Disability confidential. Informing. Empowering. Agitating.
Life After Paralysis is a blog that represents a variety of paralysis community members. It is a place for open conversation about the issues and the interests of people living with paralysis, their family, friends, caregivers, and the professionals that serve them.
Comments are welcome!
The opinions expressed in these blogs are the author's own and do not necessarily reflect the views of the Christopher & Dana Reeve Foundation.
(Find out more about the contributors at www.ChristopherReeve.org/contributors.)
Category: Wheelchairs Category
Will it never end? Another airline has (once again) mishandled the power wheelchair belonging to a friend of ours and damaged it so badly that it required extensive repairs. What is wrong with these large corporations that they cannot teach their employees who handle our expensive, fragile and vital mobility equipment how to do so without damaging or destroying it? Read More
I know we are going into the week of Thanksgiving, but I promised I would write up a blog on how I made my Vegas winning costume. And to go with the week of Thanksgiving I am very thankful that I won the trip to Las Vegas
!! I’m still shocked at the fact that we are headed to LAS VEGAS
!! I hope my win is encouraging to others and you too will seek out local contests in your home towns and strive for the prize in making the most epic Halloween
costumes next year. I want to see them. Read More
As I explained in my previous blog, the titles of the blogs in this two-part series refer to the act of flipping something upside down. Thanks to some childhood experiments with real turtles, the phrase "turning turtle" has since had a clear meaning to me and my friends. While most turtles appear able to flip themselves back upright, many of us who use wheelchairs or other mobility devices do not have that ability. That is why it is extremely important to remain upright and stay securely seated at all times. Read More
See all Michael Collins
, Independent Living
, Adaptive Sports
, Emergency Preparedness
Those who follow my blogs know that I am very free in expressing opinions and spreading the word about different issues involving health and paralysis. However, there are situations where that is not possible. One of those is when writing about Cancer, as I have never been diagnosed with that disease and any information I relayed to my readers would be secondhand at best. However, a good friend of mine from Virginia, Sheri Denkensohn, has had Cancer and is very proactive in her efforts to get medical offices and hospitals equipped with accessible diagnostic devices for those of us who use wheelchairs. Read More
One of the more important lessons when I was learning to drive a car was that it was important to keep the rubber side down. Since "keeping the rubber side down" is also important for those of us who use wheelchairs, I still keep that phrase in the back of my mind. Read More
I can now reveal what I am for Halloween – I can’t believe I kept it a secret for almost an entire year. Very few people knew what I was going to be. Only those that were either going with me or were helping with the making of it knew. And everyone kept it quiet so I thank them as the surprise of what I am going to be is half the fun and if it turns out to be a total disaster when making it then no one is the wiser. I did kind of spill the beans at my birthday party on what I was going to be, but at that point I had already made half of it. Read More
I am pretty much done with my Halloween costume for 2013 and it is FANTASTIC! It’s still a secret though! The little I can tell you about it is that I am doing my own spin on a character. I’m going to be a little more eccentric and scarier than the one you see in the movies. Read More
Karma: the Buddhist belief that whatever you do comes back to you, e.g. If you do something good, something good will happen to you, and vice versa. (Urban Dictionary)
My karma level has been a little down lately, as a continuing series of little things has been going wrong. Medicare
and my supplementary insurance provider continue to deny payment for medical items I need, despite my repeated appeals, and the constant rain showers make me very aware that my roof and gutters are about due for replacement. Read More
Outdoor recreation has been an important part of my life that has been severely restricted since my spinal cord injury in 1988. Early in that period, there were few outdoor areas that had any type of trails that would accommodate a power wheelchair. My attempts to accompany friends on excursions into the redwoods or even a short jaunt onto a beach or a 'hike' into the desert or forests usually resulted in me being stuck in the sand or hung up on a rock or tree root. Read More
See all Michael Collins
, Civil Rights
, Independent Living
, Quality of Life
, Outdoor Recreation
Well, it’s officially my favorite time of year – I just celebrated another birthday, football season has started, and HALLOWEEN
is just around the corner! Which means if you are going to make your costume around your wheelchair this year you better get a move on! Read More
I was a Jack in the Box (or if you want to get technical since I am a girl - a Jane in the Box) a couple of years ago and it was by far one of my most favorite costumes to date and we all know how much I love my Halloween costumes! This costume was fairly easy to make and did not cost a lot. This costume can be made for both young and old, any color, pattern, and size. With the box basically being an empty canvas you have the ability to decorate any way you want. Read More
September is Spinal Cord Injury Awareness Month. As I write, Christopher Reeve's wheelchair is in transit for a special exhibition to help raise awareness of paralysis. Such a powerful icon, Superman's empty wheelchair.
The first time I rolled into the offices of the Christopher & Dana Reeve Foundation, I was struck by a couple of things. First, the Foundation is housed in such modest space. It's not a posh, flashy (expensive) suite designed to awe visitors and potential donors. It's simply working offices.
Next I was awestruck by Christopher's chair ensconced in the lobby, silent and insistent.Read More
What is wrong with the media in this world? Since the passage of the Americans with Disabilities Act of 1990
, advocates have been beseeching the media and the general public to use appropriate language whenever describing people with disabilities. It is very irritating when almost any article referring to disability or wheelchairs reverts back to the outmoded language of decades ago. It is even more irritating when that language originates from people with disabilities or the organizations that serve us. Read More
Have you ever had concerns about the inequities facing wheelchair users who need to rent vans equipped with ramps or lifts when they travel? It bugs me, so in researching a recent column for New Mobility magazine
, I contacted several of the major car rental companies to inquire as to the availability of lift- or ramp-equipped rental vans. All of those companies responded back, almost immediately, with their recommendations that I contact the major wheelchair van rental companies instead. Read More
The parking battle never seems to end. It has been over 20 years since the Americans with Disabilities Act (ADA)
was passed and implemented, and many businesses have yet to use a gallon of paint and a couple of signs to mark off parking spaces that are accessible to those who need them due to the presence of a disability. It has taken enough years that I sometimes wonder if we will ever see some universal success in this arena. Even then, the battle will not be over. Read More