Based on your description, I'm assuming your sister has myelomeningocele. I have that form of SB as well, at the L5/S1 level.

Anyway, while reading through your post, it seems a major part of ...

The first one was done at Loma Linda University Medical Center in Loma Linda, California. The other two were done at Children's Hospital in Birmingham, Alabama.

I've never had spasms relat...

I've had 3 detethering surgeries so far, the most recent being about 15 years ago. Anyway, the recovery wasn't bad. With my first and second, I had to lie on my abdomen for close to a week w...

The time in the hospital is not bad at all. The surgery only takes a fewhours, perhaps 5 at the most. I think I've only been in the hospital up to3 days each time I've had a shunt-related surgery. ...

I've had a shunt since I was 28 days old (I'm almost 27) to control hydrocephalus. My shunt is a ventriculoperitoneal (VP) shunt, which goes to the abdomen (not the stomach as you stated). I...

Such requirements do exist. They are simply not followed or enforced well. The ADA Code of Federal Regulations describes all the minimum requirements. Here's a link to the PDF version:

http:...

I highly recommend the Neurology Department at Loma Linda University Medical Center. Their website is lomalindahealth.org . I've been a patient of theirs since birth (nearly 26 years). All of t...

I also have a neurogenic bladder (as a result of spina bifida) and require catherization. I had an augmentation (using a portion of intestine instead of the typical use of the appendix) in 1994. Bef...

I did some research, and I found a website that looks rather good. It has both new and used wheelchair-ready vans. Under $20,000 , you'll probably need to go with a used van. I did a search on...