispense facts and my opinions about health and wellness when paralysis is involved. Who is better qualified to do that than someone who has lived with a cervical spinal cord injury for almost 27 years and who is facing the promise of turning 70 in a couple more years? Well I must... more...
Posted by Michael Collins on Life After Paralysis Sep 5, 2014 2:48 PM EDT
This past week, I had three separate encounters where I was unable to attend an event because the public venue wasn’t wheelchair accessible. It started a conversation that I want to relate here.   "Hey Jen, just what is the big deal with lifting you and your wheelchair in and out of places? We love you and we just want to help. We want you here for... more...
Posted by JenLongdon on Life After Paralysis Sep 4, 2014 12:45 PM EDT
A few of weeks ago the world suffered as Robin Williams became one of the 39,000 Americans, linked to depression, who take their lives each year. Depression is not unique to one group of people or the result of one condition, the list is long as to what can trigger depression, emotional or physical trauma, varied brain activity, disease or even exposure to... more...
Posted by Candace on Life After Paralysis Sep 2, 2014 5:13 AM EDT
The Hollywood disability community is ridiculously small, given the huge population of actors, directors, and writers working or trying to work here. The entertainment industry employs very few people with disabilities in front of the camera and almost none behind it. In a slightly dated but no doubt representative study commissioned by the Screen... more...
Posted by ARucker on Life After Paralysis Aug 26, 2014 4:48 PM EDT
Since the passage of the Americans with Disabilities Act of 1990 (ADA) , there has been a growing perception on the part of the general public that all problems with accessibility have been solved. They see scattered accessible parking spaces, some signage, a few ramps and lifts on buses so all is well, right?   Well, not exactly. Our landmark civil... more...
Posted by Michael Collins on Life After Paralysis Aug 22, 2014 12:59 PM EDT
As an op-ed piece in the New York Times pointed out the other day, one of the great, though, devious advantages of wheelchair living is playing the disabled card, i.e., asking for special favors because you know you are special. I realized this the first time I arrived at the airport to find a block-long baggage check-in line. All I had to do was to... more...
Posted by ARucker on Life After Paralysis Aug 12, 2014 3:08 PM EDT
There are moments in our lives when making a good impression is extremely important. In some cases a first impression, no matter how short, might be the only one that matters.  Examples of such occasions include when posting a profile for online dating, meeting someone for a blind date or entering a room for a job interview. All of the above are... more...
Posted by Michael Collins on Life After Paralysis Aug 5, 2014 1:48 PM EDT
On July 22 nd we move another step closer to the goal of the U.S. ratification of the United Nations Humans Rights document that goes by a number of calling cards, the Disability Treaty or the Convention on the Rights of Persons with Disabilities or my favorite, the CRPD. If you need more 411 on the CRPD, click here . The Senate Foreign Relations Committee... more...
Posted by Candace on Life After Paralysis Aug 5, 2014 11:06 AM EDT
A couple of weeks back, I talked about the increasingly popular notion in medicine that a purposeful life can seriously impact your health, in a good way. The piece was a little heavy on research and theory and a little light on personal experience. Why I care about this stuff grows out of what happened in my own life. Something I learned from Victor Frankl,... more...
Posted by ARucker on Life After Paralysis Jul 29, 2014 3:35 PM EDT
July 26, 2014 marked the 24 th anniversary of the ADA, I encountered many forms of celebrations, citations and congratulations on the bestowing of civil rights on people with disabilities in America. In my mind I imagined, I’m a visual cartoon thinker, a monarch touching a sword to both of my shoulders as I sat proudly fixed and  unflinching... more...
Posted by Candace on Life After Paralysis Jul 27, 2014 3:07 AM EDT
We all catch a cold or the flu from time to time and if your anything like me, you want it gone, now or at least feel back to my old self while the malady weasels its way out of my body and mind. There are plentiful over-the-counter medications that have one purpose, decrease the uncomfortable symptoms of the illness but most have unfavorable reactions with... more...
Posted by Candace on Life After Paralysis Jul 24, 2014 2:00 AM EDT

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We are truly honored to join your site and hope to share valuable information and life changing cooperation with eac...
Hi, I am new to this site. My name is Ray and I am a C-6, C-7 incomplete quadriplegic. I broke my neck in a fall in 2005 at th...
Hey Josh, Dr. Falchi at Craig Hospital is the man I turned to for the surgery called the DREZ. If you want to know more yo...
You have just helped save my life. I'm in dire need of relief from the extreme burning all over my legs. Now I just need t...
I want to just say thank you, I have a brother who is in a wheel chair, and I've never thought of it this way. When I ask him...

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