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Recent Blog Posts

UA Adapted Athletics Department will soon have a brand new facility for their adapted athletics programs. Friday, February 5th, the UA System Board of Trustees approved a $10 million budget to construct a brand new facility on the University of Alabama campus, which will become the new home for the adapted athletics programs. The 2-story building ... more...
Posted by Community Admin on Daily Dose Feb 8, 2016 10:02 AM EST
When it comes to overcoming adversity, Deborah Mellen and her fellow volunteers at The Impossible Dream Project prove that an individual living with paralysis can conquer any challenge, whether it is on land or sea. “I never even thought of sailing before my injury, let alone after,” said Mellen, a paraplegic, and founder of the Impossible Dream ... more...
Posted by Community Admin on Daily Dose Feb 4, 2016 3:13 PM EST
If you are like me and ruminate about death now and then, here's my advice – don't read actuary tables. When it comes to the average life expectancy of a paraplegic, they lie. Or maybe their statistical universe dates back to people paralyzed in the Spanish-American War. In any case, they paint a picture that strikes me at completely contrary to the ... more...
Posted by ARucker on Life After Paralysis Feb 2, 2016 2:14 PM EST
Fear is a funny thing, not Ha, Ha funny. It’s more I’m freaking out and I’m going to laugh at inappropriate moments, funny, because I’m so scared I’m acting out with bizarre behavior, funny. When I’ve been sucked into fear, I’ve lost my conscious mind and I'm spiraling in whirling mind suck eddies unable to transcend into the kind of mind that makes ... more...
Posted by Candace on Life After Paralysis Feb 2, 2016 2:21 AM EST
Join us on Wednesday, February 3rd at 3PM ET for "Dr. Dan on ... What Prevents Us from Giving and Receiving Love?" Join us and invite your family and friends to sign up now for Dr. Dan's next live webchat on Wednesday, February 3rd at 3:00 pm ET. From Dr. Dan: It is not the disability that prevents us from loving and being loved. But it could be the way we feel ... more...
Posted by Community Admin on Daily Dose Feb 1, 2016 4:58 PM EST
28 years! If this last day of January marked my 28th wedding anniversary I would be out shopping for orchids as the appropriate anniversary gift for my spouse (if I had a spouse). Rather, it is the 28th anniversary of the date in 1988 "when the fun stopped" and I joined the fraternity of quadriplegia as I laid there, paralyzed, on a snowy Idaho ski slope. ... more...
Posted by Michael Collins on Life After Paralysis Feb 1, 2016 12:16 PM EST
Here is a look at a recently published scientific study related to spinal cord injury. This comes from the Jerry Silver lab at Case Western in Cleveland, a program with a long history of looking at glia, the cells that support neurons in the spinal cord. We have discussed Silver's work often, in particular his efforts to get once-vibrant nerves in the ... more...
Posted by Sam Maddox on Spinal Cord Injury Research Jan 31, 2016 7:20 PM EST
     Of all the problems facing someone who is paralyzed – physical, emotional, and social – I think that social perceptions, and self-perceptions, are the thorniest. At least in my cases, physical problems are largely reduced to skin breakage and infection. In your case it may be neuropathic pain or vascular complications or persistent UTI’s or ... more...
Posted by ARucker on Life After Paralysis Jan 27, 2016 3:41 PM EST
Paralyzed Veterans of America launched AirAccess30.org . The purpose of this website is to collect stories from PVA members and the disability community about their air travel experiences. Our endorsers include the Autistic Self Advocacy Network, Bazelon Center for Mental Health Law, Easter Seals, National Council on Independent Living, ... more...
Posted by Community Admin on Daily Dose Jan 27, 2016 12:21 PM EST
It is now possible, with minimal technical skill and very little cost, to essentially edit and perhaps correct the human genome. The genome comprises the basic blueprint for all organs, tissues and cells in the body, and for all bodily functions, including those associated with disease or those damaged by trauma. Cut-and-paste gene editing ... more...
Posted by Sam Maddox on Spinal Cord Injury Research Jan 26, 2016 3:39 PM EST
On December 8, 2015 the Senate passed the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act . The bill would require the US Secretary of Health and Human Services to bring together federal agencies, advocates, industries, and state and local governments to create a national strategy to support family caregivers. The ... more...
Posted by Community Admin on Daily Dose Jan 26, 2016 2:07 PM EST
Since the last live chat with Nurse Linda, she has posted: - Paralysis & bowel programs - New year opportunities for health - Service animals - Answers to many paralysis related questions left by community members like yourself. Make sure to tune in for the next Ask a Nurse live webchat on Wednesday, January 27th at 3:00 pm ET. She'll start off the ... more...
Posted by Community Admin on Daily Dose Jan 25, 2016 3:49 PM EST
There are a variety of dangers present in this world at any given time. Things that readily come to mind are the proliferation of nuclear weapons, terrorists, wildfires, earthquakes, mosquito-borne diseases and a full "laundry list" of devastating weather phenomena. We count on our government and its leaders to protect us from the first two dangers, ... more...
Posted by Michael Collins on Life After Paralysis Jan 18, 2016 7:44 PM EST
Adapting Life with Candace Cable , demonstrates that nothing is impossible and her guests showcase amazing activities people living with paralysis do every day. Make sure to tune in for her next webcast on Wednesday, January 20th at 3:00 PM ET. Sign up here! Candace's special guest will be Nurse Linda. Linda Schultz, PhD, CRRN, aka Nurse Linda, is a ... more...
Posted by Community Admin on Daily Dose Jan 15, 2016 9:00 AM EST
The Georgetown University National Center for Cultural Competence is accepting applications through February 7 for its second Leadership Academy. The Leadership Academy seeks to increase the ability of leaders within the disability network to respond appropriately to the growing diversity among people with disabilities. The Leadership ... more...
Posted by Community Admin on Daily Dose Jan 13, 2016 12:50 PM EST
When I heard Blackstar, the latest album by David Bowie, was going to be released very soon, I was poised, ready to spend my money. I arranged my time; as soon as I got his new music, I would listen, listen for his lovely voice, the difference, the angst and a truth about how things felt for him, he was sharing with me, us, his fans. I have very few artists that I’m ... more...
Posted by Candace on Life After Paralysis Jan 12, 2016 11:23 AM EST
It’s impossible to anticipate what life will bring. When a freak accident while horsing around with friends caused a C4 motor incomplete injury for avid CrossFit and Tough Mudder participant Sherown Campbell, his future changed in an instant.  “When I was first injured, it took a while for it to set in,” said Campbell, a 32-year-old husband and father ... more...
Posted by Community Admin on Daily Dose Jan 12, 2016 11:00 AM EST
This summer, individuals living with paralysis will now have better access to the beautiful beaches, campgrounds, and miles of trails at three New York State Parks thanks to the addition of three Hippocampe wheelchairs. “The need for beach and all-terrain wheelchairs was recognized through patron requests and staff realization of the impact the ... more...
Posted by Community Admin on Daily Dose Jan 12, 2016 9:53 AM EST
The Center for Brain and Spinal Cord Repair at The Ohio State University announces they are currently accepting applications for tbeir Craig H. Neilsen Foundation-funded Spinal Cord Injury Training Program, which will take place April 10-22, 2016. Please visit our Spinal Cord Injury Training Program website at sci.osu.edu for more information on ... more...
Posted by Community Admin on Daily Dose Jan 11, 2016 3:26 PM EST
Join us on Wednesday, January 13th at 3PM ET for "Dr. Dan on ... beginning anew." Sign up here. It's a new year and Dr. Dan just cannot talk about New Year's resolutions. But he can talk about what they are all based on: Hope. Can hope hold us back? Can letting go of hope help us begin anew? Join us and invite your family and friends to sign up ... more...
Posted by Community Admin on Daily Dose Jan 11, 2016 9:00 AM EST
File this in the-future-is-gaining-on-us folder.   Four news stories caught my eye in recent days, related in ways that will be mostly obvious. Feel free to speculate about the brave new mechanized breeze blowing this way. For people living with paralysis, it's time to embrace cyborgian solutions.   Item one :  The VA agreed a couple of weeks ago to pay ... more...
Posted by Sam Maddox on Spinal Cord Injury Research Jan 8, 2016 9:21 PM EST
New Year's Resolutions have always been problematic for me. On January 1st of each year I decide that I am finally going to get the things done that I had been putting off for many years prior, and by the next January 1st I find myself making those same resolutions again. It is like the movie Groundhog Day , only in my case it is groundhog year . By default, unmet ... more...
Posted by Michael Collins on Life After Paralysis Jan 4, 2016 5:53 PM EST
     Why do some people do well, even flourish, after experiencing a major trauma like paralysis while others allow it to linger and darken their lives for years after? A friend once suggested that there might be a genetic propensity to bounce back in some of us – a recovery gene – that’s lacking in others. This is akin to saying some people ... more...
Posted by ARucker on Life After Paralysis Jan 4, 2016 4:40 PM EST
The Reeve Foundation Development Department is currently looking for an intern for the Spring semester. Interning with the Reeve Foundation is a hands on experience. We don’t ask you to get coffee. We ask you to be in contact with our community members, coordinate materials, help out at events, work with really passionate and spirited ... more...
Posted by Community Admin on Daily Dose Jan 4, 2016 4:03 PM EST
When they return for the 2016 session, Congress will continue work on  a bill to expand savings mechanisms for people living with paralysis and other disabilities. People living with disabilities often rely on trusts or other financial arrangements to save for the future while maintaining access to health care and personal care attendants ... more...
Posted by Community Admin on Daily Dose Jan 4, 2016 2:38 PM EST
As Christmas day and all it’s cheer from fun family times (yes, I am blessed to have a family I can and want to be with) came to an end last week, I thought back on the people, places and things that are stand outs for me in this final week of an almost past year of 2015. Taking stock of the last 365 days, neatly packaged as one year, is something in recent times I’ve ... more...
Posted by Candace on Life After Paralysis Dec 31, 2015 11:39 PM EST
There are only a few days left in 2015.   Only a few days left to have your gift matched dollar for dollar. Only a few days left to secure your 2015 tax deduction. Only a few days left to make a difference in the lives of individuals living with paralysis. A very generous benefactor has agreed to match every single donation that supporters like you make -- ... more...
Posted by Community Admin on Daily Dose Dec 26, 2015 9:00 AM EST
A year-end look back at spinal cord injury research: by at least one yardstick, it was a very hopeful year. There were an unprecedented number of clinical trials for individuals with long-term SCI. First, the epidural stimulation studies at the University of Louisville have continued beyond the first four participants we’ve all come to know – ... more...
Posted by Sam Maddox on Spinal Cord Injury Research Dec 25, 2015 12:23 AM EST
From our friends at the Kessler Foundation : Experiencing CHRONIC PAIN after SCI? This RESEARCH opportunity is for YOU!  Kessler Foundation researchers are studying how well two different kinds of web-based education programs reduce the extent to which chronic pain interferes with daily life and well being.  If you have had SCI for at ... more...
Posted by Community Admin on Daily Dose Dec 21, 2015 12:12 PM EST
In one of their last votes of the year, Congress passed a bill supported by the Reeve Foundation to protect access to mobility equipment in Medicare. The federal Medicare office had been planning payment cuts that would have seriously hurt access to complex rehabilitation technology – the individually configured wheelchairs and mobility equipment ... more...
Posted by Community Admin on Daily Dose Dec 21, 2015 9:18 AM EST

Recent Comments

I never thought I would reach the age where I would wonder if I was the oldest "living paraplegic or quadraplplegic" alive. I am 64. I was paralyzed when I was 26 (T-4) complete. This was 1978. I never thought I would live to see my children graduate from high school. I did. I not only saw this but, I saw them go to college, get married and have children. I am now a ve...
You'll find a great place near everything you need and with beautiful views of ... something. I'd hate to leave Truckee too, especially for LA, but whatever is moving you there will bring lovely changes with it.
If this does the same thing that the National Alzheimer's Plan for America did it will mean nothing in terms of helping the caregivers and will only spend billions of dollars doing redundant studies already being done by that plan. Family caregivers are caregivers, and the NAPA is already spending billions to determine what caregiver needs are. The...
Thanks Candace, you have said so much of what I feel too. And it is a miracle to feel it so strongly and be so moved bye Bowie's life and death. I have been unable to feel strong feelings since Emily's SCI injury, it is a PTSD symptom. So it has been a blessing to grieve this beautiful man who in life and in his passing gave us all wondrous gifts.
this blog was really great, never seen a great blog like this before. i think im gonna share this to my friends..

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