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Recent Blog Posts

Dingle: The Helpful Ice Cream Cone Delivery Dog. By Audrey Kinsella Illustrated by Susan Anderson-Shorter AuthorHouse, 2010. www.authorhouse.com Young readers will appreciate the message, along with the wonderful illustrations, in this children’s book. Dingle wants to be helpful; but his owner has yet to train him as a service dog... more...
Posted by Sheila Fitzgibbon on Daily Dose Oct 31, 2014 11:47 AM EDT
Because of the steadfast support of Reeve Foundation partners who fund vital paralysis research, we are closer than ever before to the cures so many members of our community need . This fall we launched The Big Idea campaign and at the end of this study, we will have a critical mass of data needed to propel epidural stimulation to the forefront of care for... more...
Posted by Community Admin on Daily Dose Oct 31, 2014 8:30 AM EDT
This weekend I had the honor of traveling to Boston, MA to celebrate another milestone for the Christopher & Dana Reeve Foundation. On Saturday, we welcomed our 14th NeuroRecovery Network® (NRN) site -- Journey Forward. The news was unveiled at the 5th annual Journey Forward: WALK event in which community members came out in droves to support the... more...
Posted by Community Admin on Daily Dose Oct 30, 2014 8:30 AM EDT
Help fast-track the most promising therapy for people living with paralysis to date -- epidural stimulation. Make your special tax-deductible contribution online today. Rob Summers was the first person to undergo this revolutionary therapy. He was paralyzed from the neck down when a hit-and-run driver injured his C6 vertebrae. Doctors initially... more...
Posted by Community Admin on Daily Dose Oct 29, 2014 8:30 AM EDT
The month of October is and has been since 1945 National Disability Employment Awareness Month, or NDEAM. Well that’s not entirely true; there’s been an evolution of some sort, with dates and names, to get to where we are now with NDEAM. In 1945 Congress enacted a resolution that a week in October would be dedicated to National Employ the... more...
Posted by Candace on Life After Paralysis Oct 27, 2014 4:20 PM EDT
The Christopher & Dana Reeve Foundation announced Saturday, October 25, 2014, that Journey Forward has joined the Reeve Foundation NeuroRecovery Network® (NRN) . The news was unveiled at the 5th annual Journey Forward: WALK. The facility will operate as an NRN Community Fitness and Wellness (CFW) center , which offers effective... more...
Posted by Community Admin on Daily Dose Oct 27, 2014 10:45 AM EDT
The importance of preventive healthcare for those with spinal cord injuries is well known. However, research suggests that patients living with SCI may have limited physical access to health care and receive fewer preventative services than able-bodied patients.  In addition, many individuals feel that their medical teams do not... more...
Posted by Community Admin on Daily Dose Oct 25, 2014 9:00 AM EDT
Regarding the big story this week from Poland .... blazed across the front page of the Times in London, Paralyzed Man Walks Again. I don’t think I’ve ever seen a spinal cord injury cure story taken for such a spectacular spin.   First, let’s hear it for Darek Fidyka, the man who got the stab wound who got his nose cells and nerve grafts put... more...
Posted by Sam Maddox on Spinal Cord Injury Research Oct 24, 2014 8:25 PM EDT
Two of the goals of the search for a cure and epidural stimulation are to regain some control of our bowels and bladders. Until those advances become universally available, it behooves us to maintain our systems in top condition for when that day arrives. The following is a recap of my continuing attempt to do that. I first learned about canals when I was... more...
Posted by Michael Collins on Life After Paralysis Oct 24, 2014 6:31 PM EDT
Would you be interested in becoming a certified Reeve Foundation Peer Mentor at the upcoming training in Grand Blanc, Michigan? Learn more about  STAR Rehab . The Reeve Foundation has scheduled a one-day peer mentor training with our partner, Strength Training... more...
Posted by Community Admin on Daily Dose Oct 24, 2014 12:41 PM EDT
The statistics are not what you’d call eye-popping. Far from it. The annual GLAAD survey of characters with disabilities appearing on mainstream TV found this: the number of regular series characters with disabilities last year – not counting guest roles -- was 11. Hold your applause, please. That is up from seven the year before and the big news... more...
Posted by ARucker on Life After Paralysis Oct 23, 2014 4:01 PM EDT
Nothing exemplifies the Power of We quite like our Team Reeve TCS New York City Marathon team . We come together to train, to raise awareness, and to help fund life changing research. With Team Reeve®, you are not in this alone! Take a moment and read about just a few of the 2014 Team Reeve NYC participants. "I run for... more...
Posted by Community Admin on Daily Dose Oct 22, 2014 1:16 PM EDT
I came across a paper a couple of weeks ago, from the lab of Angelo Lepore, Assistant Professor of Neuroscience at Thomas Jefferson University Medical College. First author is Aditi Falnikar. The lab concentrates on astrocytes, glutamate and spinal cord injury.   Astrocytes are nervous system support cells. Everybody knows that. But did you know... more...
Posted by Sam Maddox on Spinal Cord Injury Research Oct 21, 2014 3:38 PM EDT
A research paper was published by the UCLA-based Reggie Edgerton lab this week with what the authors describe as “substantial” clinical relevance for people living with spinal cord injury. The work, titled “Initiation of Bladder Voiding with Epidural Stimulation in Paralyzed, Step Trained Rats,” appeared in the... more...
Posted by Sam Maddox on Spinal Cord Injury Research Oct 17, 2014 4:36 PM EDT
If anyone had told me that there was something "special" about using a wheelchair when I first became paralyzed about 27 years ago, I would have told them that they didn't know what they were talking about. The situation I faced at that time was unknown, challenging and even a bit frightening.  It is important to understand that when... more...
Posted by Michael Collins on Life After Paralysis Oct 16, 2014 3:46 PM EDT
By definition, regulation is a way to control or govern and influence the direction of a system. I like to think of my body as my beautiful, valuable, and elaborate collection of systems that can take me where I want to go. As long I regulate my systems, or monitor and take care of my systems, to one degree or another when I want to press  the “all... more...
Posted by Candace on Life After Paralysis Oct 15, 2014 11:17 AM EDT
It is hard to believe that it has been a quick 10 years since Christopher Reeve died. As an employee, I remember receiving an urgent call on a weekend night. My co-worker told me she had very bad news. Immediately, my mind went to two employees on my team who were flying out of Atlanta on a stormy day -- I feared something had happened to them.  The thought... more...
Posted by Community Admin on Daily Dose Oct 14, 2014 4:16 PM EDT
Earlier this year, we brought you the exciting news that as a result of epidural stimulation of the lower spinal cord, four young men, all classified with a chronic motor spinal cord injury, were able to move their legs and stand. This was an unprecedented, unparalleled, and unexpected achievement. Even more surprisingly, these men also experienced... more...
Posted by Community Admin on Daily Dose Oct 10, 2014 8:00 AM EDT
On the eve of the 10th anniversary of Christopher Reeve's passing, we have a chance to change the future of what it means to live with paralysis and we need your help. more...
Posted by Community Admin on Daily Dose Oct 9, 2014 6:49 PM EDT
The Rehabilitation Research and Training Center (RRTC) on Employment of People with Physical Disabilities is seeking individuals with physical disabilities ages 18 to 64 for focus groups to explore their work experiences , including what has helped them find a job and advance in their careers. Specifically, they are interested in talking with... more...
Posted by Community Admin on Daily Dose Oct 6, 2014 3:05 PM EDT
The National Institute on Disability and Rehabilitation Research (NIDRR) funded  Rehabilitation Research and Training Center on Promoting Healthy Aging for Individuals with Long-Term Physical Disabilities  is recruiting individuals with multiple sclerosis, muscular dystrophy, post-polio syndrome and spinal cord injury for... more...
Posted by Community Admin on Daily Dose Oct 6, 2014 2:45 PM EDT
Three years ago, I participated in a state-wide disaster table-top exercise. I pointed out that certain procedures excluded people with disabilities. One of the people in charge calmly told me that “in the case of a true disaster, difficult choices would have to be made.” He already understood that PWD were being excluded and he was ok... more...
Posted by JenLongdon on Life After Paralysis Oct 2, 2014 9:30 AM EDT
General contractor and master home problem-solver Bob Kantner has great tips to share with you that will make day-to-day activities around your home just that much easier. Take a look at the great videos he has done for our Reeve Health Minute series. Bob has been building things since he was a boy and has been constructing high-end houses since 1968.... more...
Posted by Community Admin on Daily Dose Oct 2, 2014 8:30 AM EDT
Grégoire Courtine and his team at the Ecole Polytechnique Fédérale de Lausanne (EPVL) published a cool paper last week, taking the concept of epidural stimulation and spinal cord activation to new territory. They already showed that they could get paralyzed rats to walk and run well on a treadmill, and even over ground and up... more...
Posted by Sam Maddox on Spinal Cord Injury Research Sep 30, 2014 10:40 PM EDT
This month of September has been dedicated to National Spinal Cord Injury (SCI) Awareness. To celebrate this month, the Reeve Foundation has asked the community to share experiences and information about secondary conditions that can accompany a SCI. The secondary conditions are as vast and varied just as the results of SCI are. I know this may sound... more...
Posted by Candace on Life After Paralysis Sep 30, 2014 1:01 PM EDT
Reflection from Emily Ladau, a model for Raw Beauty NYC As a visibly disabled woman, I'm often made to feel, during public outings, that I am on display. Using a wheelchair makes me noticeable, turning me into a sight that – despite it being the 21st century – still causes far too many people to stare as though I'm an otherworldly museum piece. My... more...
Posted by Community Admin on Daily Dose Sep 30, 2014 10:55 AM EDT
New in the PRC Lending Library … Push Girl: A Novel. By Chelsie Hill and Jessica Love. Thomas Dunne Books, 2014. Author Chelsie Hill , co-founder of the non-profit the Walk & Roll Foundation , was inspired to write this novel after becoming paralyzed from the waist down at the age of seventeen. Hill’s experiences are reflected in the pages of the... more...
Posted by Sheila Fitzgibbon on Daily Dose Sep 30, 2014 10:12 AM EDT
September has gone by so quickly, and I want to take just a few minutes to thank everyone before the leaves start falling. First, I appreciate all the birthday love this month and every year. Your support since I was injured really means a lot to me and helps keep me pushing on. It's also special to me that I share a birthday month with Christopher Reeve. ... more...
Posted by Community Admin on Daily Dose Sep 30, 2014 10:02 AM EDT
Sepsis Alliance hosted its 3rd annual Celebration of Sepsis Heroes, taking place during Sepsis Awareness Month , on September 18, 2014 in New York City. The Reeve Foundation was delighted to be a part of their celebration. The annual event, now in its third year, brings together sepsis survivors, family members, patient advocates, healthcare... more...
Posted by Community Admin on Daily Dose Sep 29, 2014 1:13 PM EDT
From Aaron Bishop, Commissioner, Administration on Intellectual and Developmental Disabilities (AIDD) as posted on the ACL Blog : more...
Posted by Community Admin on Daily Dose Sep 29, 2014 12:22 PM EDT

Recent Comments

Hey Candace, i'm living proof that we can do anything we put our minds to !!! I'm a C-5/6 Incomplete, BUT also a Physici...
Sam I agree with most of what you say, but I would like to add a few considerations: 1) In my opinion the first paper abou...
T-4 for fourteen years . I sure would like to get back on a horse.my accident was because I didn't have my seat belt on wh...
Hi Sam - There's continued talk about various improvements in the lives of patients who have been treated with epidu...
We are truly honored to join your site and hope to share valuable information and life changing cooperation with eac...

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