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Recent Blog Posts

A research paper was published by the UCLA-based Reggie Edgerton lab this week with what the authors describe as “substantial” clinical relevance for people living with spinal cord injury.   The work, titled “Initiation of Bladder Voiding with Epidural Stimulation in Paralyzed, Step Trained Rats,” appeared in the... more...
Posted by Sam Maddox on Spinal Cord Injury Research Oct 17, 2014 4:36 PM EDT
If anyone had told me that there was something "special" about using a wheelchair when I first became paralyzed about 27 years ago, I would have told them that they didn't know what they were talking about. The situation I faced at that time was unknown, challenging and even a bit frightening.  It is important to understand that when... more...
Posted by Michael Collins on Life After Paralysis Oct 16, 2014 3:46 PM EDT
By definition, regulation is a way to control or govern and influence the direction of a system. I like to think of my body as my beautiful, valuable, and elaborate collection of systems that can take me where I want to go. As long I regulate my systems, or monitor and take care of my systems, to one degree or another when I want to press  the “all... more...
Posted by Candace on Life After Paralysis Oct 15, 2014 11:17 AM EDT
It is hard to believe that it has been a quick 10 years since Christopher Reeve died. As an employee, I remember receiving an urgent call on a weekend night. My co-worker told me she had very bad news. Immediately, my mind went to two employees on my team who were flying out of Atlanta on a stormy day -- I feared something had happened to them.  The thought... more...
Posted by Community Admin on Daily Dose Oct 14, 2014 4:16 PM EDT
Earlier this year, we brought you the exciting news that as a result of epidural stimulation of the lower spinal cord, four young men, all classified with a chronic motor spinal cord injury, were able to move their legs and stand. This was an unprecedented, unparalleled, and unexpected achievement. Even more surprisingly, these men also experienced... more...
Posted by Community Admin on Daily Dose Oct 10, 2014 8:00 AM EDT
On the eve of the 10th anniversary of Christopher Reeve's passing, we have a chance to change the future of what it means to live with paralysis and we need your help. more...
Posted by Community Admin on Daily Dose Oct 9, 2014 6:49 PM EDT
The Rehabilitation Research and Training Center (RRTC) on Employment of People with Physical Disabilities is seeking individuals with physical disabilities ages 18 to 64 for focus groups to explore their work experiences , including what has helped them find a job and advance in their careers. Specifically, they are interested in talking with... more...
Posted by Community Admin on Daily Dose Oct 6, 2014 3:05 PM EDT
The National Institute on Disability and Rehabilitation Research (NIDRR) funded  Rehabilitation Research and Training Center on Promoting Healthy Aging for Individuals with Long-Term Physical Disabilities  is recruiting individuals with multiple sclerosis, muscular dystrophy, post-polio syndrome and spinal cord injury for... more...
Posted by Community Admin on Daily Dose Oct 6, 2014 2:45 PM EDT
Three years ago, I participated in a state-wide disaster table-top exercise. I pointed out that certain procedures excluded people with disabilities. One of the people in charge calmly told me that “in the case of a true disaster, difficult choices would have to be made.” He already understood that PWD were being excluded and he was ok... more...
Posted by JenLongdon on Life After Paralysis Oct 2, 2014 9:30 AM EDT
General contractor and master home problem-solver Bob Kantner has great tips to share with you that will make day-to-day activities around your home just that much easier. Take a look at the great videos he has done for our Reeve Health Minute series. Bob has been building things since he was a boy and has been constructing high-end houses since 1968.... more...
Posted by Community Admin on Daily Dose Oct 2, 2014 8:30 AM EDT
Grégoire Courtine and his team at the Ecole Polytechnique Fédérale de Lausanne (EPVL) published a cool paper last week, taking the concept of epidural stimulation and spinal cord activation to new territory. They already showed that they could get paralyzed rats to walk and run well on a treadmill, and even over ground and up... more...
Posted by Sam Maddox on Spinal Cord Injury Research Sep 30, 2014 10:40 PM EDT
This month of September has been dedicated to National Spinal Cord Injury (SCI) Awareness. To celebrate this month, the Reeve Foundation has asked the community to share experiences and information about secondary conditions that can accompany a SCI. The secondary conditions are as vast and varied just as the results of SCI are. I know this may sound... more...
Posted by Candace on Life After Paralysis Sep 30, 2014 1:01 PM EDT
Reflection from Emily Ladau, a model for Raw Beauty NYC As a visibly disabled woman, I'm often made to feel, during public outings, that I am on display. Using a wheelchair makes me noticeable, turning me into a sight that – despite it being the 21st century – still causes far too many people to stare as though I'm an otherworldly museum piece. My... more...
Posted by Community Admin on Daily Dose Sep 30, 2014 10:55 AM EDT
New in the PRC Lending Library … Push Girl: A Novel. By Chelsie Hill and Jessica Love. Thomas Dunne Books, 2014. Author Chelsie Hill , co-founder of the non-profit the Walk & Roll Foundation , was inspired to write this novel after becoming paralyzed from the waist down at the age of seventeen. Hill’s experiences are reflected in the pages of the... more...
Posted by Sheila Fitzgibbon on Daily Dose Sep 30, 2014 10:12 AM EDT
September has gone by so quickly, and I want to take just a few minutes to thank everyone before the leaves start falling. First, I appreciate all the birthday love this month and every year. Your support since I was injured really means a lot to me and helps keep me pushing on. It's also special to me that I share a birthday month with Christopher Reeve. ... more...
Posted by Community Admin on Daily Dose Sep 30, 2014 10:02 AM EDT
Sepsis Alliance hosted its 3rd annual Celebration of Sepsis Heroes, taking place during Sepsis Awareness Month , on September 18, 2014 in New York City. The Reeve Foundation was delighted to be a part of their celebration. The annual event, now in its third year, brings together sepsis survivors, family members, patient advocates, healthcare... more...
Posted by Community Admin on Daily Dose Sep 29, 2014 1:13 PM EDT
From Aaron Bishop, Commissioner, Administration on Intellectual and Developmental Disabilities (AIDD) as posted on the ACL Blog : more...
Posted by Community Admin on Daily Dose Sep 29, 2014 12:22 PM EDT
This has been a year of milestones for the Reeve Foundation. We celebrated groundbreaking research with epidural stimulation ; we surpassed $17 million in Quality of Life grants; the Reeve Foundation Information Specialists hit 60,000 inquiries; and we announced Team LeGrand , an exciting partnership that will serve as a fundraising arm of the... more...
Posted by Community Admin on Daily Dose Sep 25, 2014 12:39 PM EDT
The Paumanok Veterinary Hospital takes great pride in sponsoring its 18th Annual "Pets Over Paralysis" pet portrait professional photo session, Sunday, September 28, 2014 at the Hospital, 639 Route 112 in Patchogue, NY 11772. more...
Posted by Community Admin on Daily Dose Sep 24, 2014 9:00 AM EDT
ArtPrize, the radically open, international art competition, in partnership with Ascentcare today announced the launch of AccessArt programming. Rooted in the spirit of social inclusion and the belief that Grand Rapids can be a leader in Universal Access, ArtPrize is thrilled to offer visitors who experience differences in mobility the... more...
Posted by Community Admin on Daily Dose Sep 23, 2014 5:54 PM EDT
(NOTE: In the wake of Peter Wilderotter’s moving eulogy to photographer Chris Voekler , I wanted to add my own personal remembrance. Chris was a dear friend and inspiration, both to me and untold others.) Chris Voelker was the Richard Avedon of people with disabilities. His distinctive style is most often compared to the famous Hollywood... more...
Posted by ARucker on Life After Paralysis Sep 23, 2014 2:37 PM EDT
The Mark Pollock Trust is delighted to announce its partnership with the Christopher & Dana Reeve Foundation, San Diego for this year's Life Style Sports Run in the Dark. Proceeds raised during the San Diego event will benefit the Christopher & Dana Reeve Foundation. more...
Posted by Community Admin on Daily Dose Sep 19, 2014 5:22 PM EDT
Some recent events have started me thinking about greetings , and how those of us who are paralyzed are impacted by the greeting process. The instance when two individuals meet and greet each other is an important one, as it can set the tone for whatever interactions that follow. For the purpose of this discussion I will avoid interactions which are not... more...
Posted by Michael Collins on Life After Paralysis Sep 19, 2014 4:42 PM EDT
    September is Spinal Cord Injury Awareness Month and a good time to update your Reeve Foundation Wallet Health Cards. Through our Paralysis Resource Center we offer three personalized wallet cards that can help make sure you or your loved ones get the right care in the event of an emergency: ... more...
Posted by Community Admin on Daily Dose Sep 19, 2014 8:15 AM EDT
Join the QUAD Foundation , the San Diego Partner of the Reeve Foundation, for it's 13th Annual Fore Pete's Sake Golf Tournament & Banquet on Monday, October 6, 2014 at the Twin Oaks Golf Course. more...
Posted by Community Admin on Daily Dose Sep 18, 2014 9:00 AM EDT
Jessup: You want answers?! Kaffee: I want the truth! Jessup: You can't handle the truth! (From the film, A Few Good Men , 1992) I’ve often thought that paralysis -- stripped down -- is simply another prism through which to see this world. In the same way that comedians or novelists draw material out of their own lives, paralysis can be a... more...
Posted by ARucker on Life After Paralysis Sep 17, 2014 6:55 PM EDT
I was going to talk about how certain secondary conditions of paralysis have robbed me of almost a year, due to being sick and my slow recovery. I was going to write about sepsis, simple infections that insidiously turn fatal very quickly.  How nearly a year ago, sepsis nearly killed me, again (eight times in ten years), and how I was in and out of... more...
Posted by JenLongdon on Life After Paralysis Sep 17, 2014 1:32 PM EDT
Eric LeGrand , Rutgers University alumni and Adam Taliaferro Penn State University alumni, football players who suffered serious spinal cord injuries on the field, visited with patients and families today to share their inspiring stories and give hope to patients recovering from traumatic injuries, just like their own.  The pair personally... more...
Posted by Community Admin on Daily Dose Sep 12, 2014 11:24 AM EDT
The 15th Anniversary of Olmstead video compilation is a DOJ/HHS tribute to the dedicated and brave individuals who have brought to life the Olmstead decision's promise of community integration for people with disabilities. The video features images and live interviews from disability rights advocates, including Sue Jamieson, the lead... more...
Posted by Community Admin on Daily Dose Sep 11, 2014 5:15 PM EDT
It looks like all of our community members had a very adventurous summer based on the photos were sent to us over the past few months. Best summer travel photo submitted by Candace Cable. Second place photo submitted by Alicia Reagan. We received hundreds of great photos , many of which we featured on our website and in... more...
Posted by Community Admin on Daily Dose Sep 11, 2014 1:37 PM EDT

Recent Comments

T-4 for fourteen years . I sure would like to get back on a horse.my accident was because I didn't have my seat belt on wh...
Hi Sam - There's continued talk about various improvements in the lives of patients who have been treated with epidu...
We are truly honored to join your site and hope to share valuable information and life changing cooperation with eac...
Hi, I am new to this site. My name is Ray and I am a C-6, C-7 incomplete quadriplegic. I broke my neck in a fall in 2005 at th...
Hey Josh, Dr. Falchi at Craig Hospital is the man I turned to for the surgery called the DREZ. If you want to know more yo...

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