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Recent Blog Posts

The Italian head transplant has come back into the news; the same story surfaced two years ago as HEAVEN , the Head Anastomosis Venture. It didn’t get so much traction, but here it is again, I suppose because Italian surgeon Sergio Canavero has laid out a timeline, and a vision. Within two years, he says, some head will get a new body.   Canavero says ... more...
Posted by Sam Maddox on Spinal Cord Injury Research Feb 27, 2015 1:18 PM EST
The Christopher & Dana Reeve Foundation and Kessler Institute for Rehabilitation came together with Congressman Lance to listen and learn from participants and advocates on the impact of the Christopher & Dana Reeve Foundation Paralysis Resource Center programs. On Wednesday, February 18th, leadership from the Christopher & Dana Reeve ... more...
Posted by Community Admin on Daily Dose Feb 27, 2015 11:12 AM EST
Though February is the shortest month of the year, it often feels like the longest as we battle another month of cold weather. more...
Posted by Community Admin on Daily Dose Feb 26, 2015 10:18 AM EST
Former Rutgers star Eric LeGrand Among Award Recipients during Adam Taliaferro Foundation 15th Anniversary Gala, April 10th, in Philadelphia! The Adam Taliaferro Foundation has announced it will hold its 15th Anniversary Gala on Friday, April 10th, 2015 at The Rittenhouse Hotel in Philadelphia, PA. Former Rutgers University football star Eric ... more...
Posted by Community Admin on Daily Dose Feb 24, 2015 4:17 PM EST
Older adults can't wait. The time is NOW to bring the best, most innovative, and effective services and products to America's aging population. The Reeve Foundation Paralysis Resource Center will be at the 2015 Aging in America ASA Conference March 23-27, 2015 at Hyatt Regency Chicago, where we would like to introduce you to all the great ... more...
Posted by Community Admin on Daily Dose Feb 24, 2015 9:00 AM EST
With a surge in submissions, the Reeve Foundation presented $600,137 in grants to support quality of life initiatives for the paralysis community. The Christopher & Dana Reeve Foundation, a leading nonprofit dedicated to improving quality of life for individuals living with paralysis, announced it has awarded $600,137 in Quality of Life grants to ... more...
Posted by Community Admin on Daily Dose Feb 23, 2015 11:50 AM EST
Earlier this year, Congress introduced legislation -- Medicare Access to Rehabilitation Services Act (H.R. 775) -- that would repeal the Medicare therapy cap once and for all. Last year, Congress did not vote to permanently repeal the Medicare therapy caps but they did pass legislation that extends the Medicare therapy caps exceptions process -- ... more...
Posted by Community Admin on Daily Dose Feb 23, 2015 9:22 AM EST
Thanks to Reeve Foundation supporters and advocates, what was once said to be IMPOSSIBLE is now the inevitable as a result of new research, resources and breakthroughs. Men, women and children living with a spinal cord injury are recovering functions that were once thought to be lost and dramatically improving their quality of life. Please consider ... more...
Posted by Community Admin on Daily Dose Feb 20, 2015 4:24 PM EST
If we are lucky enough to live long enough, parts of our body are going to begin wearing out. Many people my age, and even younger, are moving around on replacement knees and hip joints. For those of us who are paralyzed at various levels, I would argue that two of the most important body parts are the shoulders. We need them for basic mobility (propulsion), ... more...
Posted by Michael Collins on Life After Paralysis Feb 19, 2015 1:02 PM EST
The great divide, the gaping chasm, between the disabled and the non-disabled in this country is work. Post-ADA, so many of the problems people with disabilities face are due to hoary old stereotypes and continual isolation from mainstream Americans. Much of the fear or discomfort that non-disabled people feel toward people like you and me is caused ... more...
Posted by ARucker on Life After Paralysis Feb 18, 2015 11:25 AM EST
I’m experiencing the world’s strong feelings and emotions of anxiety and fear as one of those toys designed to spin that children play with, a spinning top. This toy seems perfectly balanced as the rotating speed keeps it spinning, it almost seems to be a forever and ever perpetual motion machine, never gonna stop spinning. But as the ... more...
Posted by Candace on Life After Paralysis Feb 17, 2015 2:37 PM EST
From our friends at the New England Regional Spinal Cord Injury Center.: Knowledge in Motion SCI Webcast Series for individuals living with spinal cord injury, their caregivers, & healthcare professionals. more...
Posted by Community Admin on Daily Dose Feb 17, 2015 2:18 PM EST
Last month's web chat was so powerful and engaging that we weren't able to contain it in just one hour. So we've decided to continue the discussion around trauma for March. Wednesday, March 4, 2015 3PM ET Register here. Free online discussion! Call in and chat live with Dr. Dan Gottlieb, our online community's resident psychologist. What ... more...
Posted by Community Admin on Daily Dose Feb 17, 2015 1:34 PM EST
Thank you to all who came to support Mike Nichols at the Boomer & Carton/Mikey Strong 23 Hockey Game on Saturday, February, 7th. We had a packed house of over 2000 fans, at Ice World in Middletown , New Jersey. The game featured several NHL alumni representing the Devils, Islanders and Rangers; including Bruce Driver, Colin White, Grant Marshall, Steve ... more...
Posted by Community Admin on Daily Dose Feb 17, 2015 1:14 PM EST
Join us for our Live Better series presented by the Reeve Foundation Paralysis Community. Adapting Life with Candace Cable Wednesday, February 11, 2 015 3:00 PM ET This online event is free to attend. Register here! In Candace's monthly webcasts, she addresses current topics that affect individuals living with paralysis and brings in guest speakers ... more...
Posted by Community Admin on Daily Dose Feb 10, 2015 9:30 AM EST
ACL expands program for aging and disability community-based networks to strengthen partnerships with the health care sector in 11 communities . Non-profits to learn critical business skills, create a learning collaborative. Building on a successful pilot project, ACL is expanding its program to improve integration between hospitals, ... more...
Posted by Community Admin on Daily Dose Feb 9, 2015 5:00 PM EST
Thousands with disabilities experience their possibilities at Abilities Expo. Admission is free! The Reeve Foundation Paralysis Resource Center will be at the 2015 Abilities Expo LA March 6-8, 2015 at Los Angeles Convention Center, West Hall A, where we would like to introduce you to all the great complementary services that the Reeve Foundation ... more...
Posted by Community Admin on Daily Dose Feb 6, 2015 9:00 AM EST
I am the chair of the Writers with Disabilities Committee at the Writers Guild of America West and our job is to get TV and film producers to hire more disabled writers and at the same time include more characters/actors in their shows and films. To this end we recently produced a PSA to make that point. It's called "Look Around" and is one ... more...
Posted by ARucker on Life After Paralysis Feb 5, 2015 7:00 PM EST
J oin Sonal Shah unveil her inspiring book! My Life, Legacy and ALS describes the realities of living with ALS (Lou Gehrig's Disease) and tells how Sonal found a renewed sense of purpose in advocating for ALS patients. Sonal's story challenges us to create our own unique legacy. Book Launch is Sunday, February 8th from 2 - 4 pm. Hosted by the Olde Mill Inn ... more...
Posted by Community Admin on Daily Dose Feb 5, 2015 2:48 PM EST
Apprehension has been a constant presence in my life for the past 27 years, and probably will continue to be during whatever time I have left. Each day starts the same, as I lie in bed waiting to hear the familiar sound of the power door opener which signals the arrival of my morning caregiver. On a good day, that door will open. An even better day starts when ... more...
Posted by Michael Collins on Life After Paralysis Feb 5, 2015 1:36 PM EST
From our friends at ACL.gov : Design innovative healthcare transportation solutions with grant and support from the NCMM. Applications due 3/27/15. more...
Posted by Community Admin on Daily Dose Feb 5, 2015 1:27 PM EST
Continuing the discussion with free monthly webcasts  with Dr. Dan Gottlieb , our online community's resident psychologist. This event has passed. You may view the webchat here. How do we work through Posttraumatic stress disorder (PTSD) without reliving the nightmare over and over again? Many of us for many different reasons get stuck in our trauma ... more...
Posted by Community Admin on Daily Dose Feb 4, 2015 12:27 PM EST
New in the PRC Library… Our Daddy is Invincible! By Shannon Maxwell . Illustrated by Liza Biggers. Foreword by Alexis Maxwell. 4th Division Press, 2010. Our Daddy is Invincible! is based on the true story of a wounded warrior and his family. Author Shannon Maxwell was inspired to write this unique children’s book after her husband, LtCol. Tim Maxwell, ... more...
Posted by Sheila Fitzgibbon on Daily Dose Feb 3, 2015 12:22 PM EST
Please join us! Boomer & Carton/Mikey Strong 23 Benefit Hockey Game Saturday, February 7, 2015 Ice World Middletown Sports Complex 214 Harmony Rd, Middletown, NJ 07748 3:30 PM Doors Open 4:00 PM Program Begins 4:30 PM Puck Drops Online Tickets $23.00 ... more...
Posted by Community Admin on Daily Dose Feb 2, 2015 3:22 PM EST
Recently, Rob, Kent, Drew, and Dustin -- the first four people to receive life-changing epidural stimulation -- got together to make a short video as a way to say thank you to those generous individuals who rallied behind The Big Idea . As we welcomed 2015, we also celebrated a major milestone -- the halfway mark of The Big Idea campaign -- over $7.5 million ... more...
Posted by Community Admin on Daily Dose Feb 2, 2015 2:17 PM EST
The Christopher & Dana Reeve Foundation campaign, The Big Idea , announced last fall, is raising money to enroll 36 spinal cord injury patients in a clinical trial to prove in meaningful terms that epidural spinal cord stimulation is a valid therapy leading to significant improvement of cardiovascular, respiratory, bladder, bowel and sexual ... more...
Posted by Sam Maddox on Spinal Cord Injury Research Jan 31, 2015 10:32 PM EST
Martyn Goulding and his group at the Salk Institute for Biological Studies in La Jolla, Calif., published a very cool paper this week in the journal Cell describing how the spinal cord acts as a “mini-brain” to help mammals attain motor control and balance. In other words, they posit that smart spinal cord circuitry, and not solely the direct input of the ... more...
Posted by Sam Maddox on Spinal Cord Injury Research Jan 31, 2015 2:17 AM EST
As we wrap up the first month of 2015, I want to wish everyone a successful start to the year. I am already excited to see what this year has in store for me. I am always weary of New Year's resolutions. It seems as though everyone sets them without appreciating the importance of following through. I know it is critical to stay on track with every goal set -- that ... more...
Posted by Community Admin on Daily Dose Jan 29, 2015 12:34 PM EST
Last week was a chance to celebrate a friend's 85 th birthday. As you can imagine there were people of all ages in attendance, from the age of three to one hundred offering pleasant and heartfelt greetings on this wonderful day. At some point in idle conversation, how our health is and the subject of the spare parts we all now have when a joint cracks or a disc ... more...
Posted by Candace on Life After Paralysis Jan 27, 2015 3:11 PM EST
Hundreds of books have been written about how to be a good parent, but there seem to be very few about "grandparenthood." I guess the experts figure that once someone has the hang of parenting, helping raise grandkids should be a piece of cake. That is all well and good, but sometimes the presence of a grandparent in a wheelchair complicates things a bit. ... more...
Posted by Michael Collins on Life After Paralysis Jan 26, 2015 9:27 PM EST

Recent Comments

have they already picked there 36 volunteers? i know a young man rotting away in anursing facility because he has no h...
I'm 53 and have been racing since I got in the chair at 35. Last year I had my first bout with shoulder pain. I found out it...
To illustrate my blog I chose an online photo of Australian Paralympic Champion Louise Sauvage, due to her massive s...
The Army considers November to be Caregiver Appreciation Month, due to the value of the services provided to our nat...
Dig, One good thing in the favor of anyone with a SCI is that there is no 'off-season' when it comes to research. Scient...

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