Disability confidential. Informing. Empowering. Agitating.
Life After Paralysis is a blog that represents a variety of paralysis community members. It is a place for open conversation about the issues and the interests of people living with paralysis, their family, friends, caregivers, and the professionals that serve them.
Comments are welcome!
The opinions expressed in these blogs are the author's own and do not necessarily reflect the views of the Christopher & Dana Reeve Foundation.
(Find out more about the contributors at www.ChristopherReeve.org/contributors.)
Acknowledging my mortality out loud makes my friends uncomfortable. Life coaches, internet memes and country singers exhort us to “live like we are dying." What about those of us who do? Read More
I never really got behind the idea of support groups. I could see how they might benefit others, such as grieving spouses or recovering addicts, but I never thought it would be comforting to tell my woes in front of a group of strangers. In fact, in my mind, it would be discomforting. I didn’t want to listen to the whining and complaining and declarations of victimhood of others, and I didn’t want them to listen to mine. I guess I took my emotional cue from that astute observer of human behavior, Tony Soprano: Read More
I’m taking a risk, jumping out of my box, doing something completely different with my published writing. A first for me. I’m taking a risk and hoping you will too. Read More
Disclaimer: The author is not a medical professional, so you should ignore any advice I dispense.
Human nature results in difficulty talking about certain subjects, even with family and friends. We love to talk about sex, but only as long as that subject involves other people. We also skirt the subject, and details, surrounding something most of us do every day, or at least on a regular basis: cleanse the waste from our body through a process of elimination. That time can be spent planning ahead for the day, catching up on the news, or just relaxing in relative peace and quiet. Read More
Living with a SCI has made me aware of the many details in life that I took for granted that should just take care of them selves. Details, for instance, I would enter a building through the front door or my precious bodily fluids would monitor themselves, but one detail I know I would have paid close attention to no matter what happened in my life, is my weight. I’m a woman that came of age in the 60’s when the mass media of television, movies and magazines was the high demand gospel and I paid attention. Read More
I got to do something I haven’t done since before I got hurt 18 years ago on my recent trip to Rochester, MN for a family reunion and my annual trip to the Mayo Clinic, I got to go in a HOT TUB. Yes, a hot tub!! I packed my swim suit for the first time because we were going to have some down time between the reunion and clinic so I figured with the help of my dad and family members we could probably get me in and out of the pool. Except, I didn’t need their help. The Comfort Inn we have been staying at for the last 5-7 years installed a pool lift, not only did they install a pool lift they also installed a hot tub lift as well. How cool is that? Read More
Many people view those of us who are paralyzed as a class of individuals who take from society, rather than giving back. We rely on public and private insurance to cover the costs of our medically-related expenses, are often unemployed, and can have difficulty getting out and about on a regular basis due to a lack of reliable transportation. I contend that they are wrong, very wrong, and that we are, instead, viable contributors to the economy through our purchases that are not covered by whatever insurance we have available to us. Read More
This past week I got to try adaptive kayaking for the first time and absolutely had a blast. Adaptive kayaking has been talked about since Cory Diedrich from the South Dakota Canoe and Kayak Association
saw us snow ski on the news this past February. There were a couple of trainings held for volunteers and those of us with disabilities to attend. I didn’t attend any of the trainings, but we really didn’t need to. Read More
I doubt if anyone else is counting, but this is my one hundredth blog for this fine web site, small fewer than the output of my blogging comrades, I’m sure, but still a benchmark for me. I love writing these small essays. I, like many of you, have a problem of living inside my head. If you were like that before you became paralyzed, then sitting in a wheelchair only exacerbates the situation. So, what do you do? You write columns about the world of people sitting in wheelchairs, including yourself. Read More
We've talked before about my decision to sell my already modified home in order to move closer to the neighborhood where I spend most of my time. That's going to mean renovations to make whatever home I purchase accessible so that I can function independently.
I'm excited and frightened in equal measure. I got some things wrong when I did this house, moving will allow me the opportunity to get those things right. But, what if? What if I can't find an acceptable home to modify or I start and run into unforeseen problems or what if I don't budget properly or I get something painfully wrong? “What if” keeps me up a lot of nights.Read More