Disability confidential. Informing. Empowering. Agitating.
Life After Paralysis is a blog that represents a variety of paralysis community members. It is a place for open conversation about the issues and the interests of people living with paralysis, their family, friends, caregivers, and the professionals that serve them.
Comments are welcome!
The opinions expressed in these blogs are the author's own and do not necessarily reflect the views of the Christopher & Dana Reeve Foundation.
(Find out more about the contributors at www.ChristopherReeve.org/contributors.)
Category: Healthcare Category
Those who follow my blogs know that I am very free in expressing opinions and spreading the word about different issues involving health and paralysis. However, there are situations where that is not possible. One of those is when writing about Cancer, as I have never been diagnosed with that disease and any information I relayed to my readers would be secondhand at best. However, a good friend of mine from Virginia, Sheri Denkensohn, has had Cancer and is very proactive in her efforts to get medical offices and hospitals equipped with accessible diagnostic devices for those of us who use wheelchairs. Read More
It happens every time I go for a doctor's visit, I can predict the conversation: height? This is an easy one, it hasn't changed in 25 years. Weight? Here's where it gets tricky. I have no idea what I weigh; my weight has always been volatile. “I don't know.” I answer honestly. The Med Tech will always look at me confused. I've been asked to guess my weight; I ask if they'd like me to guess my blood pressure and glucose level too. Read More
Acknowledging my mortality out loud makes my friends uncomfortable. Life coaches, internet memes and country singers exhort us to “live like we are dying." What about those of us who do? Read More
Many people view those of us who are paralyzed as a class of individuals who take from society, rather than giving back. We rely on public and private insurance to cover the costs of our medically-related expenses, are often unemployed, and can have difficulty getting out and about on a regular basis due to a lack of reliable transportation. I contend that they are wrong, very wrong, and that we are, instead, viable contributors to the economy through our purchases that are not covered by whatever insurance we have available to us. Read More
The year of my spinal cord injury, 1988, was a very bad year. Surprisingly, I did not realize how bad it really was until some old correspondence was discovered while my sister was cleaning out my mother's files a couple of months ago. The family Christmas letter from that year told the full story, and I learned from that two-page letter that I must not have been aware of what had been going on around me that entire year. Read More
“Life should not be a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside in a cloud of smoke, thoroughly used up, totally worn out, and loudly proclaiming ‘Wow! What a Ride!’”
—Hunter S. Thompson
I have accomplished the part about being used up and totally worn out, but I am not yet ready to skid in -- broadside or otherwise. Instead, I would like to stay healthy so I can enjoy what life is left, but need some help doing so. Read More