Disability confidential. Informing. Empowering. Agitating.
Life After Paralysis is a blog that represents a variety of paralysis community members. It is a place for open conversation about the issues and the interests of people living with paralysis, their family, friends, caregivers, and the professionals that serve them.
Comments are welcome!
The opinions expressed in these blogs are the author's own and do not necessarily reflect the views of the Christopher & Dana Reeve Foundation.
(Find out more about the contributors at www.ChristopherReeve.org/contributors.)
I discovered the Rolling Diva, Bethany Hoppe through our mutual friend, Teal Sherer. (I love that I have smart engaged friends.
Bethany's new project,"Pennhurst: The Divas Will Rise," immediately caught my attention. As an advocate with an interest in the history of disability I recognized that notorious name. Read More
The need for emergency preparedness has become an important part of our way of life, and is especially important for people living with paralysis or other chronic health conditions. Reminders to put together household emergency preparedness kits show up in mailings from local utility companies and through all types of media sponsored by emergency response agencies from the Federal Emergency Management Agency (FEMA) all the way down to the local fire department. Those reminders are especially common during the period leading up to a major approaching storm or immediately after crises caused by tornadoes, hurricanes, flooding, earthquakes, or wildfires. Information about how to assemble emergency preparedness kits and be prepared if evacuation becomes necessary is readily available on the Internet for anyone seeking such information. Read More
Have you ever had concerns about the inequities facing wheelchair users who need to rent vans equipped with ramps or lifts when they travel? It bugs me, so in researching a recent column for New Mobility magazine
, I contacted several of the major car rental companies to inquire as to the availability of lift- or ramp-equipped rental vans. All of those companies responded back, almost immediately, with their recommendations that I contact the major wheelchair van rental companies instead. Read More
In the last few weeks I’ve held to the standard operating procedure for High School graduations, attend parties armed with congratulatory cards. I write a few household words of encouragement for guidance along the paths that now stretch before them. “You must do the thing you think you cannot do” by Eleanor Roosevelt or “If you do what you love, you’ll never work a day in your life” by Marc Anthony. My two cents “Your success in life hinges on developing resiliency, build it in every fiber of your being because you will fail, you will experience pain. If you build resilience now your suffering will be shortened, you will know that this, whatever it is you’re experiencing, to shall pass and continue forward on your path.” Read More
Making a living off the products of a major civil rights law is not easy, even when that law is the Americans with Disabilities Act (ADA)
. Early in my disability career I was able to do that, quite successfully, and I've been able to apply that initial knowledge in both personal life and several professional careers since then. Read More
Opportunities are funny things, they don’t usually come to me trumpets heralding and banners flying, “Pay attention, this is it, what you have wanted, act now!” No, opportunities often come in hushed tones as if someone’s lips are resting lightly, intimately upon my ear uttering, “press forward” or body nudges, a tingling on my scalp. As time has marched forward my hearing has amplified and my vision has become plenary when possibility calls me, much of the time. Oh course my hindsight is still 20/20. This good fortune, the chance to gain new insight into my Dad and myself while traveling together, came through the back door. Read More
The following is not one of my normal blogs, but I felt that it was of enough significance to post it here for your information. As some of you know, I am not a great aficionado when it comes to floating around the oceans in a hotel room for a week at a time, or perhaps even longer. I like my hotel rooms to be on solid ground, without difficulty getting from the door of the hotel into whatever environment is outside. Read More
There are some annoying pet peeves we all have to deal with in the world and really they wouldn’t be that hard to fix if people just took the time to use some common sense. Today, while getting gas at Get n Go I encountered a man in a truck parking in the handicap spot. Read More
Many if not most wheelchair users, present company included, see the outside world as patronizing, indifferent, or hostile. By and large, we don’t trust those ambs out there. There is a classic scene in the 1969 Academy Award winning film, “Midnight Cowboy,” where a street bum with a gimp leg named Ratzo Rizzo, played by Dustin Hoffman, confronts a taxi edging into his crosswalk with the immortal line, “Hey, I’m walkin’ here!” Every time a car, desperate to make a left turn, blocks an intersection I’m trying to cross, I become immediately outraged, a la Ratso, and want to bash their hood with a baseball bat, shouting, “Hey, I’m rollin’ here!” Read More