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Joni, I agree about the optometrist offices. My best luck has been to use optometrists or opthamologists for the exam th...
by RoboDad on Tuesday, May 08, 2012
I do not procrastinate, much. Speaking with many women over the years there is aneed not to educate us but to educate d...
by Sue on Thursday, May 03, 2012
MRICs were the worst for my husband unless he was lucky enough to already be in the hospital when he needed one. The opt...
by Joni on Wednesday, May 02, 2012
Thomas you are totally right. My mom has been a quad for 10 years now in the Kaiser system and goes to the same facilit...
by zuzu on Tuesday, May 01, 2012
I can't understand the ignorance of the medical profession. Forget the ADA and its regulations for a minute and think pr...
by Thomas on Tuesday, May 01, 2012
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Category: Independent Living Category
RoboDad
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Posted by RoboDad
Monday, April 23, 2012
Comments (4)
Have you experienced problems during diagnosis or treatment at your favorite doctor's office, medical clinic or hospital? Were any of the problems you encountered caused by the inaccessible nature of the medical diagnosis or treatment equipment? There is hope on the horizon, and you can become a part of the solution.

Some of you who read my blog regularly may remember that it has been about 22 years since I was actually weighed, because none of my providers had a scale that could accommodate my large and immobile body. I was recently hospitalized for a short time, and the bed that was in use in my hospital room actually had a feature that allowed them to weigh me while still in bed. It was a new model of hospital bed that not only included a scale but actually had a built-in air mattress that could provide alternating pressure to prevent pressure sores.

Unfortunately the news about my weight was not what I had hoped to hear. I have apparently been gaining weight continuously since my spinal cord injury in 1988, and might now qualify to be listed on the same chart as some smaller sumo wrestlers.  My snack drawer will not be replenished when it gets cleaned out, and I am cutting back to only two meals per day. That should be plenty when you consider that I have limited opportunities to exercise.

The United States Access Board recently published proposed ADA standards for diagnostic medical equiupment on February 9, 2012  and it is now time to finalize them.. The next step is the convening of a panel of stakeholders of all types to determine what types of equipment are actually accessible, and where improvements are still due.  That is where you have an opportunity to get involved and make a positive difference in the application of the new standards. 

I am pasting the actual e-mail announcement just received from the Access Board in case you can get involved. Please note that the notice states that no one will be reimbursed for expenses. However,  if you do not live in the immediate vicinity of Washington, DC, I would recommend that you call the Access Board directly to see if anything is possible if you really want to get involved. It may not  matter, but if this type of assignment would create a financial hardship for you and you have limited income you should at least make the request.

 Here is that announcement:
"Applications for Medical Diagnostic Equipment Advisory Committee Due April 27
The Access Board is organizing an advisory committee to advance its development of new standards for medical diagnostic equipment and seeks applications from interested parties to serve as committee members. This committee will provide assistance to the Board in finalizing standards for diagnostic equipment it released for public comment in February. Medical device manufacturers, health care providers, disability groups, standard-setting organizations, and other stakeholders are encouraged to apply. Committee membership is voluntary, and members will not be paid or reimbursed for their services.

The deadline for applications is April 27. A notice published by the Board provides further details, including application instructions. For further information, contact Rex Pace at pace@access-board.gov, (202) 272-0023 (v), or (202) 272-0052 (TTY)."

Good luck, and thanks in advance for stepping up to the plate when such opportunities arise.

©  2012 Michael Collins

RoboDad
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Posted by RoboDad
Wednesday, April 18, 2012
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Fear can be good. Being able to fear is one of those factors that separates mankind from lower life forms, and usually keeps us from taking unnecessary chances that risk our lives, or serious injury.

While not everyone is willing to admit it, it is likely that most of us harbor a fear of something particular. Now that I'm older, and using a power wheelchair, the characteristics of my fears have changed slightly. The edges of most high cliffs are not wheelchair accessible, nor am I able to fit into the flimsy craft that used to propel me over the water.

My fears sometimes pop up in a dream, or reemerge when I find myself in a situation that might involve a risk that could lead to one of my fears becoming reality. I can imagine myself falling overboard from a ferry boat, or off a pier, and not being able to unhook my seatbelt or get my feet out of the shoes that are Velcroed to the foot supports of my wheelchair.

Another fear contributes to my being a safe driver. I can imagine being trapped in my van after a vehicle accident, with an inoperable lift and a risk of fire present. That scenario flashes through my mind whenever I see a news story about a car fire on the freeway, or drive by an accident scene.

With those kinds of thoughts in the back of my mind whenever I start my van, I work at being a better defensive driver. In case something beyond my control occurs and I find myself in one of those accidents, I have taken some steps to increase my chances of escape from the damaged vehicle. I know how to release the pins holding my lift doors in place and, perhaps more importantly, how to direct someone else to release them. I also know how to operate the wheelchair lift manually, in order to deploy it and lower it to the ground.

Carrying a portable ramp, some tools and a fire extinguisher also increases my level of safety. To educate those who would most likely be attempting to remove me from a damaged vehicle, I have taken my van to trainings for area fire departments to demonstrate how my wheelchair is locked into place and how my chair and I might be removed in a true emergency situation. This is just one more factor that we have to deal with that other drivers don't.

My wheelchair lift has failed to operate properly several times, but I have only been trapped in the van on two occasions. The first was on a remote section of California freeway, where I ended up negotiating with the California Highway Patrol to allow me to ride in my wheelchair, in the van, on the back of a flatbed “tow truck.” As a result of that incident, the rules were changed to allow a wheelchair user who is secure in a damaged or inoperable vehicle to stay in place during a ride to a repair shop. That is far safer than trying to get unloaded from a van on the side of a busy highway.

Being trapped anywhere is one of those things that usually happens after business hours or on a weekend, when help is hard to find. The last time it happened to me was this week, at 5 p.m., as I was loading into my van in a rainy downtown parking lot. After locking in place beneath the steering wheel, I lifted the switch that would fold the wheelchair lift platform into the van and close the doors. That action was greeted with a hissing sound as hydraulic fluid sprayed into the air and the lift slowly dropped to the ground.



The folding action of the lift had pinched a hydraulic line. While I wonder what the engineer was thinking who designed the lift so that the hydraulic line could be pinched, there wasn't much time to ponder that because I had to get out of the van somehow. That is a bit complicated when the lift platform is sitting on the ground and I am still in the van. The designer of the lift also failed to design any type of backup mechanism for raising the lift if the hydraulic system was not intact. My portable ramp was too short to help get me out of the van, and I had no idea how the lift could be raised and the doors closed without the hydraulics.

Sometimes good customer service can make the difference between a problem being solved or becoming an even bigger problem. There is no wheelchair van repair facility in my hometown, but Absolute Mobility is located about 30 miles away. A quick phone call to owners Eddie and Amanda Riveira as they were closing for the day resulted in a promise to help me out; they brought a rear-entry van out of their showroom and braved the rush-hour traffic to see how they could assist. It is important to note that I did not purchase this van or the wheelchair lift from Absolute Mobility, but they were willing to go out of their way to help in any way possible.

It took about an hour of effort on the part of Eddie Riveira and four volunteers, but they were able to back the rear-entry van up to my open van doors so I could roll down their ramp into their van. Using straps, cables, ingenuity, pulleys, cunning, ropes and brute strength, Eddie and the volunteers were finally able to get the lift folded into the van and the doors closed most of the way so that a flatbed tow truck could haul it to their shop for repairs.

As I sit here, in the warmth and safety of my home, I am sure of two things. The first is the knowledge that good customer service is an important ingredient to have when things go wrong. The second thing is the fact that my fears are actually based on reality, because things do go wrong.

© 2012 Michael Collins
RoboDad
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Posted by RoboDad
Tuesday, April 03, 2012
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Taking my own advice as recommended in my last two blogs, I have submitted the following to the Department of Justice at the regulations.gov website. I hope you are all taking similar action.

Testimony to DOJ NPRM re Enforcement of ADA Pool Lift Requirements
Submitted by Michael C. Collins
April 3, 2012

Enforce all aspects of the Americans with Disabilities Act:  this is not a new regulation, as a requirement to have pool lifts or other types of access available for public pools has been a key component of the law since passage of the ADA in 1990. The failure of some hotels to accomplish that installation has resulted in very few penalties. This requirement is not unduly burdensome, and the availability of swimming pools and spas is considered a primary attraction for patrons or guests at many types of public accommodations.

People with disabilities should not be relegated to sitting poolside, watching their families and friends enjoy the water. Those in the lodging industry who complained to Congress have likely failed to comply with existing regulations for 20 years, so apparently they feel it is important to set aside a standard that provides the necessary accessibility to features that are enjoyed by the rest of American society. I feel that a survey of the “hospitality” industry would reveal that only a small percentage of pool owners have bothered to provide any type of pool lifts for the use of their patrons who need them due to disability.

This is a disturbing situation, as the argument used to stop enforcement of that portion of the law is a flimsy one at best. Any public accommodation that could not accomplish the work due to financial hardship has always had a means of avoiding fines that might have been levied for not improving access. There was even a ‘safe harbor’ granted when these new regulations were posted, allowing those with pool lifts already installed per the 1991 ADAAG to postpone improvements for the time being.

The significance of this latest action cannot be ignored. The ADA is the major civil rights bill for people with disabilities, and was originally passed by Congress only after years of planning to assure that it would accomplish its goal of improving access to our society without unduly burdening anyone. Provisions of the ADA that required architectural improvements were phased in over time, with liberal tax credits and deductions allowed for those businesses that made improvements as the law required. Changes that were architecturally infeasible or that caused financial hardship did not even have to be made.

Excusing the violation of any civil rights law is unprecedented, and suspending the enforcement of ADA regulations for the benefit of the prosperous hospitality industry is unconscionable.

Congress has begun to whittle away at our civil rights as established by the ADA almost 22 years ago. It sets a dangerous precedent.

Which other sections of the law will be targeted next? Will it be in the areas of public rights of way, which include the sidewalks and curb ramps we depend upon for wheelchair access to our communities? Will it mean that hotels with insufficient wheelchair accessible rooms or roll-in showers will lobby to strike those provisions of the law? Could businesses that fail to maintain proper accessible parking spaces plead for removal of parking requirements in order to gain back the spaces that became our access aisles? All of these items covered by the ADA have been the subject of DOJ enforcement action in the past, as well as provisions that provide us access to employment, government services, kiosks, websites and interpreters for those who need them.

Disability civil rights are critical to our enjoyment of and access to our society. Lessening or eliminating similar civil rights would not be acceptable to other protected groups, whether for race, religion or gender. This proposed action is not acceptable to us. Do NOT stop enforcing any part of the ADA or it’s related regulations.

© 2012 Michael Collins
RoboDad
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Posted by RoboDad
Saturday, March 31, 2012
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Doom and Gloom; Disgusted; Fed up; Beat up, or Beat down? All of these terms could describe various moods I have expressed recently about attacks on disability civil rights and our ability to live independently. Please accept my apologies if my recent blogs on the elimination of the CLASS program and the current push to keep the Department of Justice from enforcing some Americans with Disabilities Act (ADA) regulations have depressed or disappointed you. I don’t think you’re alone.

Congress apparently has no qualms about eliminating rights granted to us with passage of the ADA in 1990. As I stated in my last blog, both the House and Senate are considering legislation that would prevent the Attorney General from administering or enforcing ADA regulations that require the permanent installation of pool lifts. This is an unprecedented action, as it denies the civil rights of an entire class of protected individuals: people with disabilities.
(Illustration Courtesy of Mark Derry)

Despite the damage being done by the aforementioned actions, there are a few bright spots that are also worth mentioning. We do have allies in Congress and throughout government who continue to serve as our champions when our rights are threatened. Just last week, Senator DeMint tried to force a quick vote on the Senate bill (S. 2191) that would prevent the Attorney General from enforcing the ADA’s requirements regarding pool lifts. His move was met by an immediate objection from Senator Tom Harkin, Chair of the Senate Health Education Labor and Pensions Committee, who has been a champion of the ADA since it was first proposed. That bill is still alive, but advocates have rallied to phone and write members of Congress to let them know that these bills should not pass.

We can still have an impact on the enforcement of the pool lift regulations, as the Department of Justice (DOJ) has voluntarily suspended enforcement until May 21, 2012 and is asking the public to comment on that suspension (and a possible 180 day extension of it) by responding online to the Notice of Proposed Rulemaking
at regulations.gov. The initial deadline for those comments is April 4, 2012! If full access to recreation is important to you, I would recommend that you click on the above link and leave your comments as soon as possible.

Another bright spot is the work that is being done by the US Access Board to follow up on initial ADA regulations in several areas that could benefit from a more refined definition. Working in tandem with the DOJ, they solicited input on the height and characteristics of hotel beds, and have been working for several years on reviewing the dimensions of medical equipment and establishing standards for accessible medical devices of all types. The Board has scheduled two hearings on diagnostic medical equipment, and will be taking public testimony on their recommendations through June 8, 2012. The Centers for Medicare and Medicaid Services (CMS) has also joined with the DOJ in publishing guidance for the medical profession about how to provide care for people with mobility disabilities.

DOJ and the Access Board continue to refine the ADA Standards for Accessible Design in order to expedite compliance through better understanding of the regulations by business owners and government agencies who need to comply with them. New ADA regulations which have taken effect during the past two years provide additional guidance on such items as service animals, the use of Segways as mobility devices, recreational facilities of all types, timeshare accessibility, ticketing and lodging reservations. The Access Board recently concluded two hearings on the Telecommunications Act Accessibility Guidelines, and additional action will be taken once the hearing testimony has been processed.

While it appears that not much improvement has occurred in the last 20 years, expanded employment opportunities for people with disabilities are actually bright spots. Public testimony is being evaluated on a new rule by the Department of Labor that would require federal contractors to increase their percentage of employees with disabilities to 7% of their total workforce. That change coincides with an effort led by the Office of Personnel Management and DOL to increase federal agency disability employment percentages.

The sun is really shining on three cities that have recently improved access to accessible taxi cabs because of solid work by disability advocates. Congratulations are due to those who fought for those changes in New York City, Washington, DC and Chicago. Thanks to their efforts, and if the Supreme Court will just leave the Affordable Care Act
intact, I may have a use for my sunglasses after all.

© 2012 Michael Collins
RoboDad
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Posted by RoboDad
Wednesday, March 28, 2012
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When we hear the term “perfect storm” it usually refers to some type of confluence in the atmosphere that leads to a wild weather phenomenon that threatens life and damages property. In the real world most such storms are of limited duration and, while they may do major damage and literally paralyze parts of the country for a period of days or weeks, people clean up and get on with their lives. For those of us living in the world of disability, our storms can be just as destructive and may last much longer.



Earlier this year I wrote about the move underway in Congress to repeal the provisions of the CLASS long-term-care program by passage of the ‘‘Fiscal Responsibility and Retirement Security Act of 2012.” That has now been accomplished, so people with disabilities will once again be unable to pay in advance for long-term care insurance that might support us as we age. The reason for the repeal was that the plan to pay for the program would not have actually done so. I would like to think that there are plenty of smart people in government who could have devised a way to make that program self-supporting if they really wanted to work at it.

Another storm has boiled up around our beloved Americans with Disabilities Act (ADA).  The United States Access Board issued some new ADA standards in 2010, and they took effect earlier this month. The changes were meant to improve the law, but unfortunately the lodging industry has seen this as an opportunity to seek repeal of provisions in the ADA that they feel are burdensome. The repeal movement began with protests about the requirement that all hotels and public swimming pools had to have wheelchair lifts installed that were permanently attached and immediately available for the use of people with disabilities who might want to take a dip with their families and friends.

The White House and members of Congress were lobbied hard on the issue, as was the Department of Justice
that is responsible for ADA enforcement. This has resulted in introduction of bills in both the House
and Senate that prohibit the Attorney General from enforcing accessibility regulations relating to pools at public accommodations and other public venues.

It is important for people to realize that this is not a new regulation, as a requirement to have pool lifts or other types of access available to public pools has been in effect since passage of the ADA in 1990. The failure of some hotels to accomplish that installation has resulted in very few penalties. Those in the lodging industry who complained have not taken the necessary action for 22 years, so apparently they felt it was important to simply set aside a standard that provides the necessary accessibility to features that are enjoyed by the rest of American society.

This is a disturbing situation, as the argument used to stop enforcement of that portion of the law was a flimsy one at best. Any public accommodation that could not accomplish the work due to financial hardship has always had a means of avoiding fines that might have been levied for not improving access.

The significance of this action cannot be ignored. The ADA is the major civil rights bill for people with disabilities, and was originally passed only after years of planning to assure that it would accomplish its goal of improving access to our society without unduly burdening anyone. Provisions of the ADA that required architectural improvements were phased in over time, with liberal tax credits and deductions allowed for those businesses that made improvements as the law required. Changes that were architecturally infeasible or that caused financial hardship did not even have to be made.

Congress has begun to whittle away at our civil rights as established by the ADA almost 22 years ago. I shudder when I think of which other sections of the law will be targeted next. Will it be in the area of public rights of way, which include the very sidewalks and curb ramps we depend upon? Will it mean that hotels with insufficient accessible rooms or roll-in showers will lobby to strike those provisions of the law? Could businesses that fail to maintain proper accessible parking work toward removal of parking requirements in order to gain back the spaces that became our access aisles? All of these items have been the subject of DOJ enforcement action in the past, as well as provisions that provide us access to employment, government services, kiosks, websites and interpreters for those who need them.

We all have an obligation, for our friends and family as well as future generations, to express our opinions about the type of actions that are occurring today. It is important to let your elected officials know that disability civil rights are critical to our enjoyment of and access to our society.

Lessening or eliminating similar civil rights would not be acceptable to other protected groups, whether for race, religion or gender. It should not be acceptable to us.

© 2012 Michael Collins
RoboDad
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Posted by RoboDad
Wednesday, Febuary 01, 2012
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Bulletin: Showing a complete lack of CLASS, elected representatives in Congress proudly proclaimed that they were voting to repeal the CLASS (Community Living Assistance Services and Supports) provisions in the Affordable Care Act. Read More
RoboDad
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Posted by RoboDad
Monday, January 23, 2012
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Being an advocate for emergency preparedness, fire protection, and living life safely is a role that I take very seriously. It probably started shortly after I graduated from high school, as I became a volunteer fireman in my hometown. During a railroad career spanning 23 years, I witnessed many serious derailments and crossing accidents, and natural disasters of all types.

Inevitably, it seems that people are never prepared for the different types of emergencies that seem to enter our lives so often. I was reminded of this during a major snow and ice storm that hit the Pacific Northwest in mid-January. We all knew it was coming, as the forecasting models promised that the warm rains would override cold air streaming down from the north and would result in unspecified amounts of snow, wind and potential icing.

This was not the first time that snow has been predicted here, as heavy snows usually occur three or four times a decade in this area. Unlike the Midwest and Northeast states that see heavy snow every year, Washington State and its numerous cities on the western side of the Cascade Mountains have very few snowplows or sanding trucks. We do have steep hills that make many streets and highways impassable whenever they become covered with snow or ice.

Despite the warnings, many people were completely unprepared when this year’s series of storms arrived as predicted. There was the usual rush at the grocery stores and hardware outlets as people stocked up on snow shovels, salt, sand, water and last-minute grocery items. Because we have so much rain in this area, most people felt that whatever snow might arrive would be short-lived. Unfortunately, that was not the case this time.

Those of us who are disabled face greater challenges when it comes to being prepared for and remaining safe during the type of weather disasters that occurred here. We need to take special heed of the warnings and inventory our supplies to make sure that we will not be caught short if the situation extends several days or even weeks, as has happened in the past.

Like all good advocates for emergency preparedness, I keep a good supply of water, food and other emergency supplies in the house at all times. This year I went a step further and purchased an emergency generator that would be able to power up my refrigerator/freezer,furnace blower, microwave and television set if the power went out. With any amount of wind, ice and snow, power outages are a sure thing in this area since we are the Evergreen State and surrounded by huge trees in all directions. When their limbs become heavy with snow and ice, these trees lose those limbs or topple over; they block roads, pull down power lines and become a danger to anything beneath them.

My wheelchair van has basic emergency supplies stowed in the back, just in case I should ever be trapped somewhere by ice and snow. Tire chains, portable ramps, a snow shovel, first aid supplies, granola bars and a blanket can come in handy when stranded by any type of storm. As long as my attendants can reach my house to get me up in the morning and put me to bed at night, I am prepared for just about anything. Fortunately my primary attendant has a vehicle with four-wheel drive and tire chains, so I was covered in that area. That turned out to be a good thing, as I was unable to get out of my house, or out of my driveway, for eight days due to the snow and ice.

People in the Pacific Northwest stay glued to their television sets watching round-the-clock coverage of major snow or windstorms much as the people of southern California are transfixed by frequent police chases on Los Angeles freeways. Our local news media dress up in color-coordinated storm jackets and supersede all national programming with their constant updates on traffic conditions, weather radar, flight cancellations and stories about tragedies that have struck individuals or whole communities.



(Photo credit: Spokane's KHQ-TV)

The news stories pointed out the risks to people with disabilities by actually showing a home that was hit by a fallen tree and that was occupied by someone who was quadriplegic. Fortunately no one in the home was injured when the tree blew over. Another news story covered a family that was walking over a mile with gas cans to fuel the generator that was powering the ventilator that was keeping their father with ALS alive. The snow, ice and trees laying across the roads had made them impassable, and made it impossible to get him transported to a nearby hospital or other facility with a reliable power supply. In some communities, power outages made it impossible to pump gasoline, so those who were unprepared faced the prospect of their generators being unable to provide emergency power.

This was, of course, a disaster that impacted everyone--not just people with disabilities. Despite the forewarning, numerous accidents and clogged roadways were caused by people trying to drive without tire chains or four-wheel drive. A few people who left their stranded vehicles to walk for help were struck by other cars, with disastrous results. Side or residential streets were not plowed until days after the initial storm, and at one time about 350,000 homes were without power. For some people, those power outages lasted almost two weeks. In at least one instance, someone ignored the broadcast warnings and brought a barbecue into the house to warm their family. Fortunately those family members ended up hospitalized, but alive.

Don’t get me wrong. This was not a disaster on the scale of Hurricane Katrina, or even the flurry of tornadoes that ravaged the southern United States last year. Most of the residents of the Pacific Northwest made it out alive, and with a few exceptions our property will be restored to its original condition by next summer. Hopefully those who were unprepared have learned a few lessons from this relatively minor brush with disaster.

This storm had its positive aspects too. There were literally hundreds of people who took in friends and distant family members whose homes were without power or heat. Neighbors who don’t speak throughout the year checked up on or delivered food to those nearby who were elderly or unable to leave their homes for other reasons. Bands of young people armed with snow shovels wandered the sidewalks looking for opportunities to help people who had not been able to shovel their own walkways and driveways. Those who helped others despite their own challenges epitomize the spirit of preparedness, as few of us are able to survive real emergencies without some help from others.

The rains have now washed away the snow, but we should not forget the lessons learned during this snowy January.
Are you and those you love and care for, whether relatives or not, fully prepared for whatever new challenges this year might bring? If not, perhaps you should get prepared so you won’t become a victim when the next disaster strikes—as it surely will.

© 2012 Michael Collins
RoboDad
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Posted by RoboDad
Thursday, December 22, 2011
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Regifting is an art. In some families the word is taboo, but with seven siblings it was a common practice in our family as I grew up. Passing the clothes and toys we had outgrown down to younger brothers and sisters did not qualify as regifting. Rewrapping a new or slightly used Christmas or birthday gift did qualify, and was often the practice when we did not take the time to actually shop for that special someone in our family. Read More
RoboDad
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Posted by RoboDad
Friday, September 23, 2011
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Our friends at the federal Department of Transportation (DOT) have done it!  They have expanded our transportation options while traveling on trains and on paratransit vehicles. The new regulations, which were posted earlier this month, take effect at various times during 2011. Read More
RoboDad
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Posted by RoboDad
Thursday, September 22, 2011
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In the dictionary, inertia is defined as: The tendency of a body at rest to remain at rest or of a body in straight line motion to stay in motion in a straight line unless acted on by an outside force. Read More
RoboDad
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Posted by RoboDad
Thursday, August 11, 2011
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It’s everywhere I look: tangled in plastic bags in the closet, twisted together in the backpack of my wheelchair, lined up neatly in a kitchen drawer, coiled on my workbench, standing ready in a toolbox and my suitcase, and even lying flat beneath my feet.  Read More
RoboDad
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Posted by RoboDad
Tuesday, July 19, 2011
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What “ticks” you off? Is it the para-transit system with reservation rules that don't work with your lifestyle? Do you want to take a local trip spontaneously, but find you should have planned for it days before? Do the hours of service end before you wanted to come home? Read More
RoboDad
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Posted by RoboDad
Wednesday, July 13, 2011
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A few inches can make quite a difference in what kind of day we have. In my case it was 96 inches: just eight feet! How difficult could it be to respect that distance by keeping it clear, especially when the entire space was striped? It was apparently too difficult for the (insert derogatory noun here) who parked right next to the ‘van from hell’ on a sunny Sunday afternoon. Read More
RoboDad
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Posted by RoboDad
Friday, June 10, 2011
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We waited in the left-turn lane. I was driving my van, and when the arrow turned green I started to follow a small pickup truck around the corner. As I pulled back on the throttle, my wheelchair slowly rolled back from under the steering wheel. Since my hand was still grasping the hand control, my van's speed increased--the pickup was about to be smacked from the rear! Read More

RoboDad
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Posted by RoboDad
Tuesday, March 15, 2011
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March Madness is upon us! It is the annual season of celebrating upsets, close calls, slam dunks, breakaways and watching the victors cut down the net from the rim. Nets also play other important roles this year, as will be verified by any losing goalie in the Stanley Cup playoffs or by any pro fisherman who fails to land a trophy catch. Notwithstanding their respective importance, the type of net that I will be addressing here is known as the “personal safety net.”

Why is that important? We have just witnessed a continuing series of natural disasters that included major earthquakes in New Zealand and Japan; flooding that devastated Australia and much of the eastern United States; tsunamis that drowned untold thousands of Japanese citizens and lapped against our shores, creating millions of dollars of damage; record snows in the Northeast and early killer tornadoes in the South. Personal safety nets are required for protection from the types of natural disasters that just occurred, as well as those that are predicted in our inevitable future.

This pulpit has been used to address the importance of emergency preparedness for people with disabilities in the past. Last November I posted Living on the Edge, which concerned the need to be prepared for all types of emergencies. Despite such warnings, I realize that human nature is to procrastinate. It is likely that many who are reading this blog still have not taken the necessary steps to ensure that they and their loved ones are prepared and protected when the unexpected happens, as it surely will.

Many families have escape plans that are as simple as designating a place to meet outside the house, and perhaps a distant relative to call or check in with in case family members become separated during an emergency. For some of us with disabilities, just getting out of the house and/or being able to call for assistance may be the most important part(s) of our plans. That emergency kit in my hallway closet won’t do me much good if I can't get to it when an emergency strikes. The same can be said for the three-day water supply that awaits an emergency in my kitchen pantry.

I admit to being one of those who will still be in bed long after a nighttime earthquake unless someone comes to my house to rescue me. If necessary to wait for the fire department or other emergency responders, it may be many hours or days before they get around to searching damaged structures; I'm not sure that I want to wait that long.

I'm also dependent on a telephone system that doesn't work when the power goes out, which is likely in the event of a major storm or significant earthquake. Since I live in the fabled Cascadia subduction fault zone in the stormy Pacific Northwest, I am virtually assured of some opportunities to deal with violent shaking and power outages as time goes on. Those who live anywhere near the thousands of faults that crisscross the state of California or the American Midwest share that same level of opportunity. Some of you who live near the rivers or creeks that will overflow as this winter's record snowfalls melt have similar concerns to deal with sometime in the near future.

It is not difficult to prepare for emergencies: it just takes a little time. Guidance is available in many locations on the Internet, beginning with the simple checklists that can be found at ready.gov or your local government emergency preparedness website.

Personally, there are a few things on those lists that are of extreme importance to those of us who may be stuck in bed or trapped in our houses immediately after whatever disaster strikes:
1. Make sure your neighbors know how to enter your house and check on you as quickly as possible after a major event. Family members or caregivers may not be able to travel right away, due to road and bridge conditions.
2. Give those same neighbors a list of nearby and distant family members who should be contacted in case you are unable to contact somebody to tell them about your situation. Remember that you may be carted off in an ambulance and not able to reach a phone to make those calls yourself.
3. Always carry cash and identification with you, as many stores will not be able to accept credit cards in the event of a widespread power outage.
4. Copies of important prescriptions, anda few days' supply of the medications needed to maintain your health, should be with you at all times. Remember that you might be traveling or in a vehicle away from home when a disaster strikes.
5. A list of information needed to replace important documents, such as driver's license numbers, bank account numbers, passport numbers, etc. should be given to trusted family members in case it is necessary to replace those items if lost in a flood or fire.

That may sound like a lot to do, but if you agree that it is important you can complete the above in an hour or two. That's a pretty cheap investment of time to assure that your personal safety net is in great shape. What are you waiting for?

© 2011 Michael Collins
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