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A 52-patient Phase II clinical trial to measure the effect of neural stem cells in chronic cervical spinal cord injury began last week at the Miami Project. The trial, dubbed the Pathway Study, is sponsored by California-based StemCells, Inc., and is an expansion of a safety study of 12 patients with thoracic injuries; that work was done mainly in... more...
Posted by Sam Maddox on Spinal Cord Injury Research Dec 20, 2014 5:33 PM EST
My gift-giving list for the holidays is fairly short, by necessity. My bank account suffers from the usual end-of-month bills, and it wasn't very large to begin with thanks to my life with this spinal cord injury. Making sure my personal care attendants are reimbursed, rent is paid, insurance updated, groceries purchased and all utilities are... more...
Posted by Michael Collins on Life After Paralysis Dec 19, 2014 2:39 PM EST
Happy holidays to you and yours! This is a special time of year as we start to think about what surprises the New Year holds for us. At this moment, I want to relish in what a momentous year it's been and celebrate the many highlights for Team LeGrand. Together we worked so hard to make 2014 a triumphant year that will be very hard to top. With your... more...
Posted by Community Admin on Daily Dose Dec 19, 2014 10:48 AM EST
The #BestofReeve2014 celebrates all that we have accomplished together this past year. This one story took Team Reeve to an all time high...literally. Dressed in his Superman best, FOX23 News shared this breathtaking video of Brandon Stone's skydive that raised over $10,000 for the Reeve Foundation. Thank you to all of our Team Reeve members who... more...
Posted by Community Admin on Daily Dose Dec 19, 2014 10:40 AM EST
Today, there is a meeting to discuss the difference between inpatient rehabilitation facilities and skilled nursing facilities and how that can impact Medicare coverage of these facilities. We at the Christopher & Dana Reeve Foundation believe that there is a significant difference in outcomes when receiving care from an inpatient... more...
Posted by Community Admin on Daily Dose Dec 18, 2014 2:57 PM EST
With 2014 sprinting to a close, I would like to take a moment and reflect on what has been a watershed year for the Reeve Foundation. With new programs and research breakthroughs, we have transformed the impossible into the inevitable and worked tirelessly to deliver on Christopher’s dream of a world of empty wheelchairs. Thanks to your support... more...
Posted by Community Admin on Daily Dose Dec 18, 2014 2:42 PM EST
The United States House of Representatives passed the  “Achieving a Better Life Experience (ABLE) Act with overwhelming approval with a vote of 404-17 on December 3rd. This act will create new tax-exempt investment accounts for people born with disabilities, such as spinal cord injury and paralysis, to save for future expenses, such as... more...
Posted by Community Admin on Daily Dose Dec 17, 2014 12:39 PM EST
I t’s time for the season of holiday travel. Planning for bouncing along the highways, clicking on train tracks or zipping through airports to spend precious moments with family and friends can swiftly develop into torture. To help cut down on  the dread and brain burnout I’ve gathered some ideas to consider and actions to take that... more...
Posted by Candace on Life After Paralysis Dec 16, 2014 11:58 PM EST
Trinity College in Dublin, Becket's alma mater, hosted an exhibition this year called Fail Better . It was, indeed, a celebration of trying and not succeeding, leading to better tries, better results. And sometimes better failures. Among the exhibits at the show was "Superman's Wheelchair," featuring Christopher Reeve's... more...
Posted by Community Admin on Daily Dose Dec 16, 2014 12:12 PM EST
A very neat experiment was reported earlier this month showing that a new kind of drug, injected under the skin early after injury, can improve functional recovery of paralyzed animals. The work, published in the leading journal Nature , comes from the Jerry Silver group at Case Western in Cleveland, and continues the lab’s long-term focus on... more...
Posted by Sam Maddox on Spinal Cord Injury Research Dec 15, 2014 6:04 PM EST
The Christopher & Dana Reeve Foundation Peer & Family Support Program (PFSP) held a peer mentor training in Grand Blanc, Michigan yesterday in conjunction with our partner, Strength Training and Recovery (STAR Rehab). The training was led by Tom Hoatlin, our Midwest Regional Coordinator. more...
Posted by Community Admin on Daily Dose Dec 11, 2014 11:29 AM EST
Our 2014 Gift Guide for Individuals Living with Paralysis is filled with great gift ideas to help you wrap up your holiday shopping. We have selected a wide range of fun gifts tailored based on interests/hobbies, creativity and level of injury. Do you need some ideas for a tech lover ? Your favorite fashionista ? The family chef ? We've got them. Take a... more...
Posted by Community Admin on Daily Dose Dec 11, 2014 11:04 AM EST
Get ready to laugh -- look who is performing at Hope for the Holidays! Are you coming? Register now. Sunday, December 7, 2014 Ritz-Carlton Marina del Rey, CA Doors open at 4:00 PM Hope for the Holidays this year features a live and silent auction, a special comedy show with Cathy Ladman and Taylor Tomlinson, the... more...
Posted by Community Admin on Daily Dose Dec 4, 2014 5:44 PM EST
Are you looking for the "perfect gift" for everyone on your holiday list? We can help. Check out our 2014 Gift Guide for Individuals Living with Paralysis . This year's Gift Guide has some fun, exciting, and useful products in nine categories based on interests/hobbies, creativity and level of injury. Also, many of our special gifts... more...
Posted by Community Admin on Daily Dose Dec 4, 2014 2:44 PM EST
The Society for Neuroscience (SFN) annual meeting recently concluded its gigantic week-long data drop. This meeting is something to behold; Washington D.C., overrun with neurogeeks, hosted the world’s largest gathering of scientists who work on brain and spinal cord research, 30,000 strong from more than 80 countries. They gather to share... more...
Posted by Sam Maddox on Spinal Cord Injury Research Nov 30, 2014 2:23 PM EST
First there was road rage and we’ve all seen the news footage of some clown on the freeway pointing a 12 gauge shotgun at a little old lady who won’t get out of his way. Then there was ‘roid rage, hunky steroid users trashing entire bars because their beer is too warm. Now comes a third form of rageaholism, not as lethal in most cases, but... more...
Posted by ARucker on Life After Paralysis Nov 28, 2014 3:22 PM EST
I hope you enjoyed a wonderful Thanksgiving with your family and friends. These months are going by so fast and now we have officially entered the holiday season. As another year comes to a close, I start to reflect on all we have accomplished with Team LeGrand and the people who have supported our mission to advance the care and discover cures for... more...
Posted by Community Admin on Daily Dose Nov 28, 2014 9:00 AM EST
It has always amazed me how much power there is in words that end in N'T . Beginning when we are very young, we are often told that we shouldn't do things, or simply told " don't do that." For those of us with spinal cord injuries or similar paralyzing disabilities, far too often the words that are used to express our limited capabilities... more...
Posted by Michael Collins on Life After Paralysis Nov 26, 2014 5:59 PM EST
November is my favorite time of year. Not only does this month signal the change of seasons, it also marks a time to recognize those who mean the most to us and offer our thanks. Thank you for all that you have done to help us change the future for those living with paralysis. This has been a watershed year for the Reeve Foundation as we move life-changing... more...
Posted by Community Admin on Daily Dose Nov 25, 2014 4:18 PM EST
This is my first, maybe only, book review, who knows but I’ve been moved by this book to share it with you. I know that I was to write a blog about What To Know Before You Travel and I will next week, but for now, check this out. I knew about Amanda Palmer from her music, she calls a mix of cabaret and punk, her Kickstarter campaign that topped out at 1.2... more...
Posted by Candace on Life After Paralysis Nov 25, 2014 11:10 AM EST
Would you be interested in becoming a certified Reeve Foundation Peer Mentor at the upcoming training in Washington, D.C.? Learn more about  MedStar Washington Hospital Center . The Reeve Foundation has scheduled a one-day peer mentor training with our... more...
Posted by Community Admin on Daily Dose Nov 24, 2014 12:40 PM EST
There is a schism developing in the paralysis community. It is only a small crack right now and may never grow into anything substantial. On the other hand, it could become a major point of friction in the not too distant future. The schism is between those -- given the amazing pace of paralysis research -- who may soon be walking again and those who will... more...
Posted by ARucker on Life After Paralysis Nov 20, 2014 3:06 PM EST
Here is an easy way you can help change the future for men and women living with paralysis. Become a part of our exciting campaign, The Big Idea, to fast-track an unprecedented breakthrough therapy -- epidural stimulation. The Big Idea is the most ambitious campaign in Reeve history to raise $15 million for the next phase of epidural stimulation... more...
Posted by Community Admin on Daily Dose Nov 18, 2014 1:54 PM EST
We will be at the Abilities Expo Bay Area November 20-23, 2014 at the San Jose McEnery Convention Center, where we would like to introduce you to all the great complementary services that the Reeve Foundation Paralysis Resource Center has to offer! more...
Posted by Community Admin on Daily Dose Nov 17, 2014 9:00 AM EST
"Your life is in your hands. Your life is what you make it," a brief but memorable statement from an extraordinary woman, Cecelia Fred . Cecelia, a paraplegic, was one of nearly one thousand attendees at the 2014 Southwest Conference on Disability in Albuquerque, NM last month. A four day affair that provided individuals living with, as well... more...
Posted by Community Admin on Daily Dose Nov 14, 2014 11:53 AM EST
November is one of my favorite months out of the year. Not only are we officially transitioning to fall with vibrant colors blanketing the outdoors, it is also that time of year when we give thanks to those that we love and respect. Interestingly enough, November is also National Family Caregivers Month to celebrate those who devote their time, energy... more...
Posted by KarenLeGrand on Life After Paralysis Nov 13, 2014 1:46 PM EST
The words health and wellness are often found together in a well-understood phrase, as they are directly related. Failing to work at maintaining good wellness can mean that our health suffers. Life with a spinal cord injury requires being vigilant about wellness, through proper diet, good hydration and some type of regular exercise to the best of our... more...
Posted by Michael Collins on Life After Paralysis Nov 11, 2014 5:05 PM EST
I relish traveling, exploring new places, I’m quite adventurous and for as long as I can remember I’ve been on the go and I will do so for as long as I can, I will seek the world beyond my four walls of home. My Mother tells a story about how, when I was a toddler, she felt she had no choice but to tie one of my legs to a bar in my playpen to keep me safe,... more...
Posted by Candace on Life After Paralysis Nov 11, 2014 12:53 PM EST
This may seem like a silly proposition, but it’s not. Suffering – the emotional kind – is endemic to contracting paralysis. It is also endemic to losing a spouse, having a mental illness, having a kid with a mental illness, a whole host of life’s traumas. No doubt there are people who become paralyzed, accept it, and go on, but I’ve... more...
Posted by ARucker on Life After Paralysis Nov 6, 2014 4:22 PM EST
Our friends at the VSA and Accessibility Office at the Kennedy Center have shared with us a list of calls for art, professional development opportunities, and exciting upcoming events for visual and performing artists with and without disabilities. Performing and Visual Arts Opportunities (listed in order of... more...
Posted by Community Admin on Daily Dose Nov 3, 2014 3:49 PM EST

Recent Comments

Thanks for the great note, Zuzu. I'm not sure it's in my DNA; pretty convinced it is in my mind, my perspective, my own e...
No one with a disability who can be treated or supported in a community setting should be allowed to languish in a nurs...
It's in your DNA, your personality type. And it's difficult to overcome. I'm frequently irritated by people who don...
by zuzu on Roll Rage
Just read this to add to the discussion - http://www.newmobility.com/2014/12/embedded-nursing-home/
So how did you do it? How do I help people who are being given the n'ts in their lives. There's a 32 year old young man who h...

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