We believe in empowering those affected by paralysis with the best knowledge, resources, support, and community.
Category: Paralysis Resource Center Category
We devote a lot of time here helping others cope and coping with bad news ourselves. Here is a letter we got recently:Read More
The Paralysis Resource Center (PRC) receives emails and calls from all over the world. Last week we received an email inquiry through our Spanish website (contact an Information Specialist (IS) in English
) from a gentleman being treated at a well-respected South American hospital.
He was experiencing autonomic dysreflexia (AD)
and his physician had identified bladder stones as the cause. He contacted the Reeve Foundation because of the severity of his AD and his physician telling him to just take Tylenol. The tylenol was not effective and his blood pressure was very high.
The PRC staff communicated with him in Spanish by email and telephone. In the course of the conversation we found out that his surgeon wanted to remove the bladder stones without anesthesia. The surgeon's belief was that because he was paralyzed he wouldn’t feel any pain. He wanted to know if this was safe for him to have surgery without anesthesia.
The staff explained (in Spanish) how his brain still receives pain messages even though his body no longer does. It would still be incredibly dangers and possibly deadly to have surgery without anesthesia. We sent a booklet on AD for him as well as a clinicians guide to share with his urologist.
The IS team members followed up via email to see if any additional information was needed. We received an email from his mother indicating the procedure was done under anesthesia and the educational material changed the physician mind. The bladder stone was removed safely and he recovering.
Knowledge equals power!
Here's a fact sheet on autonomic dysreflexia
Find out more about secondary conditions
Director, Information and Resources Services