Disability confidential. Informing. Empowering. Agitating.
Life After Paralysis is a blog that represents a variety of paralysis community members. It is a place for open conversation about the issues and the interests of people living with paralysis, their family, friends, caregivers, and the professionals that serve them.
Comments are welcome!
The opinions expressed in these blogs are the author's own and do not necessarily reflect the views of the Christopher & Dana Reeve Foundation.
(Find out more about the contributors at www.ChristopherReeve.org/contributors.)
This was my fourth year attending the annual North Central Paralyzed Veterans of America fishing trip in Oacoma, SD (near Chamberlain) and this year I left with quite an adventure. My dad and everyone that is a part of this event look forward to this every year. A lot of times this is the only time we get out fishing throughout the year. Read More
I’m relaxing in the bright sunshiny essence of summer, listening to birds and a wisp of a breeze awaiting the appearance of Bambi and Flower. From here it’s a reach for me to imagine my flare of irritation and frustration fueled by the feeling of resentment, to the point of putting myself in a ditch surrounded by black dogs. How can that be? Kind, gentle, sweet me smoldering all turned upside down? Well, I wasn’t paying attention and sometimes I nose dive into the ditch to learn. Read More
Hollywood can't have it both ways. If audiences are open to stories about people with disabilities should actors with disabilities be cast in those roles? Is it acceptable for able actors to portray characters with disabilities and if so, is there an obligation toward accuracy and authenticity?Read More
I for one, am a big, big fan of public brouhahas involving people with disabilities. They seem to pop up almost weekly nowadays. Just a month ago I wrote here about the NPR story exposing all the “undeserving disabled” who are like pigs at the public trough, living it up on disability payments like we were breeding a nation of Jeffery “The Dude” Lebowskis. That was, not surprisingly, a gross exaggeration bordering on a lie. A few months before that the story du jour was all those lazy, conniving, fully ambulatory travelers who weasel their way into a public wheelchair at the airport so they can get on the plane first. That happens to be true but on what scale, no one really knows. Both of these are good news stories with legs because, not to make too fine a point, they instantly p**s people off and give them something to harangue about around the dinner table. Read More
The following blog is a repeat of one I posted a couple of years ago, but it is still applicable today. With the devastating tornadoes and the resulting destruction which just happened in the Midwest, it should be a wakeup call to everyone that they need to be prepared for the benefit of themselves, their families and friends. It is probably not the last reminder you will receive from me on the subject, as people with disabilities are far more likely to be seriously impacted in the event of a major disaster. We live our lives 'on the edge' as it is, and the destruction caused by a disaster of any type is magnified when we are involved. I hope you'll take it to heart. Read More
Who says you can't learn anything from daytime TV? During an interview with Matt Lauer
of the NBC Today Show
on yesterday's Ellen Degeneres Show
, I learned that Martha Stewart
has signed up as a member of Match.Com
in order to seek out romance. Apparently her action has resulted in a 30% increase in memberships on that online dating site, as many older single people now realize that such a service might be appropriate for them if it is OK for Martha. Read More
As a T-10 paralytic, caused by the neuroimmunologic disorder, transverse myelitis, the thing that drives me up the wall is fatigue. It’s chronic, ongoing, and there doesn’t seem to be a whole lot I can do about it. It hits in the middle of the afternoon, around three, and if I don’t get off my tail and take a nap, I can still carry on, but at a much lower level of energy and attention. Problem wounds and infection, the major bugaboos of my kind of paralysis, come and go, and can be treated in a very specific way, but fatigue – it’s the kind of bothersome gift of wheelchair living that just keeps on giving.Read More
The parking battle never seems to end. It has been over 20 years since the Americans with Disabilities Act (ADA)
was passed and implemented, and many businesses have yet to use a gallon of paint and a couple of signs to mark off parking spaces that are accessible to those who need them due to the presence of a disability. It has taken enough years that I sometimes wonder if we will ever see some universal success in this arena. Even then, the battle will not be over. Read More
It's May 2013 and I am still not fully in my new chair. I started the process on ordering a new chair in March of 2012. I was finally working with a DME that was listening to me and what I wanted. After being in a Colours chair for the last few years I wanted another one. I've never had problems with the one I have been in and worked with a wonderful guy at Colours and was looking forward to ordering a custom chair and the chair of my dreams. It’s been more of a nightmare than anything else. Read More