Disability confidential. Informing. Empowering. Agitating.
Life After Paralysis is a blog that represents a variety of paralysis community members. It is a place for open conversation about the issues and the interests of people living with paralysis, their family, friends, caregivers, and the professionals that serve them.
Comments are welcome!
The opinions expressed in these blogs are the author's own and do not necessarily reflect the views of the Christopher & Dana Reeve Foundation.
(Find out more about the contributors at www.ChristopherReeve.org/contributors.)
Category: Customer Service Category
Will it never end? Another airline has (once again) mishandled the power wheelchair belonging to a friend of ours and damaged it so badly that it required extensive repairs. What is wrong with these large corporations that they cannot teach their employees who handle our expensive, fragile and vital mobility equipment how to do so without damaging or destroying it? Read More
Those who follow my blogs know that I am very free in expressing opinions and spreading the word about different issues involving health and paralysis. However, there are situations where that is not possible. One of those is when writing about Cancer, as I have never been diagnosed with that disease and any information I relayed to my readers would be secondhand at best. However, a good friend of mine from Virginia, Sheri Denkensohn, has had Cancer and is very proactive in her efforts to get medical offices and hospitals equipped with accessible diagnostic devices for those of us who use wheelchairs. Read More
Karma: the Buddhist belief that whatever you do comes back to you, e.g. If you do something good, something good will happen to you, and vice versa. (Urban Dictionary)
My karma level has been a little down lately, as a continuing series of little things has been going wrong. Medicare
and my supplementary insurance provider continue to deny payment for medical items I need, despite my repeated appeals, and the constant rain showers make me very aware that my roof and gutters are about due for replacement. Read More
I attended the Dallas Cowboys
vs Kansas City Chiefs
game at Aarowhead Stadium
on September 15th as an early birthday present. My friend Carrie (also in a wheelchair), her friend Maria, and my dad attended the game with me. We had great seats in the club level near the end zone. We could see everything on the field and everything around it. The seats were some of the best I have had when it came to seeing a football game. However, I was a little ticked off at how many able bodied people were in this section. Now, I understand that there is a rule out there that the stadium and/or venues can sell those tickets if the game is sold out and those are the only seats available. That’s all fine and good, but Carrie and I went through hell to get the accessible tickets a couple of months ago. Read More
Many people view those of us who are paralyzed as a class of individuals who take from society, rather than giving back. We rely on public and private insurance to cover the costs of our medically-related expenses, are often unemployed, and can have difficulty getting out and about on a regular basis due to a lack of reliable transportation. I contend that they are wrong, very wrong, and that we are, instead, viable contributors to the economy through our purchases that are not covered by whatever insurance we have available to us. Read More
Once in awhile there is an issue that is so troubling that it just won't go away. This was known as "having a burr under your saddle" when I was growing up, due partly to the fact that I was raised in farm country. The burr that is causing trouble for me today is an issue of fairness, as people who require access to rental vehicles with wheelchair lifts or ramps when they are traveling struggle to find reasonably priced options without going to a lot of trouble. I wrote about this in a June blog
and outlined the approach I planned to take with the major car rental companies. Read More
Have you ever had concerns about the inequities facing wheelchair users who need to rent vans equipped with ramps or lifts when they travel? It bugs me, so in researching a recent column for New Mobility magazine
, I contacted several of the major car rental companies to inquire as to the availability of lift- or ramp-equipped rental vans. All of those companies responded back, almost immediately, with their recommendations that I contact the major wheelchair van rental companies instead. Read More
It's May 2013 and I am still not fully in my new chair. I started the process on ordering a new chair in March of 2012. I was finally working with a DME that was listening to me and what I wanted. After being in a Colours chair for the last few years I wanted another one. I've never had problems with the one I have been in and worked with a wonderful guy at Colours and was looking forward to ordering a custom chair and the chair of my dreams. It’s been more of a nightmare than anything else. Read More