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Life After Paralysis is a blog that represents a variety of paralysis community members. It is a place for open conversation about the issues and the interests of people living with paralysis, their family, friends, caregivers, and the professionals that serve them.
Comments are welcome!
The opinions expressed in these blogs are the author's own and do not necessarily reflect the views of the Christopher & Dana Reeve Foundation.
(Find out more about the contributors at www.ChristopherReeve.org/contributors.)
Category: Family Life Category
I know we are going into the week of Thanksgiving, but I promised I would write up a blog on how I made my Vegas winning costume. And to go with the week of Thanksgiving I am very thankful that I won the trip to Las Vegas
!! I’m still shocked at the fact that we are headed to LAS VEGAS
!! I hope my win is encouraging to others and you too will seek out local contests in your home towns and strive for the prize in making the most epic Halloween
costumes next year. I want to see them. Read More
It happens every time I go for a doctor's visit, I can predict the conversation: height? This is an easy one, it hasn't changed in 25 years. Weight? Here's where it gets tricky. I have no idea what I weigh; my weight has always been volatile. “I don't know.” I answer honestly. The Med Tech will always look at me confused. I've been asked to guess my weight; I ask if they'd like me to guess my blood pressure and glucose level too. Read More
I am pretty much done with my Halloween costume for 2013 and it is FANTASTIC! It’s still a secret though! The little I can tell you about it is that I am doing my own spin on a character. I’m going to be a little more eccentric and scarier than the one you see in the movies. Read More
Resolve: (noun) firm determination to do something. (online dictionary)
My idea of what comprises a hero has evolved throughout my life. At first, with the advent of television and movie attendance, my heroes appeared in black and white with names like Flash Gordon, Tarzan, the Lone Ranger, Hopalong Cassidy, Superman and Sky King. Early comic books brought more than color to the world of heroes, as Superman, the Green Lantern, Batman and others fought the bad guys, and never seemed to lose. Read More
Well, it’s officially my favorite time of year – I just celebrated another birthday, football season has started, and HALLOWEEN
is just around the corner! Which means if you are going to make your costume around your wheelchair this year you better get a move on! Read More
I was a Jack in the Box (or if you want to get technical since I am a girl - a Jane in the Box) a couple of years ago and it was by far one of my most favorite costumes to date and we all know how much I love my Halloween costumes! This costume was fairly easy to make and did not cost a lot. This costume can be made for both young and old, any color, pattern, and size. With the box basically being an empty canvas you have the ability to decorate any way you want. Read More
I make no secret of my gushing fandom of Teal Sherer's scripted comedy, My Gimpy Life. I find it smart, realistically funny and some of the most impactful advocacy I've ever witnessed. Over the last year, I've been fortunate to get to know Teal and I was really lucky that in between pre-production meetings she was able to speak to me about her life and her show for this blog. Read More
Acknowledging my mortality out loud makes my friends uncomfortable. Life coaches, internet memes and country singers exhort us to “live like we are dying." What about those of us who do? Read More
I got to do something I haven’t done since before I got hurt 18 years ago on my recent trip to Rochester, MN for a family reunion and my annual trip to the Mayo Clinic, I got to go in a HOT TUB. Yes, a hot tub!! I packed my swim suit for the first time because we were going to have some down time between the reunion and clinic so I figured with the help of my dad and family members we could probably get me in and out of the pool. Except, I didn’t need their help. The Comfort Inn we have been staying at for the last 5-7 years installed a pool lift, not only did they install a pool lift they also installed a hot tub lift as well. How cool is that? Read More
We've talked before about my decision to sell my already modified home in order to move closer to the neighborhood where I spend most of my time. That's going to mean renovations to make whatever home I purchase accessible so that I can function independently.
I'm excited and frightened in equal measure. I got some things wrong when I did this house, moving will allow me the opportunity to get those things right. But, what if? What if I can't find an acceptable home to modify or I start and run into unforeseen problems or what if I don't budget properly or I get something painfully wrong? “What if” keeps me up a lot of nights.Read More
Once in awhile there is an issue that is so troubling that it just won't go away. This was known as "having a burr under your saddle" when I was growing up, due partly to the fact that I was raised in farm country. The burr that is causing trouble for me today is an issue of fairness, as people who require access to rental vehicles with wheelchair lifts or ramps when they are traveling struggle to find reasonably priced options without going to a lot of trouble. I wrote about this in a June blog
and outlined the approach I planned to take with the major car rental companies. Read More
At the risk of sounding like a wimp when compared to those who endure record-breaking heat
in the Southwest, the 95° heat that set a record in the Seattle area this past weekend extended into what turned out to be a bad Sunday night for me. I watched an outside sporting event on Sunday afternoon, avoiding direct sunlight, since I wanted to avoid overheating. Our summers are just too short to stay inside when the weather is nice. The long-term exposure to heat, even in the shade, had a subtle effect on me and I was still too warm when bedtime arrived. However, I've read my own columns about how to deal with the heat, have given trainings regarding the FEMA
advice about heat emergencies, and figured that I was ready to deal with the impact of too much heat. Read More
As I write this at 10:18 PM, it's still 104 degrees at my house. Small airplanes are grounded because the air is too hot and thin to provide the lift needed to safely take off and land. I've seen photos of my friends making dashboard cookies
. This has been the second hottest weekend ever recorded in Phoenix having hit 121 yesterday. Youch. I was going to start by bragging that I had survived this weekend. Then the predicted dust storm blew up and suddenly my power flickered. Now there's concern. Read More
The need for emergency preparedness has become an important part of our way of life, and is especially important for people living with paralysis or other chronic health conditions. Reminders to put together household emergency preparedness kits show up in mailings from local utility companies and through all types of media sponsored by emergency response agencies from the Federal Emergency Management Agency (FEMA) all the way down to the local fire department. Those reminders are especially common during the period leading up to a major approaching storm or immediately after crises caused by tornadoes, hurricanes, flooding, earthquakes, or wildfires. Information about how to assemble emergency preparedness kits and be prepared if evacuation becomes necessary is readily available on the Internet for anyone seeking such information. Read More
Opportunities are funny things, they don’t usually come to me trumpets heralding and banners flying, “Pay attention, this is it, what you have wanted, act now!” No, opportunities often come in hushed tones as if someone’s lips are resting lightly, intimately upon my ear uttering, “press forward” or body nudges, a tingling on my scalp. As time has marched forward my hearing has amplified and my vision has become plenary when possibility calls me, much of the time. Oh course my hindsight is still 20/20. This good fortune, the chance to gain new insight into my Dad and myself while traveling together, came through the back door. Read More