Disability confidential. Informing. Empowering. Agitating.
Life After Paralysis is a blog that represents a variety of paralysis community members. It is a place for open conversation about the issues and the interests of people living with paralysis, their family, friends, caregivers, and the professionals that serve them.
Comments are welcome!
The opinions expressed in these blogs are the author's own and do not necessarily reflect the views of the Christopher & Dana Reeve Foundation.
(Find out more about the contributors at www.ChristopherReeve.org/contributors.)
This last week I stepped way outside of my comfort zone and attempted push-ups off the mat. Lucky for me I have a trainer that is willing to try new things with all of us and a college football player intern to help get us back up. My buddy Brett is usually the first to try new things in the gym and then if I like it, or think I can do it, I’ll try it too. He also likes to challenge me to new things and very rarely do I turn down a challenge. Read More
I have been paralyzed now for almost seventeen years and after the first four or five, nothing much has changed. It doesn’t get worse and it doesn’t get better. I have my share of late night trips to the ER and mysterious bacterial infections that have everyone scratching their head, but they continue to pass and leave no permanent damage except for the time wasted and the expectation that they will probably come again. The chances are pretty slim that I am going to die from level T-10 paralysis. I recently took a road trip with my wife and fell off of a loose toilet seat at a La Quinta Inn in Ashland, Oregon. The big gal at the front desk got me back on my chair, something I couldn’t quite pull off myself, so nothing much was lost except for a sucker punch to my pride. Read More
I have always wondered how far I traveled on a given day and what I would need to do to lose some weight. Since I have been trying to lose weight over the last few years pedometers have been talked about more often than not. For those that don’t know what a pedometer is, it is a small device to track how many steps you take in a day. A lot of weight loss companies encourage people to purchase these so people can see how many steps they take and then shoot for an increased number of steps per day to help them reach their weight loss goal. Read More
What is wrong with the media in this world? Since the passage of the Americans with Disabilities Act of 1990
, advocates have been beseeching the media and the general public to use appropriate language whenever describing people with disabilities. It is very irritating when almost any article referring to disability or wheelchairs reverts back to the outmoded language of decades ago. It is even more irritating when that language originates from people with disabilities or the organizations that serve us. Read More
Once in awhile there is an issue that is so troubling that it just won't go away. This was known as "having a burr under your saddle" when I was growing up, due partly to the fact that I was raised in farm country. The burr that is causing trouble for me today is an issue of fairness, as people who require access to rental vehicles with wheelchair lifts or ramps when they are traveling struggle to find reasonably priced options without going to a lot of trouble. I wrote about this in a June blog
and outlined the approach I planned to take with the major car rental companies. Read More
At the risk of sounding like a wimp when compared to those who endure record-breaking heat
in the Southwest, the 95° heat that set a record in the Seattle area this past weekend extended into what turned out to be a bad Sunday night for me. I watched an outside sporting event on Sunday afternoon, avoiding direct sunlight, since I wanted to avoid overheating. Our summers are just too short to stay inside when the weather is nice. The long-term exposure to heat, even in the shade, had a subtle effect on me and I was still too warm when bedtime arrived. However, I've read my own columns about how to deal with the heat, have given trainings regarding the FEMA
advice about heat emergencies, and figured that I was ready to deal with the impact of too much heat. Read More
Daily newspaper columnist Herb Caen was the oracle of San Francisco from the 1950’s right up to his death in 1997. He wrote a San Francisco Chronicle column every day full of news, celebrity sightings, bad jokes, and local profiles. He referred to his craft as “three-dot journalism.” He’d write a piece about a rude Chinese waiter then…(dot, dot, dot)…change the subject to something else going on in, as he called the city, “Baghdad-By-The-Bay.” Read More
As I write this at 10:18 PM, it's still 104 degrees at my house. Small airplanes are grounded because the air is too hot and thin to provide the lift needed to safely take off and land. I've seen photos of my friends making dashboard cookies
. This has been the second hottest weekend ever recorded in Phoenix having hit 121 yesterday. Youch. I was going to start by bragging that I had survived this weekend. Then the predicted dust storm blew up and suddenly my power flickered. Now there's concern. Read More