Disability confidential. Informing. Empowering. Agitating.
Life After Paralysis is a blog that represents a variety of paralysis community members. It is a place for open conversation about the issues and the interests of people living with paralysis, their family, friends, caregivers, and the professionals that serve them.
Comments are welcome!
The opinions expressed in these blogs are the author's own and do not necessarily reflect the views of the Christopher & Dana Reeve Foundation.
(Find out more about the contributors at www.ChristopherReeve.org/contributors.)
I’ve got these couple of boxes with photographs crammed full to the brim to the point of barely closing the lid and on the inside, it’s a mess of years and events. This is my year to make sense of my 27 year athletic career media mess, the photographs, slides, newspaper clippings, magazines and videos, all neat and tidy like. I’m not a glitzy scrapbook gal so the sobriety I’ll bring to this drunken riot of my past sights and sounds will be digitized and what hard copies I keep will be in neatly labeled compartments in fireproof containers. BooYa! Read More
I let my heart off the leash recently. It came back scuffed. That's not much of a story, it happens to people all the time. If you want all the gory details, they're on my personal blog
. I'll skip right to the punch line; my paralysis freaked him out and ended my first relationship in these 8 years before it even started.
I get it; I'm a difficult woman to love. I have a polarizing personality and a very public opinion on a number of issues.Read More
There is a recent NPR Planet Money story that has disability activists up in arms. It’s called “Unfit To Work: The Startling Rise of Disability in America.” There are now 14 million people drawing federal disability benefits, the article states, and then proceeds with largely anecdotal backup to argue that something fishy is going on here. The big point, I think, is this: “…disability has… become a de facto welfare program for people without a lot of education or job skills.” If you can’t find work, in other words, or don’t want to work, you feign a work-preventing disability and get on the SSDI dole. Read More
A man celebrated around the world as the most important writer in modern African history died the other day. His name was Chinua Achebe, born in an Ibo village in southern Nigeria and best known for his first novel, “Things Fall Apart. Upon his passing, the praise flowed. “A towering man of letters,” exclaimed the New York Times. “Changed the face of world literature,” added the Los Angeles Times. Nelson Mandela said that “he brought Africa to the world.” Read More
Now that the budget standoff between the President and Congress has resulted in the dreaded sequester being implemented, there are threats, and promises, of extensive delays and much inconvenience facing air travelers in the months ahead. As someone who has experienced delays and inconvenience while flying for many years, I thought it might be appropriate to repost this blog from 2010 so that those who have not yet experienced my special kind of treatment can look forward to what lies ahead:
Every once in a while I get reminded of how special I really am. No, it is not related to “special needs.” That is a term that gets applied to people with disabilities far too often, and which most of us don't like, so I am not adopting that description. I'm talking about just plain “special.” Read More
For weeks, I've been working on a piece I want to share with you but it's become a tortured mess. It went from earnest to maudlin and appears beyond salvageable. In the middle of the ripping out of hair and gnashing of teeth, 110 pounds of unconditional love threw herself in my lap and demanded her time in the park. Now.
Let me tell you about Pearl… Read More
Now that Mother Teresa has been discredited in some quarters, who remain as the consensus everyday saints of this world? Kindergarten teachers, soup kitchen volunteers, and nurses. Nurses take care of patients while doctors diagnose and prescribe. Nurses change your sheets, wipe your bum, listen to your complaints, and nurture you back to health. Doctors care about disease. Nurses care about you. Read More
Okay, I admit it: I telecommute. I also know many telecommuters, and even have another family member who participates in that practice at least four days a week. Read More
“Life should not be a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside in a cloud of smoke, thoroughly used up, totally worn out, and loudly proclaiming ‘Wow! What a Ride!’”
—Hunter S. Thompson
I have accomplished the part about being used up and totally worn out, but I am not yet ready to skid in -- broadside or otherwise. Instead, I would like to stay healthy so I can enjoy what life is left, but need some help doing so. Read More