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Recent Blog Posts

Thank you to everyone who came out to the Boomer & Carton/Mikey Strong 23 Hockey Game. We had a packed house of over 1800 fans at Ice World in Middletown, New Jersey. Reeve Foundation board member Will Reeve on Team Carton slipped one by former Islanders goaltender DiPietro, but in the end Team Boomer came out with a 7-3 victory! A special thank you to Boomer & more...
Posted by Community Admin on Daily Dose Apr 1, 2016 4:24 PM EDT
The Reeve Foundation is holding a Caregiver Day on April 29 - May 1, 2016 at the Abilities Expo NY Metro at the New Jersey Convention & Expo Center. Presentations are free to attend, however Abilities Expo NY Metro free registration is required. The following workshops are presented by the Christopher & Dana Reeve Foundation and are geared for the loved ... more...
Posted by Community Admin on Daily Dose Apr 1, 2016 8:30 AM EDT
Would you buy it if all of a sudden Cruella de Vil started a shelter for homeless dogs and said she had undergone a change of heart? What about if Lord Voldemorte forsook his evil nature to open a summer camp for inner-city muggles? I wouldn’t go for either story. How about this one: the glial scar, the villain of spinal cord injury, is actually one of the good ... more...
Posted by Sam Maddox on Spinal Cord Injury Research Mar 31, 2016 7:30 PM EDT
A research report was published this month affirming what is becoming increasingly clear: spinal cord injury greatly affects the immune system, and vice versa, immune response directly affects recovery from traumatic injury.   Jan Schwab, a physician/researcher (neurologist/experimental neurologist) at the Ohio State University’s Wexner ... more...
Posted by Sam Maddox on Spinal Cord Injury Research Mar 28, 2016 7:34 PM EDT
Since the last live chat with Nurse Linda, she has posted: - Types of edema - The heart and SCI - Cardiac changes - Answers to many paralysis related questions left by community members like yourself. Make sure to tune in for the next Ask a Nurse live webchat on Wednesday, March 30th at 3:00 pm ET. She'll start off the conversation about secondary ... more...
Posted by Community Admin on Daily Dose Mar 28, 2016 9:24 AM EDT
Disability and health care advocates are continuing to push Medicare to provide more therapy services. On March 1, 2016 the Center for Medicare Advocacy (CMA)   filed a motion in court, claiming that the federal Medicare office (the Centers for Medicare and Medicaid Services or CMS) has not complied with the ruling in Jimmo v. Sebelius and continues to ... more...
Posted by Community Admin on Daily Dose Mar 23, 2016 10:20 AM EDT
From The Mighty, originally published on March 21, 2016: A Letter From Karen LeGrand to the late Dana Reeve: Dear Dana, I get it. I truly get it. I never had the pleasure of meeting you before your passing 10 years ago this month, but if you came back for one day, I would tell you that I understand what you went through. We both figured out how to move forward when ... more...
Posted by Community Admin on Daily Dose Mar 22, 2016 10:15 AM EDT
Though it has been 10 years since Dana Reeve passed away, the legacy she left behind is still vibrant and celebrated in the paralysis community today.   You can be a part of her legacy. Please give a gift of $50, $75, $100 or more to help individuals living with paralysis and their families. When her family's world was turned upside down, Dana found ... more...
Posted by Community Admin on Daily Dose Mar 22, 2016 9:24 AM EDT
To leave in the lurch : to leave in an uncomfortable or desperate situation; desert in time of trouble: (from Dictionary.com) The presidential election cycle can be a time of hope, renewal and change. Unfortunately the campaign season leading up to this year's November elections seems to have turned in the opposite direction. Unlike in many past ... more...
Posted by Michael Collins on Life After Paralysis Mar 21, 2016 7:00 PM EDT
Nonprofit Devices 4 the Disabled and its affiliate, Project HUGS, are collecting medical equipment that is no longer being used. Their mission is to collect items such as canes, wheelchairs, walkers, and other medical equipment, refurbish it, and provide it to individuals living with a disability, who are underprivileged in Illinois state.  D4D’s ... more...
Posted by Community Admin on Daily Dose Mar 17, 2016 12:18 PM EDT
I love to travel. My favorite way to travel is by aircraft, for me the feeling of flying is beyond words and I never tire of gazing through my window seat porthole at the cities, mountains, rivers and clouds below as I jet above the earth. If I had a chance to fly in rocket ship or a fighter jet plane, I would take it. Now I’m not keen on jumping out of planes or hang ... more...
Posted by Candace on Life After Paralysis Mar 15, 2016 1:59 PM EDT
A second exoskeleton model that allows people with paralysis to stand up and ambulate has been approved for personal use by the FDA. The Indego , developed at Vanderbilt University and licensed to the Parker Hannifin Corporation, should be available later this year. It’s been available in Europe since November.   The Indego follows the ReWalk system, ... more...
Posted by Sam Maddox on Spinal Cord Injury Research Mar 15, 2016 12:01 PM EDT
Having spent my adult life in the salt mines of Hollywood, I’ve learned one important lesson. Breaking through is often a matter of random, unpredictable events, the dice rolling the right way. I once asked David Chase, creator of “The Sopranos,” about this and he said, “Success in show business is a terribly tiny, tiny target and there is so much luck ... more...
Posted by ARucker on Life After Paralysis Mar 14, 2016 4:32 PM EDT
Adapting Life with Candace Cable , demonstrates that nothing is impossible and her guests showcase amazing activities people living with paralysis do every day. more...
Posted by Community Admin on Daily Dose Mar 11, 2016 1:44 PM EST
On March 24, the US Access Board will host a Q&A webinar on their accessibility activities. The Access Board is in charge of developing technical standards for accessibility, and as of this month, they are 3 years behind in issuing standards on accessible medical diagnostic equipment, like exam tables, scales, and X-ray and mammography ... more...
Posted by Community Admin on Daily Dose Mar 10, 2016 10:47 AM EST
In March 2016, the US House of Representatives held a hearing on an issue often ignored by Congress: financing for long-term care (also known as long-term services and supports).  This hearing was built on the momentum created by two bipartisan reports issued in early 2016, which point to a growing consensus that our current system of paying for ... more...
Posted by Community Admin on Daily Dose Mar 10, 2016 10:31 AM EST
Isolation has long played a dual role in society, where it can be seen as either good or bad. For Buddhist monks, isolation creates an atmosphere conducive to the deep meditation necessary to ponder their issues of concern. In order to minimize distractions, many monasteries were built in isolated locations. Months and years spent without the daily ... more...
Posted by Michael Collins on Life After Paralysis Mar 7, 2016 3:10 PM EST
Darek Fidyka is in the news again. Your remember him. Polish fireman, got stabbed and completely paralyzed, got better after cells from his olfactory bulb were injected into his spinal cord. Big news 18 months ago; lots of chatter about what a major breakthrough it was. Well, here’s to Darek, who continues to get better. A video was posted last week ... more...
Posted by Sam Maddox on Spinal Cord Injury Research Mar 7, 2016 1:46 AM EST
“Some of the choices in life will choose you. How you face those choices, these turns in the road, with what kind of attitude, more than the choices themselves, is what will define the context of your life.” --Dana Reeve When Christopher Reeve was injured in 1995, Dana Reeve was faced with a choice. She could fall apart and grieve her former life, or she ... more...
Posted by Community Admin on Daily Dose Mar 6, 2016 12:00 PM EST
Photo courtesy of Gannett and Doug Hood/Staff Photographer   It was a little over a year ago that I went onto the ice for the first time since my injury to drop the puck for the inaugural Boomer & Carton/Mikey Strong23 Hockey game. And what a game it was. Thanks to your support, we raised over $60,000 to support cutting-edge research for spinal ... more...
Posted by Community Admin on Daily Dose Mar 4, 2016 1:55 PM EST
The Disability Organizing Network is holding the Get-Out-The-Vote (GOTV) Leadership Conference to prepare and increase the disability vote on Election Day Tuesday, November 8, 2016. This event will give disability community leaders the opportunity to train to effectively recruit voters. Participants will be briefed the most up-to-date ... more...
Posted by Community Admin on Daily Dose Mar 4, 2016 11:39 AM EST
The American Bar Association (ABA) Commission on Disability Rights is partnering with Microsoft to provide a summer internship for a first-year law student living with a disability.  The internship will be 10 to 12 weeks working within Microsoft’s Corporate, External, and Legal Affairs department in Redmond, Washington. In addition to ... more...
Posted by Community Admin on Daily Dose Mar 3, 2016 1:37 PM EST
Newly quadriplegic as a result of a diving accident, E.W. “Bud” Myers came out of rehab in 1975 and had nowhere to go.   “A highly driven and spirited man, Bud had the vision to create a place for people who depend on a wheelchair for mobility to go to reintegrate into the community,” said Quadriplegics United Against Dependency Inc. (QUAD Inc.) CEO Greg ... more...
Posted by Community Admin on Daily Dose Mar 1, 2016 10:48 AM EST
More proof, perhaps, that engineering is moving faster than biology. A group from Australia, funded in part by the U.S. military’s Defense Advanced Research Projects Agency (DARPA), has developed a very cool, non-surgical way to record brain information of the sort that might power brain-machine interface (BMI) devices – prosthetics for ... more...
Posted by Sam Maddox on Spinal Cord Injury Research Feb 29, 2016 2:24 PM EST
By Clare Barnett, J.D., Program Specialist, Administration for Community Living This post appears on the Administration for Children and Families' blog, The Family Room . National Teen Dating Violence Awareness and Prevention Month is a time to encourage healthy relationships and, in the words of President Obama, “reaffirm the basic human right ... more...
Posted by Community Admin on Daily Dose Feb 29, 2016 12:41 PM EST
Stimulation of the vagus nerve is being investigated as a way to treat migraine, tinnitus, inflammatory bowel disease, hiccups, stroke, diabetes, brain injury and multiple sclerosis. Add spinal cord injury to the list. The vagus nerve is one of the major nerve highways connecting the brain and the rest of the body. It winds from brain to neck and then ... more...
Posted by Sam Maddox on Spinal Cord Injury Research Feb 28, 2016 1:26 PM EST
Join us on Wednesday, March 2nd at 3PM ET for "Dr. Dan on ... Hopes and Fears" Join us and invite your family and friends to sign up now for Dr. Dan's next live webchat on Wednesday, March 2nd at 3:00 pm ET. From Dr. Dan: You can find Dr. Dan live in the Community answering questions in real time every Wednesday from 3-4 pm ET. Visit Dr. Dan's Healing the Mind and ... more...
Posted by Community Admin on Daily Dose Feb 26, 2016 12:41 PM EST
We would like to offer you the opportunity to become a certified peer mentor with the Reeve Foundation Peer & Family Support Program . Our peer mentors help people living with paralysis and their family members/caregivers by offering them support, guidance and information. If interested, please complete this short online application. Please note ... more...
Posted by Community Admin on Daily Dose Feb 25, 2016 2:09 PM EST
To be paralyzed or otherwise disabled in America is to be largely invisible, at least in public life. Characters or actors with disabilities rarely show up on TV.The appearance of such a character is a cause for celebration, which underscores its novelty. There are barely any disabled newscasters, sportscasters, late night hosts, or other media ... more...
Posted by ARucker on Life After Paralysis Feb 24, 2016 2:18 PM EST
From our friends at the Administration for Community Living (ACL) about a webinar from the NCOA . Thursday, March 3 3:00 – 4:30 p.m. EST Experts in neurology and rehabilitation will present up-to-date research about falls among adults aging with long-term physical disabilities. Prevention and management strategies for the growing population of ... more...
Posted by Community Admin on Daily Dose Feb 24, 2016 1:28 PM EST

Recent Comments

An accelerometer, what the Nike FUEL uses to detect wrist motion can be used to capture the movements of pushing a wheelchair. Someone just needs to write the software. ;-)
The the procedure needs to be widely and SAFELY replicated. Other variables may have had more impact on recovery than the surgery.
Correction: I say above that no Presidential candidate has mentioned anything about people with disabilities. I stand corrected. Hillary Clinton distinctly said " and the disabled" in her victory speech on Super Tuesday. Progress! AR
Looks like among the more promising therapies under research with applications beyond SCI. This means a greater chance for funding. Thanks for the update.
What occurs to me is whether there might be grounds to file a lawsuit under the ADA against the CMS and related agencies???

Of course it would also help if there were GOOD choices available for chairs - instead of forcing anyone that can self-propel into a manual chair and trying to brain-wash us into thinking this is good, lets try getting power chair techno...

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