Disability confidential. Informing. Empowering. Agitating.
Life After Paralysis is a blog that represents a variety of paralysis community members. It is a place for open conversation about the issues and the interests of people living with paralysis, their family, friends, caregivers, and the professionals that serve them.
Comments are welcome!
The opinions expressed in these blogs are the author's own and do not necessarily reflect the views of the Christopher & Dana Reeve Foundation.
(Find out more about the contributors at www.ChristopherReeve.org/contributors.)
Category: Civil Rights Category
One of the incredible benefits of my role as a Reeve Foundation blogger is the amazing people I am privileged to interview. This month I spoke with the intrepid Angela Madsen; a Marine who, due to a service-related spinal cord injury compounded by a bureaucratic morass, was once a homeless veteran, living on the streets and sleeping in her wheelchair. Read More
See all Jennifer Longdon
, Civil Rights
, Independent Living
, Quality of Life
, Adaptive Sports
, Paralyzed Veterans of America
, Outdoor Recreation
, Veteran Affairs
Will it never end? Another airline has (once again) mishandled the power wheelchair belonging to a friend of ours and damaged it so badly that it required extensive repairs. What is wrong with these large corporations that they cannot teach their employees who handle our expensive, fragile and vital mobility equipment how to do so without damaging or destroying it? Read More
Recently I was asked to create a list of five to ten outcomes that would benefit me, personally, should the U.S. ratify the Convention on the Rights of Persons with Disability (CRPD)
and decide to climb to the Summit of Human Rights. I hadn’t put a conscious personal twist on the efficacy of ratification. Previously I had limited the CRPD perks as well as my focal point to the 57 million people in this country and the 1 Billion people globally with disabilities. Read More
Today is National Call-In Day for the Disability Treaty.
This is all you have to do:
1. Sign the Convention on the Rights of Persons with Disability (CRPD) (Disability Treaty) petition.
2. Call the Senators on the USICD call list and ask them to support the Disability Treaty.
3. Send an “ I support the CRPD and so should you” email to my state Senators.
4. Copy this information and send it in an email to friends, colleagues, social media and family to do all of the above tasks on To Do List. Read More
Those who follow my blogs know that I am very free in expressing opinions and spreading the word about different issues involving health and paralysis. However, there are situations where that is not possible. One of those is when writing about Cancer, as I have never been diagnosed with that disease and any information I relayed to my readers would be secondhand at best. However, a good friend of mine from Virginia, Sheri Denkensohn, has had Cancer and is very proactive in her efforts to get medical offices and hospitals equipped with accessible diagnostic devices for those of us who use wheelchairs. Read More
We are being called to action and that means every American. Senator Menendez, Chairman of the Senate Foreign Relations Committee has now held two meetings concerning the ratification of the Convention on the Rights of Persons with Disabilities
(CRPD) by the United States of America. The first was in Washington, DC on October 9th and the second meeting was held on October 24th in West Orange, New Jersey at the Kessler Foundation
. Both sessions addressed the issues for the stakeholders as well as what and how people can do to support the ratification. Read More
Resolve: (noun) firm determination to do something. (online dictionary)
My idea of what comprises a hero has evolved throughout my life. At first, with the advent of television and movie attendance, my heroes appeared in black and white with names like Flash Gordon, Tarzan, the Lone Ranger, Hopalong Cassidy, Superman and Sky King. Early comic books brought more than color to the world of heroes, as Superman, the Green Lantern, Batman and others fought the bad guys, and never seemed to lose. Read More
Karma: the Buddhist belief that whatever you do comes back to you, e.g. If you do something good, something good will happen to you, and vice versa. (Urban Dictionary)
My karma level has been a little down lately, as a continuing series of little things has been going wrong. Medicare
and my supplementary insurance provider continue to deny payment for medical items I need, despite my repeated appeals, and the constant rain showers make me very aware that my roof and gutters are about due for replacement. Read More
Outdoor recreation has been an important part of my life that has been severely restricted since my spinal cord injury in 1988. Early in that period, there were few outdoor areas that had any type of trails that would accommodate a power wheelchair. My attempts to accompany friends on excursions into the redwoods or even a short jaunt onto a beach or a 'hike' into the desert or forests usually resulted in me being stuck in the sand or hung up on a rock or tree root. Read More
See all Michael Collins
, Civil Rights
, Independent Living
, Quality of Life
, Outdoor Recreation
The new Guinness commercial
has sparked one of the details I find most beautiful about this life we live and each human being. We are all viewing the same image and coming to very different perspectives creating a priceless opportunity to interweave our views scratching around toward growth, understanding, empathy, kindness, curiosity, insight and change. Read More
I’m taking a risk, jumping out of my box, doing something completely different with my published writing. A first for me. I’m taking a risk and hoping you will too. Read More
What is wrong with the media in this world? Since the passage of the Americans with Disabilities Act of 1990
, advocates have been beseeching the media and the general public to use appropriate language whenever describing people with disabilities. It is very irritating when almost any article referring to disability or wheelchairs reverts back to the outmoded language of decades ago. It is even more irritating when that language originates from people with disabilities or the organizations that serve us. Read More
Once in awhile there is an issue that is so troubling that it just won't go away. This was known as "having a burr under your saddle" when I was growing up, due partly to the fact that I was raised in farm country. The burr that is causing trouble for me today is an issue of fairness, as people who require access to rental vehicles with wheelchair lifts or ramps when they are traveling struggle to find reasonably priced options without going to a lot of trouble. I wrote about this in a June blog
and outlined the approach I planned to take with the major car rental companies. Read More
I discovered the Rolling Diva, Bethany Hoppe through our mutual friend, Teal Sherer. (I love that I have smart engaged friends.
Bethany's new project,"Pennhurst: The Divas Will Rise," immediately caught my attention. As an advocate with an interest in the history of disability I recognized that notorious name. Read More
Have you ever had concerns about the inequities facing wheelchair users who need to rent vans equipped with ramps or lifts when they travel? It bugs me, so in researching a recent column for New Mobility magazine
, I contacted several of the major car rental companies to inquire as to the availability of lift- or ramp-equipped rental vans. All of those companies responded back, almost immediately, with their recommendations that I contact the major wheelchair van rental companies instead. Read More