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It has always amazed me how much power there is in words that end in N'T . Beginning when we are very young, we are often told that we shouldn't do things, or simply told " don't do that." For those of us with spinal cord injuries or similar paralyzing disabilities, far too often the words that are used to express our limited capabilities... more...
Posted by Michael Collins on Life After Paralysis Nov 26, 2014 5:59 PM EST
November is my favorite time of year. Not only does this month signal the change of seasons, it also marks a time to recognize those who mean the most to us and offer our thanks. Thank you for all that you have done to help us change the future for those living with paralysis. This has been a watershed year for the Reeve Foundation as we move life-changing... more...
Posted by Community Admin on Daily Dose Nov 25, 2014 4:18 PM EST
This is my first, maybe only, book review, who knows but I’ve been moved by this book to share it with you. I know that I was to write a blog about What To Know Before You Travel and I will next week, but for now, check this out. I knew about Amanda Palmer from her music, she calls a mix of cabaret and punk, her Kickstarter campaign that topped out at 1.2... more...
Posted by Candace on Life After Paralysis Nov 25, 2014 11:10 AM EST
Would you be interested in becoming a certified Reeve Foundation Peer Mentor at the upcoming training in Washington, D.C.? Learn more about  MedStar Washington Hospital Center . The Reeve Foundation has scheduled a one-day peer mentor training with our... more...
Posted by Community Admin on Daily Dose Nov 24, 2014 12:40 PM EST
There is a schism developing in the paralysis community. It is only a small crack right now and may never grow into anything substantial. On the other hand, it could become a major point of friction in the not too distant future. The schism is between those -- given the amazing pace of paralysis research -- who may soon be walking again and those who will... more...
Posted by ARucker on Life After Paralysis Nov 20, 2014 3:06 PM EST
Here is an easy way you can help change the future for men and women living with paralysis. Become a part of our exciting campaign, The Big Idea, to fast-track an unprecedented breakthrough therapy -- epidural stimulation. The Big Idea is the most ambitious campaign in Reeve history to raise $15 million for the next phase of epidural stimulation... more...
Posted by Community Admin on Daily Dose Nov 18, 2014 1:54 PM EST
We will be at the Abilities Expo Bay Area November 20-23, 2014 at the San Jose McEnery Convention Center, where we would like to introduce you to all the great complementary services that the Reeve Foundation Paralysis Resource Center has to offer! more...
Posted by Community Admin on Daily Dose Nov 17, 2014 9:00 AM EST
"Your life is in your hands. Your life is what you make it," a brief but memorable statement from an extraordinary woman, Cecelia Fred . Cecelia, a paraplegic, was one of nearly one thousand attendees at the 2014 Southwest Conference on Disability in Albuquerque, NM last month. A four day affair that provided individuals living with, as well... more...
Posted by Community Admin on Daily Dose Nov 14, 2014 11:53 AM EST
November is one of my favorite months out of the year. Not only are we officially transitioning to fall with vibrant colors blanketing the outdoors, it is also that time of year when we give thanks to those that we love and respect. Interestingly enough, November is also National Family Caregivers Month to celebrate those who devote their time, energy... more...
Posted by KarenLeGrand on Life After Paralysis Nov 13, 2014 1:46 PM EST
The words health and wellness are often found together in a well-understood phrase, as they are directly related. Failing to work at maintaining good wellness can mean that our health suffers. Life with a spinal cord injury requires being vigilant about wellness, through proper diet, good hydration and some type of regular exercise to the best of our... more...
Posted by Michael Collins on Life After Paralysis Nov 11, 2014 5:05 PM EST
I relish traveling, exploring new places, I’m quite adventurous and for as long as I can remember I’ve been on the go and I will do so for as long as I can, I will seek the world beyond my four walls of home. My Mother tells a story about how, when I was a toddler, she felt she had no choice but to tie one of my legs to a bar in my playpen to keep me safe,... more...
Posted by Candace on Life After Paralysis Nov 11, 2014 12:53 PM EST
This may seem like a silly proposition, but it’s not. Suffering – the emotional kind – is endemic to contracting paralysis. It is also endemic to losing a spouse, having a mental illness, having a kid with a mental illness, a whole host of life’s traumas. No doubt there are people who become paralyzed, accept it, and go on, but I’ve... more...
Posted by ARucker on Life After Paralysis Nov 6, 2014 4:22 PM EST
Our friends at the VSA and Accessibility Office at the Kennedy Center have shared with us a list of calls for art, professional development opportunities, and exciting upcoming events for visual and performing artists with and without disabilities. Performing and Visual Arts Opportunities (listed in order of... more...
Posted by Community Admin on Daily Dose Nov 3, 2014 3:49 PM EST
Every year we create a "Holiday Gift Guide for Individuals Living with Paralysis." Unlike other gift guides, this one is specifically created and filled with thoughtful and useful gift ideas for wheelchair users and individuals living with spinal cord injury. The list wouldn't be the same if we didn't reach out to our community... more...
Posted by Community Admin on Daily Dose Nov 1, 2014 8:00 AM EDT
Dingle: The Helpful Ice Cream Cone Delivery Dog . By Audrey Kinsella Illustrated by Susan Anderson-Shorter AuthorHouse, 2010. www.authorhouse.com Young readers will appreciate the message, along with the wonderful illustrations, in this children’s book. Dingle wants to be helpful; but his owner has yet to train him as a service dog because... more...
Posted by Sheila Fitzgibbon on Daily Dose Oct 31, 2014 11:47 AM EDT
Because of the steadfast support of Reeve Foundation partners who fund vital paralysis research, we are closer than ever before to the cures so many members of our community need . This fall we launched The Big Idea campaign and at the end of this study, we will have a critical mass of data needed to propel epidural stimulation to the forefront of care for... more...
Posted by Community Admin on Daily Dose Oct 31, 2014 8:30 AM EDT
This weekend I had the honor of traveling to Boston, MA to celebrate another milestone for the Christopher & Dana Reeve Foundation. On Saturday, we welcomed our 14th NeuroRecovery Network® (NRN) site -- Journey Forward. The news was unveiled at the 5th annual Journey Forward: WALK event in which community members came out in droves to support the... more...
Posted by Community Admin on Daily Dose Oct 30, 2014 8:30 AM EDT
Help fast-track the most promising therapy for people living with paralysis to date -- epidural stimulation. Make your special tax-deductible contribution online today. Rob Summers was the first person to undergo this revolutionary therapy. He was paralyzed from the neck down when a hit-and-run driver injured his C6 vertebrae. Doctors initially... more...
Posted by Community Admin on Daily Dose Oct 29, 2014 8:30 AM EDT
The month of October is and has been since 1945 National Disability Employment Awareness Month, or NDEAM. Well that’s not entirely true; there’s been an evolution of some sort, with dates and names, to get to where we are now with NDEAM. In 1945 Congress enacted a resolution that a week in October would be dedicated to National Employ the... more...
Posted by Candace on Life After Paralysis Oct 27, 2014 4:20 PM EDT
The Christopher & Dana Reeve Foundation announced Saturday, October 25, 2014, that Journey Forward has joined the Reeve Foundation NeuroRecovery Network® (NRN) . The news was unveiled at the 5th annual Journey Forward: WALK. The facility will operate as an NRN Community Fitness and Wellness (CFW) center , which offers effective... more...
Posted by Community Admin on Daily Dose Oct 27, 2014 10:45 AM EDT
The importance of preventive healthcare for those with spinal cord injuries is well known. However, research suggests that patients living with SCI may have limited physical access to health care and receive fewer preventative services than able-bodied patients.  In addition, many individuals feel that their medical teams do not... more...
Posted by Community Admin on Daily Dose Oct 25, 2014 9:00 AM EDT
Regarding the big story this week from Poland .... blazed across the front page of the Times in London, Paralyzed Man Walks Again. I don’t think I’ve ever seen a spinal cord injury cure story taken for such a spectacular spin.   First, let’s hear it for Darek Fidyka, the man who got the stab wound who got his nose cells and nerve grafts put... more...
Posted by Sam Maddox on Spinal Cord Injury Research Oct 24, 2014 8:25 PM EDT
Two of the goals of the search for a cure and epidural stimulation are to regain some control of our bowels and bladders. Until those advances become universally available, it behooves us to maintain our systems in top condition for when that day arrives. The following is a recap of my continuing attempt to do that. I first learned about canals when I was... more...
Posted by Michael Collins on Life After Paralysis Oct 24, 2014 6:31 PM EDT
Would you be interested in becoming a certified Reeve Foundation Peer Mentor at the upcoming training in the Flint area of Grand Blanc, Michigan? Learn more about  STAR Rehab . The Reeve Foundation has scheduled a one-day peer mentor training with our partner,... more...
Posted by Community Admin on Daily Dose Oct 24, 2014 12:41 PM EDT
The statistics are not what you’d call eye-popping. Far from it. The annual GLAAD survey of characters with disabilities appearing on mainstream TV found this: the number of regular series characters with disabilities last year – not counting guest roles -- was 11. Hold your applause, please. That is up from seven the year before and the big news... more...
Posted by ARucker on Life After Paralysis Oct 23, 2014 4:01 PM EDT
Nothing exemplifies the Power of We quite like our Team Reeve TCS New York City Marathon team . We come together to train, to raise awareness, and to help fund life changing research. With Team Reeve®, you are not in this alone! Take a moment and read about just a few of the 2014 Team Reeve NYC participants. "I run for... more...
Posted by Community Admin on Daily Dose Oct 22, 2014 1:16 PM EDT
I came across a paper a couple of weeks ago, from the lab of Angelo Lepore, Assistant Professor of Neuroscience at Thomas Jefferson University Medical College. First author is Aditi Falnikar. The lab concentrates on astrocytes, glutamate and spinal cord injury.   Astrocytes are nervous system support cells. Everybody knows that. But did you know... more...
Posted by Sam Maddox on Spinal Cord Injury Research Oct 21, 2014 3:38 PM EDT
A research paper was published by the UCLA-based Reggie Edgerton lab this week with what the authors describe as “substantial” clinical relevance for people living with spinal cord injury. The work, titled “Initiation of Bladder Voiding with Epidural Stimulation in Paralyzed, Step Trained Rats,” appeared in the... more...
Posted by Sam Maddox on Spinal Cord Injury Research Oct 17, 2014 4:36 PM EDT
If anyone had told me that there was something "special" about using a wheelchair when I first became paralyzed about 27 years ago, I would have told them that they didn't know what they were talking about. The situation I faced at that time was unknown, challenging and even a bit frightening.  It is important to understand that when... more...
Posted by Michael Collins on Life After Paralysis Oct 16, 2014 3:46 PM EDT
By definition, regulation is a way to control or govern and influence the direction of a system. I like to think of my body as my beautiful, valuable, and elaborate collection of systems that can take me where I want to go. As long I regulate my systems, or monitor and take care of my systems, to one degree or another when I want to press  the “all... more...
Posted by Candace on Life After Paralysis Oct 15, 2014 11:17 AM EDT

Recent Comments

Thank you for your very interesting and thought provoking points of view.
You're right that there will be a divide between those helped by new discoveries and those who won't be, whether it's...
Just watched Amanda's Ted talk and totally enjoyed it. I've found that it's easy for me to ask for help for others, but...
Great points . I was injured 33 years ago; complete t4 . I know I will never be cued, nor will I ever have movement below m...
Perhaps you are confused. There is currently no cure for polio-polio has been prevented in many cases by a vaccine. Y...

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