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Last week was a chance to celebrate a friend's 85 th birthday. As you can imagine there were people of all ages in attendance, from the age of three to one hundred offering pleasant and heartfelt greetings on this wonderful day. At some point in idle conversation, how our health is and the subject of the spare parts we all now have when a joint cracks or a disc ... more...
Posted by Candace on Life After Paralysis Jan 27, 2015 3:11 PM EST
Hundreds of books have been written about how to be a good parent, but there seem to be very few about "grandparenthood." I guess the experts figure that once someone has the hang of parenting, helping raise grandkids should be a piece of cake. That is all well and good, but sometimes the presence of a grandparent in a wheelchair complicates things a bit. ... more...
Posted by Michael Collins on Life After Paralysis Jan 26, 2015 9:27 PM EST
The University of Pittsburgh, Department of Rehabilitation Science & Technology Continuing Education Program (RSTCE) announces the 31st International Seating Symposium (ISS). The Reeve Foundation Paralysis Resource Center will be at the 2015 International Seating Symposium February 26-28, 2015 at The Gaylord Opryland Hotel & Convention ... more...
Posted by Community Admin on Daily Dose Jan 26, 2015 9:30 AM EST
While stores will take care of the teddy bears, chocolates, and flowers this Valentine's Day, the Reeve Foundation wants to offer some beautiful Valentine's Day eCards. Cupid... I mean the Reeve Foundation... is asking our community members with a love for art to provide some of their work to feature on these eCards. To give you an idea of what we are ... more...
Posted by Community Admin on Daily Dose Jan 23, 2015 3:17 PM EST
Would you be interested in becoming a certified Reeve Foundation Peer Mentor at the upcoming training in Oklahoma City? Learn more about  INTEGRIS Jim Thorpe Rehabilitation . The Reeve Foundation has scheduled a one-day ... more...
Posted by Community Admin on Daily Dose Jan 23, 2015 1:57 PM EST
Our friends at the American Association on Health and Disability (AAHD) announced the publication of a new fact sheet for the National Disability Navigator Resource Collaborative (NDNRC): “Disability Etiquette – Tips for Interacting with People with Disabilities” is intended to offer guidance to navigators on communicating more effectively ... more...
Posted by Community Admin on Daily Dose Jan 23, 2015 1:25 PM EST
The Reeve Foundation Quality of Life grants program has awarded 2,459 grants totaling over $18.2 million since 1999. The grants are awarded to nonprofit organizations, municipalities, and tribal entities that provide programs and services to individuals with paralysis and their families. Christopher & Dana Reeve Foundation ... more...
Posted by Community Admin on Daily Dose Jan 22, 2015 3:02 PM EST
From the Administration for Community Living : Under the Affordable Care Act, all health plans and issuers are required to provide consumers with a standardized, brief summary of what a health insurance policy or employer plan covers, known as a Summary of Benefits and Coverage. This information allows consumers to make "apples to ... more...
Posted by Community Admin on Daily Dose Jan 22, 2015 2:00 PM EST
Saturday, February 7, 2015 in the Ice World Middletown Sports Complex 3:30 PM Doors Open  | 4:00 PM Program Begins | 4:30 PM Puck Drops PURCHASE TICKETS! About the event WFAN's Boomer & Carton team up with injured New Jersey high school hockey player Mikey Nichols to put on an event following a guest appearance on their show last November. A ... more...
Posted by Community Admin on Daily Dose Jan 21, 2015 5:21 PM EST
In case you haven’t heard, the newly-elected governor of the Great State of Texas is a wheelchair user. As every local pundit agreed, Greg Abbott, a waist-level para, crushed his opponent Wendy Davis, getting almost 60% of the vote. There hasn’t been a disabled governor in America since populist George Wallace’s last term in 1983. ... more...
Posted by ARucker on Life After Paralysis Jan 21, 2015 3:02 PM EST
Generous Reeve Foundation supporters pushed us to the halfway mark in our campaign to make The Big Idea a reality. more...
Posted by Community Admin on Daily Dose Jan 21, 2015 10:48 AM EST
When I awoke on New Year's morning it felt a lot like it did the morning of the day before. My process for getting up, dressed and into my wheelchair took as long as usual, and the cold, cloudy weather cast a somber mood over the day. I felt more like the old bearded guy carrying a sickle than I did the diaper-clad kid in a top hat that usually accompanies him ... more...
Posted by Michael Collins on Life After Paralysis Jan 13, 2015 4:50 PM EST
On the Front Line of Quality: The Future of Health Care The Reeve Foundation Paralysis Resource Center will be at the 2015 American Nurses Association Quality Conference February 4-6, 2015 at Disney's Coronado Springs Resort, where we would like to introduce you to all the great complementary services that the Reeve Foundation Paralysis ... more...
Posted by Community Admin on Daily Dose Jan 12, 2015 1:23 PM EST
The Ohio State University Spinal Cord Injury Training Program (SCITP) is pleased to announce they have been awarded funding from the Craig H. Neilsen Foundation to continue the Spinal Cord Injury Training Program, previously support by the NIH/NINDS. The 2015 course will be offered starting Sunday, May 10, 2015. Applications for the ... more...
Posted by Community Admin on Daily Dose Jan 9, 2015 2:13 PM EST
The year 2014 felt to be a turning point year for me, a really blessed and appreciated year for me so full of new and  completely engaging experiences that presented to me a adjusted map of how I want my life to play out in the coming years. Maybe it had to do with turning sixty about mid-way through the year or maybe it was changing the title of the webcast I ... more...
Posted by Candace on Life After Paralysis Jan 6, 2015 12:51 PM EST
Welcome to the new year. Here’s to the highest of hopes for 2015. It cannot be denied, 2014 was a banner year for research to improve function after chronic spinal cord injury. Clinical trials began in the U.S. with two separate stem cell lines, and with an implanted scaffold. Another stem cell trial, halted four years ago, will reboot soon. Spinal ... more...
Posted by Sam Maddox on Spinal Cord Injury Research Dec 31, 2014 11:25 PM EST
I’m probably mangling his words, but in his welcoming remarks at the 2nd Annual “Hope for the Holidays” Reeve Foundation gala in Los Angeles, Reeve President Peter Wilderotter used the analogy of wandering around a pitch dark room, looking for a light switch, to describe finding a treatment for SCI. In other words, it’s a bit ... more...
Posted by ARucker on Life After Paralysis Dec 30, 2014 2:13 PM EST
Those who are familiar with paralysis realize how devastating and life-changing that diagnosis can be to an individual of any age. Paralysis, resulting in loss of function at a variety of levels, is a sentence to a life that is completely different than what might have been before. However, there is another situation involved, often overlooked, that ... more...
Posted by Michael Collins on Life After Paralysis Dec 30, 2014 2:03 PM EST
Posted by Community Admin on Daily Dose Dec 30, 2014 11:00 AM EST
A global conversation was ignited in this #BestofReeve2014 moment. The Reeve Foundation teamed up with Raw Beauty NYC to host a groundbreaking photography exhibit with photos of 20 women living with physical disabilities. The Raw Beauty Project aims to redefine beauty by challenging stereotypes and breaking down barriers for the millions of women ... more...
Posted by Community Admin on Daily Dose Dec 30, 2014 10:33 AM EST
#BestofReeve2014 has to include the inaugural "Walk to Victory Over Paralysis," a 24-hour fundraising event to rally support for the Christopher & Dana Reeve Foundation NeuroRecovery Network® (NRN). Eight NRN centers nationwide joined the walkathon with hundreds of participants logging miles on treadmills and raising over ... more...
Posted by Community Admin on Daily Dose Dec 30, 2014 9:45 AM EST
Christopher Reeve once said, “Nothing is impossible,” when referring to his recovery. more...
Posted by Community Admin on Daily Dose Dec 30, 2014 9:40 AM EST
As we wrap up 2014 and look to the New Year, we have a great way for you to partner with the Reeve Foundation and make a difference in the here-and-now for individuals living with paralysis. Please consider making a special year-end gift to the Reeve Foundation. Thanks to people like you, four young men who have been paralyzed for years achieved ... more...
Posted by Community Admin on Daily Dose Dec 26, 2014 9:30 AM EST
#BestofReeve2014 takes us back to June when we welcomed the warmer weather by hosting A Walk to Believe : One Step at a Time for Team LeGrand at Rutgers University. Supporters from all over the country came out in droves to raise funds and awareness for the Team LeGrand mission. We shattered our goal, raising over $65,000 and already looking forward to ... more...
Posted by Community Admin on Daily Dose Dec 23, 2014 5:25 PM EST
Not all heroes wear capes or fight crime. Many heroes simply lend a hand to those in need or inspire others through their journey. This #BestofReeve2014 moment is when we had the pleasure of meeting several “everyday heroes” at the inaugura l Warner Bros. Superman Hall of Heroes ceremony in May as reported by Variety . Matthew Reeve ... more...
Posted by Community Admin on Daily Dose Dec 23, 2014 5:22 PM EST
Looking at all of the #BestofReeve2014 moments, we have to highlight the incredible caregivers in our community and all they do for the Christopher & Dana Reeve Foundation. To offer insights and advice, Karen LeGrand started a blog on her life as a mom and a caregiver. In Karen’s words, “If I can help one person by sharing my journey with ... more...
Posted by Community Admin on Daily Dose Dec 23, 2014 3:39 PM EST
Celebrating the #BestofReeve2014 with the biggest moments for the Christopher & Dana Reeve Foundation. 2014 was a watershed year for SCI research. There were many exciting headlines as new treatments and solutions were introduced. In April, we unveiled new research on epidural stimulation, as reported below by USA TODAY . Four young men who were ... more...
Posted by Community Admin on Daily Dose Dec 23, 2014 3:21 PM EST
A daughter telling the compelling story of her father’s amazing recovery. Caring for a quadriplegic isn't easy. Malini said she would like people facing challenges, whatever those challenges may be, to find hope in her family's story. She said she doesn't even remember shooting footage of her family in the hospital. The mini ... more...
Posted by Community Admin on Daily Dose Dec 23, 2014 2:05 PM EST
This has been an extraordinary year of hope for people living with paralysis. With the generosity of Reeve Foundation supporters, groundbreaking epidural stimulation research is transforming lives and helping individuals recover functions once thought to be lost. We are doing exactly what the "experts" said was impossible . Today, ... more...
Posted by Community Admin on Daily Dose Dec 23, 2014 1:33 PM EST
A 52-patient Phase II clinical trial to measure the effect of neural stem cells in chronic cervical spinal cord injury began last week at the Miami Project. The trial, dubbed the Pathway Study, is sponsored by California-based StemCells, Inc., and is an expansion of a safety study of 12 patients with thoracic injuries; that work was done mainly in ... more...
Posted by Sam Maddox on Spinal Cord Injury Research Dec 20, 2014 5:33 PM EST

Recent Comments

A much more clear explanation of what specific services require pa's is something that would be incredible to see in...
Hello, I am new to blogging and I am too paralyzed with a C5 burst fracture incomplete and struggle everyday to get bet...
Sam, Please follow up on this from The Telegraph, U.K., 08 Jan. 2015 by Sarah Knapton, science editor: 'Cyborg' spin...
Many thanks for the good quality of information about SCI which is available in the community.
Sam, thanks for the 2014 summary. The cumulative research is at an exponential beginning.

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